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Kurlykaitlyn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kurlykaitlyn

  1. Kurlykaitlyn
    Hello everyone, if anyone here has any information on the brand Spectrum and if they’re products are safe for celiacs, please share. My husband keeps wanting to purchase their oils but they have no label of being gluten free. I saw one website that does gluten testing say these oils are ‘likely gluten free.’ I tried looking on spectrum website and c...
  2. Kurlykaitlyn
    I can only speak for air travel and being the UK. i always pack my own snacks and meal to carry on. I haven’t had problems bringing my own but I have kept it limited. Bars and nuts are great for an extra snack or supplement of calories. i found it to be quite easy to eat in the UK! I traveled a few weeks and did become sick once and that was a risky c...
  3. Kurlykaitlyn
    Thank you for sharing this! Haven’t read it all yet but ive already jumped in and read a few parts. I plan to read more. It’s so true how much the world, US culture anyway, is obsessed with gluten… too bad it can’t just be potatoes. They’re very versatile.
  4. Kurlykaitlyn
    Just the last two days my stool has finally started bulking somewhat. It wasn’t complete liquid today so I’m taking that as healing progress! it’s been hard to go anywhere aside from my home and the house of the family I work for. I take care of their baby a couple days a week. I’ve needed to stay near a bathroom almost constant but that has been im...
  5. Kurlykaitlyn
    Hi there, It’s very common when being diagnosed for celiac as an adult to have silent symptoms. Even though we might have minor symptoms like fatigue, rashes, or digestive issues, it seems as though our bodies can mostly tolerate gluten. I always had my own health struggles growing up that had nothing to do with celiac disease, but I got diagnosed a...
  6. Kurlykaitlyn
    Some of us can be sensitive to NSAIDs. That can be entirely based on personal experience. My stomach isn’t strong enough to handle them, but I’m able to take them for single use needs. Most often they are gluten free, just ensure which ones you take are. Take them with food, even something as small as a banana will help your stomach. If after a few days or ...
  7. Kurlykaitlyn
    Hi all, i need to share the overwhelming emotions I have for living with celiac disease. I got very sick in end of May. My life took a few turns as I needed to quit my job at the time and it took about 8 weeks for me to mostly recover. I’m now back in community college as I’m not ready to work a full time job. I was doing better, finding some balance in ...
  8. Kurlykaitlyn
    I love stories of our main character struggling to be his own hero!! The island setting perks my interest and I like reading about overcoming struggle. I look forward to hearing more!
  9. Kurlykaitlyn
    Hi there, I understand your concerns as I too have felt similarly and struggled to find pain relievers. I’m from California and I don’t know the laws in UK. Honestly, the best thing I’ve found to help me are edibles with cbd, and if you’re comfortable with some thc, the one to one ratio helped me a lot when I broke a bone and when a few years back I had a...
  10. Kurlykaitlyn
    Thank you very much! This is very informative and I’ll go tomorrow to grab the vitamins. I had no idea thiamine was also connected with the gallbladder and helps to produce bile! and I’ll look into those other diets you’ve mentioned to see how I can improve on what I eat. thank you 🙏
  11. Kurlykaitlyn
    I’m eating a variety of vegetables and some fruits, but mostly bananas. I eat 2-4 bananas a day because they’re easy on my stomach and filling. I also eat basmati and brown rice. Nuts and seeds, coconut yogurt, and protein smoothies. ive been taking slippery elm capsules for reflux for a little over a week now. And I have been sucking on ginger chews for...
  12. Kurlykaitlyn
    I’m definitely 100% gluten free at home. I was so healthy in the last few years since being diagnosed. I was in my best health until having an ovarian cyst rupture, causing internal bleeding that has since healed. But I was glutened only a few days after the bleeding. I’m just assuming my immune system was weakened which caused this exposure to put...
  13. Kurlykaitlyn
    Hi Emily, sorry to hear about the insensitivity of your boss. Unfortunately, this is quite common for people like us with an autoimmune disease to be misunderstood, unless the other has an autoimmune disease themselves or knows someone personal. I think it’s a good choice to call the night before, as you had done, and give your boss a heads up on w...
  14. Kurlykaitlyn
    Hi everyone, my doctor doesn’t understand anything about celiac disease. 6 weeks ago I was glutened. I had a minor medical emergency that caused internal bleeding just a few days before the gluten exposure. My immune system was very weak so I got hit way hard by the gluten! im slowly recovering from the damage it caused to my intestine and g...
  15. Kurlykaitlyn
    I’ve been taking tums the last few days and it’s not helping enough with my heartburn and acidic tongue. My doctor ordered Omeprazole but the capsules have gelatin. I can’t have gelatin. i bought OTC Prilosec, name brand delayed Omeprazole and now I’m seeing a lot of people saying it’s not gluten free and some saying that it is. Is it gluten free or n...
  16. Kurlykaitlyn
    First of all, im so sorry to hear about your history. You’re not alone. Many of us with celiac have had life long illnesses or years of issues before diagnosis. My health seemed to deteriorate as I got older as you shared and I learned that gluten was the major culprit when I heard about celiac disease. Like you though, I was aware of how gluten a...
  17. Kurlykaitlyn
    Hello flower fairy, sorry to hear about your results. I’ve had deficiencies in vitamin D and iron, so I can only speak for these supplements I’ve taken. Vitamin D is offered in supplemental sprays. I’ve used a couple different brands and currently use an olive oil based one by Mary Ruth’s. I like it as it’s easy to take and doesn’t cause uncomfortab...
  18. Kurlykaitlyn
    I’m sorry to be posting again but I’m desperate for some answers I can’t get from a doctor. I’m very stressed out and becoming sad. ive been very ill the last month since having an ovarian cyst rupture. The cyst was bleeding and caused my hemoglobin and hemocratit levels to drop. I was in the ER and they kept me until it stopped dropping and they confirm...
  19. Kurlykaitlyn
    Oh honey, first I’m so sorry for the amount of pain and stress you’re experiencing. I believe you and I felt much the same growing up. I wasn’t diagnosed celiac until age 24. I was constantly sick as a child and adolescent. My mother dismissed me and always said I’m fine. I had similar feelings to you so what you’re feeling really is understandable. it ca...
  20. Kurlykaitlyn
    I’m sorry to hear that! I used to become angry at businesses or workers who served me gluten when I was so clear about my needs, but unfortunately many people just don’t know. ☹️Celiac disease is widely misunderstood. I’ve learned it’s very important to keep your own meals and snacks with you at all times, as often as possible. Sometimes the only safe option...
  21. Kurlykaitlyn
    I don’t eat food from airplanes. It’s not worth the risk and so few people are aware of celiac disease and truly understand. when I fly anywhere, I bring what I can in my bag and I’ll look for protein bars and nuts at the airport. Sometimes the options are severely limited. JFK was particularly a horrible airport for anyone with dietary restrictions or fo...
  22. Kurlykaitlyn
    I’m 28 and I was diagnosed four years ago at age 24. i grew up having stomach pains for as long as I can remember. I would eat a few bites of a meal and be done. My parents were divorced. I mostly lived with mom. My dad saw something was wrong because the lack of appetite and excessive gas. He expected my mother to do something about it and she always j...
  23. Kurlykaitlyn
    Hello, I’m asking about millet and if any fellow celiacs out there enjoy it with no issue. I heard from another celiac that their doctor swears millet is not gluten free and absolutely unsafe for celiacs, even when certified gluten-free. This is embedded in my memory and has been preventing me from ever eating millet. Anyone here enjoy m...
  24. Kurlykaitlyn
    Hello again! First, thanks so much for everything you’ve shared! Yesterday was a major turning point for me in regards to healing and getting my health back in balance. I haven’t had dizzy spells the last 48 hours! My body has been able to hold food and so I’ve slowly been increasing the variety of foods and quantity every day. Slowly but surely, and ...
  25. Kurlykaitlyn
    I haven’t heard of these enzymes! Thanks for sharing them as I’m going to look into these. Usually I don’t have such severe reactions but turns out the restaurant has wheat flour in their fries 🙄 I’ve since learned it’s quite common and that dedicated friers aren’t enough of a safe bet for us with celiac disease. I wish the restaurant staff would’ve...
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