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Acacia Voynar

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Acacia Voynar

  1. A BIG thank you for ALL of that information. I appreciate you taking time out of your day to help me. I'm going to digest what you have told me (I am feeling a bit overwhelmed by all the information) and start taking some action. One more question - are you familiar with any nutritional deficiencies that cause amenorrhea?
  2. Thank you! This is all a lot of information and I'm feeling a bit overwhelmed but I will digest what you and @knitty kitty have suggested and start on some of the recommended supplements. I'll keep you posted on my progress.
  3. It hasn't made any noticeable difference with my GI symptoms. It's interesting you say that about your fibromyalgia... it was prescribed for my potential refractory celiac but the one benefit I did notice at first, was an improvement in my fibro symptoms. The last few weeks it hasn't been as effective, and I'm starting to return to how I felt before starting...
  4. I want to start by saying how incredibly sorry I am to hear about the loss of your wife. I haven't had a homocysteine test.. what is that? In August my Vitamin D level was 65 ng/ml (with the 12,500 IU supplementation) I recently started steroids for treatment of potential Refractory. I've been taking budesonide for 6 weeks now. I take...
  5. I have taken 2 SIBO tests, both were negative.
  6. I need help from the extremely knowledgeable and helpful vitamin and mineral experts out there. All the information I could think to provide is outlined below but I'll start with posting my questions, so they don't get lost in the long post. My questions Do my symptoms sound like a B vitamin deficiency? Can I have a B vitamin deficiency...
  7. On 8/25 it was 65 ng/ml, compared to 26 back in May, which lead to my dr prescribing a 10k iu daily dose of D3.
  8. Thanks for the suggestion. I do already take 12,500 IU of Vitamin D daily. I still experience allergy symptoms and would like to take something OTC for some relief.
  9. Can anyone recommend allergy medicine that is both gluten free AND dairy free? I've found a few off brands that are labeled gluten free, but they all have lactose in them. I've a very sensitive Celiac + have an extreme intolerance to all dairy. Thanks!
  10. For those that are super sensitive, do you have trusted brands of gluten-free flours and other baking essentials? 👩‍🍳
  11. Thanks for the suggestion! I haven't had dairy in 2 years, it was cut out quickly after going gluten free. I do take digestive enzymes with everything I eat also.
  12. Good morning! If you also react to oats, does that mean you have to treat them the same as gluten? Specifically, do you need to avoid any cross contact with oats (even certified gluten free ones)? I suspected I was reacting to them very early on in my diagnosis and I eliminated them from my diet at that time (2 years ago). I continue to have symptoms...
  13. I know this thread is over a year old, but I'm hoping you're still around. I am curious if the itchy tip of the nose you get happens immediately after your suspected glutening? I've been experiencing the same thing, and I'm trying to see if there is a way to pinpoint what the offending food may be (I don't eat outside of my own home, so I'm looking to identify...
  14. I really appreciate it! With your mention of bright yellow urine, that is something I have been experiencing (without the B vitamin supplements). My recent labs did show higher than normal levels of B12 and Folate. Curious what that could mean?
  15. I cannot thank you enough for all of that information! Would you be able to provide me with some recommendations? For the thiamine, riboflavin & niacin supplements, are there any you can recommend that have high doses, or will I just need to take multiple pills of those daily? I've researched online about the AIP and low histamine diets...
  16. Thanks for your reply! I do take multiple vitamins & supplements. Labs in May showed low vitamin D, so my doctor had me add 5,000/day to what I was already taking. It's been about 6 weeks since I've been on the increased dosage. O.N.E. Multivitamin (pure encapsulations) Calcium: 1,000 mg/day Vitamin D (a total of 9,500 IU/day including...
  17. The restrictive diet is due to celiac + intolerances to dairy, soy, corn, eggs, sucrose & starch. I seem to have some trouble with fructose too.
  18. I’m hoping someone has some insight into something I’m experiencing. I get an itchy nose & sometimes face (from nose to cheek area) after eating nuts. There’s no other food I’ve been able to link it to. The only other time it sometimes happens is when I go outside (not always, only occasionally). I’ve been tested for food & environmental allergies...
  19. I need help navigating my long list of food intolerances. I'm about 20 pounds below a comfortable weight and no matter how much I eat of the foods I can eat, I cannot put weight on. I feel like I'm starving all the time, and my limited diet is not providing me with the carbs or nutrients my body requires. I feel generally unwell and I imagine the lack...
  20. Thank you! My Vitamin D level was low during those May blood tests and my Dr had me start on a 5,000 IU daily supplement.
  21. I am almost 2 years into a strict gluten free diet but my tTg IgA antibody levels continue to be elevated outside of the normal range (they are tested at least every 6 months). I had a follow up endoscopy in January (1.5 years into diagnosis and gluten-free diet) which showed no inflammation and biopsies were all normal. I was told by the GI Dr that the...
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