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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by RDLiberty
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Thank you for this! "Medical" advice, and I use the term loosely, is so rampant and so unproven nowadays (I even have relatives that fall down these rabbit holes and are shocked I don't follow.), so I am skeptical of everything. I appreciate the confirmation of my suspicions that this was more hearsay. Onward with my rice and corn. lol
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So, it's been a while since I posted here and I've been doing fine with my diet. Haven't cheated, have gotten used to being gluten-free, and have even created a series of microwaveable, healthy, low cal dishes that take minutes to make because I don't cook and won't be starting to, ever. That said, many of those dishes incorporate rice and corn, not...
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I've found a few gluten free labeled coffees by searching on Amazon. I haven't decided if I want to go that route or not. I haven't been liking the taste of my regular coffee anyway, so I'm not against switching to a more specific brand and if I do, I'll probably try to find some labeled as gluten free. Coffee is one of those things I won't give up, honestly...
- 6 comments
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- celiac disease
- cross-reaction
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Thank you! My mistake, I misunderstood. Thank you for the clarification!
- 6 comments
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- celiac disease
- cross-reaction
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When it comes to a silent/asymptomatic celiac, what would be the recommendation for cross-reactivity? I can't go by symptom, obviously, and I don't think I have any issues with coffee, dairy, or chocolate, but now I'm paranoid. I'm strict about avoiding gluten but I do not want to give up coffee, it's one of few things I actually enjoy. As long as I don't...
- 6 comments
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- celiac disease
- cross-reaction
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Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
So, little update. I spoke to my hematologist and he isn't concerned. He said if my lymph nodes haven't changed hardly at all in seven months, then that tells him everything is probably okay. He said that I had a lot of work done in my abdominal area, so I should heal from the hysterectomy and talk to him again in a couple months if I have more... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
For me, the hysterectomy was technically elective, I'm childfree and wanted to keep it that way. It just so happens that when they went in to do the surgery, they found out the endometriosis was really bad, so in a way, being childfree and wanting to get sterilized was a saving grace for me. I seem to be healing extremely quickly though. I had the surgery... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Wow. I knew vitamin training was limited in medical training, but I had no idea it was that limited. I'm honestly kind of surprised my endocrinologist is as versed in it as she is, but she's a really good doctor and I think she's gone above and beyond most MDs. It's just been a really long, hard year. Started out with the swollen lymph nodes in June... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
I am more leery toward eating gluten again, simply because I'm out of the habit now and I don't want to get back into it. I don't feel sick on gluten, but I finally stopped missing it and I'd like to keep it that way, which is why I really don't want to go back to it for the sake of tests. I'll have my dr. keep doing the routine blood tests though and continue... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
That's very good to know. It all tracks, really. I've already had thyroid cancer, and had a full thyroid removal last fall. I have just recently gotten my thyroid numbers normalized with proper medication. My diabetes is well managed, had it since I was three. As far a the hoshimoto's goes, I haven't noticed any symptoms from it since the thyroid removal... -
Thank you for this. It feels like once you've been diagnosed with celiac disease, the goal of half the articles out there is scaring you into thinking that even being gluten free isn't good enough and that you have to do all these crazy restrictive diets beyond gluten free. It's really unnerving when so much seems to be based off opinion rather than...
- 26 comments
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- celiac disease
- debunk
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Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Thanks, found of both of these types on Amazon, not a bad price actually, I was pleasantly surprised. You really can find anything online nowadays. Besides coffee, I eat tomato, avocado, dairy, and an occasional soda (pepsi, etc). (I also drink a lot of carbonated water but the kind without sugar or artificial flavorings, just fizzy water with fruit... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
I found this type on Amazon, is this okay? It's gluten free, appears to have everything needed in it. -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Also, from what I can see thru my research, there's really no harm in taking a DAO supplement, even if I don't necessarily need it, it's not going to hurt, so I'm going to look into that as well. As long as it's not going to cause something else, there's certainly no harm in trying it. 👍 -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
I have mentioned this to family, they haven't decided to get tested yet but they know about it. Nobody listens to me in my house. lol That's what the email said. I would confirm for yourself just in case, (I'm kinda OCD about that.), but that's what they told me anyway. I am interested in the DAO supplement because I am going to continue drinking... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Thanks for the info. I think I take Magnesium Citrate but I can't remember. I'll have to check what type it is on the bottle. I live in a shared house with family who still eats gluten, as well as pets eating gluten containing foods, so I'm at high risk for CC. I actually emailed the Gliagin-X company to ask if it was safe for daily use and would continue... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
I didn't know this, thank you so much. I think the next supplement I'll start is a b complex. There's a total of eight different B vitamins, correct? I was taking a b12 supplement for a while, but I struggle to remember because you're not supposed to take it at night (when I take my other supplements), and I can't take it in the morning too close to... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
I am interested in the supplement for DAO. What blood tests would be recommended for deficiencies, etc? My doctor is very thorough, but if there's anything else I should ask her about, I'd like to know regarding simple tests. Might as well, right? -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Thank you, both of you. I honestly do not mind having the swollen nodes as long as I know they are not cancerous. They do not hurt, nor do they effect how I function on a day to day. I just want to make sure they aren't anything 'lethal', which so far, CT scans seem to show they aren't. I just really want to be sure my doctor has run all tests needed... -
Swollen lymph nodes in connection to celiac.
RDLiberty replied to RDLiberty's topic in Related Issues & Disorders
Thank you! I noticed the same thing, all the lymph node info with celiac seemed connected to NHL in the bowels/intestines. I haven't noticed any swollen lymph nodes in my abdomen, plus I just had a hysterectomy two days ago and with that the doctor was all over in my abdomen and he didn't mention anything of concern regarding lymph nodes or intestines. I... -
This is kind of a followup to a thread I posted two days ago. I am kinda just wanting to gather info before contacting my doctor. How many people here have issues with chronically swollen lymph nodes, not tied to any cancerous cause? I have been panicking ever since I read that swollen lymph nodes and having celiac is considered a serious concern...
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Thank you. It's difficult because I'm in a shared gluten/gluten free house, as well as having multiple pets who eat gluten containing kibbles, so it's extremely nervewracking worrying about contamination. I have been taking the Glidian-X supplement with family meals, but I'm considering taking it with every major meal that requires dishes/utensils...
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I have not had an endoscope/biopsy, as I haven't been able to find a dr. I feel is genuinely versed in Celiac. I was planning on speaking to my endocrinologist at my next appointment (Nov), to see if she has any good GI doctors she recommends for her celiac diagnosed patients. I have been at lose ends, really, because I don't know how strict I need to...
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So I've had swollen lymph nodes in my head and neck for years, in fact getting scared about it and having an ultrasound to check them last year is what resulted in discovering I had Hoshimotos & thyroid cancer. The endocrinologist who now monitors my thyroid replacement following surgery is the reason I found out about my celiac, as she ran the blood...
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Coffee confirmations.
RDLiberty replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
Okay, that makes me feel better. I've been struggling to know where to turn. I haven't found any brands that are specifically gluten free, except for some odd brands containing mushrooms of all things. 🤨 Thanks for the help!