Carriefaith

Yes they are fine

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Maybe you're reacting to the milk in your cereal. Lactose intoleracne is common in celiacs, try drinking lactaid or lacteeze milk.

You should ask your doctor to get tested for celiac before taking gluten out of your diet. If you have anemia with no blood in the stool (or anywhere else) and if you are injesting enough iron in your diet, then that is a red flag for celic.

I have a friend with celiac whose only symptoms were amemia and fatigue.

In my opinion, Sterk's Sandwich Bread is THE best gluten free bread that I have ever had AND i have tried most of the others including homemade. Sterk's Sandwich Bread is the closest to "real" wheat bread

Sterk's also makes yummy bagels, pizza crusts, hamburger buns, hotdog buns, sponge cakes, and many different flavoured breads.

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That's great news Karen!

final stages of pre-human testing.

This means that in a few years (hopefully if the funding is good for these guys) we will know if there is a cure or a treatment plan for celiac!

I can't vote because I still don't feel better

Karen this is such a great list...

I use the Shake' n Bake barbeque chicken claze and and Spicy BBQ chicken wings glaze on my chicken a lot. MMMMMMMMMMM. I also eat the gluten-free salad dressings and the Jell-O. The gel snacks rock YUM!

Right now I take at least one of these once daily:

Jamieson Mega Cal: High Absorption Calcium: Calcium Magnesium

Jamieson: Vitamin D

Centrum Forte: High Potency Multivitamin

I plan on taking digestive enzymes in the near future.

In the past two days I have had some unfamiliar discomfort. My arms from my elbows to my rists ache badly, my neck aches, the small of my back aches, and my right ankle oddly enough; oh and sometimes my lower stomach area. The ache on my neck follows with a tension across my shoulders....I feel like I was in a fight or worked out waaaay too much...this morning all of it was very stiff and I am scared

My mom has almost all of these symptoms, it was like I was reading soemthing she wrote about herself. She has been to the doctor and had just been tested for lupus, rheumatoid arthritis, celiac disease, and lyme disease. These are all the things HER doctor thought it could be.

My advice: If you absolutely cannot afford to get testing done, and if the gluten-free diet makes you feel better, just stick witht he diet until you can see a doctor.

Jamieson Vitamins are gluten free it says right on the label.

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Good luck

Thanks everyone for your info! This is great... I am thinking about taking enzymes and was wondering which ones to take and if they work.

Thank you

You should get your doctor to look at it to make sure it's not DH (Dermatitis Herpetiformis). DH is asscoiated with celiac disease.

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I was just wondering if anyone takes enzymes to help with digestion and if so which ones? Any help would be greatly appreciated!

Check the soy sauce label for gluten (other than wheat), that could be your problem. Also investigate any new foods or products you may have had/used in the last week for hidden gluten. Like lotions, toothpastes, shampoos, conditioners, suncreens, lip gloss/stick, ect.

If everything seems clear, than maybe get tested for an intolerence to soy...?

Or try a different brand altogther. Maybe your brand IS gluten free but it could be processed in a plant with gluten and got contaminated...?

I use VH soy sauce with no problems and it is gluten free (in Canada at least, not sure about the US or other countries).

Good luck!

wow... lucky celiacs that live in New York! So many options!

Make sure there is no hidden glutens in your pickels like "modified food starch" for example. And also check to see if the vinegar has malt in it.

Malt vinegar = barely = gluten =

As far as I know, all flavours of boost are gluten and lactose free except chocolate malt which is only lactose free. I am unsure if boost or certain kinds of boost are soy free.

Boost also has vitamin D, but only like 25% or so of your daily intake.

I use Imagine products for chicken and Vegetable broth

I think McCormick beef cubes are gluten-free. I believe Mc Cormick is one of the companies that clearly labels gluten on their ingredient lists, please correct me if I am wrong about this. I've used them in recipes before and had no problems and I am super sensitive. To make a broth I put 1 cube in 1 cup of water and microwave for 1 minute or so and voila!

That tube thingy sounds painful

I'm really glad that you are home and doing well though

I wish you a great recovery and hopefully you will be symptom free forever

Best wishes

I take a vitamin D supplement and a multivitamin with vitamin D in it every day. I also drink boost sometimes as well. Vitamin D is not naturally in most foods (it is fortified in milk) and if you don't get much sun it is easy to become deficient.

due to my allergy to the soy in the vitamins I had a problem

with bloating and it caused constant coughing

Maybe ask your pharmacist or doctor for a soy free and gluten free vitamin D supplement, or ask if boost or any other vitamin drinks are soy and gluten free. Or if you're not allergic to dairy just drink tons of milk!

Thanks for your info Linda. I'm trying to get all the stuff I can on pancreas problems and celiac disease.

I tried the Strawberry drink today and it taste okay

I find that chilling boost enhances the taste.

I weigh less than I used to before getting sick with celiac disease. I also eat tons of food and never gain a pound. (Although I have always been that way). It's kind of weird I guess. Maybe Vote4PresBush04 idea is right in that we may have high metabolisms. I'd also check all your products for hidden gluten just in case

Make sure that you inform your doctor that you were gluten free for 3 weeks before the tests. In order to get accurate results, you need to be eating gluten when you get tested so that there are antibodies in your blood. For some people the antibodies can stay in their systems for awhile, but everyone is different... I'm no expert on this subject, maybe someone else could fill in?

I would discuss this with your doctor. Good luck.

Hope you're doing ok and that the surgery went well.

I hope that you are celebrating your 1 year gluten-free anniversary symptom free!

I lost about 5-8 pounds very gradually (1 year) when I first started feeling sick and then I lost an additional 5-8 pounds very suddenly (1 week) when I was at my worst.

My GI Doc said about 20% of Celiacs with have trouble with there pancreas

wow, I didn't realize there were that many celiacs with pancreas problems. I guess it's more common than I thought. I think I may be having problems with my pancreas and I have been doing some research on it. I seem to have a lot of the symptoms of chronic pancreatitis.