TrillumHunter
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by TrillumHunter
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Nope, and my serum is well above the recommended level to treat it. When I had a sleep study, I moved my legs 30 times an hour on average. The only thing that quiets them is if I spend the day up and down stairs or a ladder. I would like it to stop, but I have balance issues already, so no neurotin for me.
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Occasionally Feel Like I'm Going To Fall Over?
TrillumHunter replied to amberlynn's topic in Coping with Celiac Disease
You could see and ENT to check for ear related balance issues. I went that route before a neurologist found the b12 deficiency. The test for inner ear is very uncomfortable. They blast your ears with warm and then icy water. They try to make you dizzy. I came very close to puking. Keep trying! It does have a source, I'm sure. -
Occasionally Feel Like I'm Going To Fall Over?
TrillumHunter replied to amberlynn's topic in Coping with Celiac Disease
Have you been test for vitamin deficiencies? I would think b12 in particular. That weird, "I'm not in my body, but it's moving" has a name but I can't ever remember it. It isn't vertigo because you aren't spinning. B12 cured that for me. I'll know what you're talking about. It's a disturbing feeling. -
Low iron does that to me as well. You'll find lots of us with anemia.
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Just had to say--WHAT AN MORON!
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Face Numbness
TrillumHunter replied to whattodo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had numbness in my face and soles of my feet. I also had the electric tingling in my arms. That was how a neurologist figured out I had super low b12. I started on shots and it got much better. I didn't realize how many numb places I had. Unfortunately she didnt figure out I had celiac disease. I had to wait five more years for that. I am hoping... -
Hi, My in-laws buy that stuff at a bulk foods place. I've seen it online from bulk suppliers. Look for popcorn cheese. I've also found it at Wal-Mart in a small can that looks just like the blue box. It is with the canned parmesan cheese. I don't know if they have Cabot cheese in Canada but they make a some called Cheddar Shake. It isn't orange though...
