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scowt1

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  1. icon Scott Adams reacted to a post in a topic: 8 year old - further testing after positive bloods?
  2. scowt1 started following Question about child's results , 8 year old - further testing after positive bloods? and Expectations post-diagnosis for ongoing medical support
  3. scowt1
    I'm sorry your son likely has Celiac Disease and totally understand your concerns about an invasive procedure. We were on the same path last year. My 10-year old daughter was already small and not growing/gaining weight. Her pediatrician ordered blood tests, which came back positive on two measures for Celiac Disease (If she had several indicators, including...
  4. icon knitty kitty reacted to a post in a topic: Expectations post-diagnosis for ongoing medical support
  5. scowt1
    Thank you so much for your thoughts!
  6. scowt1
    Hello there. I am pretty new to this forum and very glad to have found this group! My 10-year-old daughter was just diagnosed with Celiac Disease. We live in a major city and are very fortunate to have options for her ongoing healthcare. There is a well-regarded private hospital with a celiac specialist that we were referred to, but there was a two...
  7. icon Scott Adams reacted to a post in a topic: Question about child's results
  8. scowt1
    Hi. We received the results this morning from the endoscopy (2 days later) and she does have Celiac Disease. Appreciate that we have this forum as a resource! Thank you!
  9. icon scowt1 reacted to a post in a topic: Question about child's results
  10. icon scowt1 reacted to a post in a topic: Question about child's results
  11. scowt1
    Thank you!
  12. scowt1
    Hi Russ - I know you saw Trents repost of mine on this. But it does also remind me that I should ask the parents of the half-siblings today if they were actually tested for celiac or they just received a default diagnosis of “sensitivity”. These siblings live in the US, UK, Canada, Ireland and Australia so the testing and criteria is likely to vary (I now...
  13. scowt1
    Thank you for asking! She was scared yesterday but has put it aside for the moment. I think she’ll get nervous right before. The doctor was very direct and open with her which was good. If you have thoughts on the approach, I’m open. She doesn’t like needles (who does?) but she is not phobic and complies as needed.
  14. scowt1
    I'm glad you agree! Our daughter was also pleased that we would all do it together. So this is what the lab reports says about that test. "The presence of Anti-Smooth Muscle Antibody may cause an interference in the detection of ARA. In some patients with celiac disease, ARA test may be negative. In such cases, repeat testing may yield additional positive...
  15. scowt1
    Hi. The ARA is a Reticulin score looking for Anti-Smooth Music Antibodies, all of which means little to me! What does make sense is what you posit: She may have a non-celiac-gluten-sensitivity or pre-celiac condition and should treat it with a gluten-free diet. I do think a positive biopsy will keep our daughter more compliant, especially as she enters the...
  16. scowt1
    Hi Trents, Thank you so much for your quick reply! I feel like this community is going to be essential and very much appreciated as we navigate our child's likely diagnosis. Our daughter does not have most GI symptoms, except constipation and gas (explanation below) . She has ADHD and Anxiety and is a picky eater who eats lots of carbs and little...
  17. scowt1
    My 10-year old has a (decreasing) low body mass so the doctor gave her a blood test. The GI doctor ordered an endoscopy without even reviewing labs (she said she would after our appointment). I assume she didn't want to discuss test minutia when her experience and protocol for a positive result is a biopsy. This effectively shut down the conversation. She...
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