Stulos
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Nothing. He said there is no medicine left to try. Just take the Low Dose Naltrexone and stay away from the allergens. He says if it hurts me don't be exposed to it.
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Mast Cell Activation Syndrome is what my immunologist ended up diagnosing me with.
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I do describe it as an allergy. As far as I, and my immunologist, can see it is. She says it's not and I'm mentally ill. Says that right in front of kids and now some of them are saying it. I did have a lawyer I spoke with once say it was considered abuse to make someone sick with an allergen you know they have. I don't know who that person was...
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My insurance there aren't any therapists who do televisits and I can't go somewhere because of the chemical reactions. That's also why there isn't a place for me to go that's safe. I think I did have a genetic celiacs and it was negative.
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I have a pretty bad and serious update. I had to give up on her wiping the car but now she is actively getting together with kids and bringing wheat to the house and inside and it's kept me sick and she's saying I won't clean up anything when I'm sick. Multiple kids are blaming me. They are saying I'm mentally ill and I don't have allergies like that. They...
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Thanks Wheatwacked. That’s really thorough and helpful. I’m going to try that protocol and see what it does. Super appreciated.
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She has been to the doctor with me. Has read the reports. Has read the report from the hematologist trying to get me into the NIH diagnosis program. She was with me when I had my positive chemical tests. She is actually the one who figured out all of this stuff. Including wheat. She used to be all about protecting us from it and was even known for it...
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knitty kitty reacted to a post in a topic:
Desperately need help with wife and my gluten allergy.
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I really appreciate those links. They look helpful. I wouldn't be surprised at all if I have nutrient deficiencies. I'm glad you mentioned that. I do need to get that tested again as soon as possible.
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knitty kitty reacted to a post in a topic:
Desperately need help with wife and my gluten allergy.
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That list you sent is really close to how I eat. The only real differences is I can handle some beans and nuts and sugar doesn't seem to do much to me if I just eat a little of it. That's really close to it though. I eat chicken mostly that is natural, vegetables, fruit, some nuts, I can eat some rice but not a lot. It took forever to figure out what...
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knitty kitty reacted to a post in a topic:
Desperately need help with wife and my gluten allergy.
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I see what you mean about the OCD Trents. Borderline seems to be the monolith thing she thinks. She actually seems to believe that I don't have OCD until I'm exposed. It's really confusing. Borderline is what she filters everything through though. She is always thinking I'm manipulating and controlling and uses the term. She had stopped using it for...
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It's good advice. Thanks for that and the kindness. That's really good to know about eating wheat for the test. I didn't know that. There is no way I could get through that so I guess I can't be tested like that. Which is really ok with me because I know it hurts me either way so I don't need it really. I'm one of those people too. I can't walk...
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I think I should. I've tried but with my insurance nobody here has openings. The OCD doesn't at all. When I don't ingest gluten it dissapears completely. The only way it comes into play is it comes raging back when I am exposed to wheat which is a lot of why I try to avoid it. It's miserable.
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Hi knitty kitty. I actually think you are right after what just happened. I just tried to talk to her one more time and just said "I'm cool with it being there. I just can't clean it up. It's fair to not make me and just wipe it sometimes for 20 seconds. I'm cooperating with everything. That it's cool to have the wheat in the car. She said that...
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I take 20 mg of pepcid and claritin twice a day but I really only need it during allergy seasons because I have outdoor allergies. They manifest weird too. The wheat problem doesn't change with the claritin and pepcid though. Chemicals either. It only helps with the outdoor stuff but since it all feeds each other it helps a lot. I was also on Cromolyn...
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Hi. Thanks for answering. None of my "allergies" fit cleanly it doesn't seem. I have tested chemical allergies but when my immunologist tested celiacs it was negative. He said that doesn't mean it's not happening and just avoid it. I guess it's a trust issue on her end. She thinks I'm manipulating and controlling but I'm not doing that honestly. She...