Carriefaith

I'm glad they were able to see what was going on in her intestine. I hope that the biopsies will reveal what is truly going on so she can get better. Good luck with the results and keep us posted!

Here are some good links I found. Which give quite a bit of info. I use the Open Original Shared Link site to read ingredients on mediactions quite often (I like doing my own research on things, just in case)

1. Open Original Shared Link

2. Open Original Shared Link

3. Open Original Shared Link

This info from the first link I gave may be one of the resons why the US hasn't FDA approved it:

Manufacturers' Warnings In Clinical States: Dopamine receptor blocking agents elevate prolactin levels; the elevation persists during chronic administration. Tissue culture experiments indicate that approximately one-third of human breast cancers are prolactin dependent in vitro, a factor of potential importance if the prescription of these drugs is contemplated in a patient with previously detected breast cancer. Although disturbances such as galactorrhea, amenorrhea, gynecomastia, and impotence have been reported, the clinical significance of elevated serum prolactin levels is unknown for most patients. An increase in mammary neoplasms has been found in rodents after chronic administration of dopamine receptor blocking agents. Neither clinical studies nor epidemiologic studies conducted to date, however, have shown an association between chronic administration of these drugs and mammary tumorigenesis. The available evidence is considered too limited to be conclusive at this time.

Hope this helps!

-Carrie

If your daughters GI doc is checking for celiac disease he will do biopsies of the small intestine during the scope. A microscopic examination of the biopsies are necessary for the diagnosis of celiac disease (If the villi, which line the small intestine, appear flattened or damaged then they will most likely diagnose celiac disease). The villi may appear damaged by visual examination with the scope camera but it isn't enough to make a diagnosis. Right after my scope my GI doc said something like "it looks suspicious". But I was also partially sedated at the time....

For questions to ask the GI doc.....

-I'd ask if he is doing multiple biopsies of the small intestine (This is important since some parts of the intestine may appear fine while others are damaged).

- If your daughter has a choice (like I did) to be sedated or not, choose sedation for her! Trust me on this one. I had partial sedation for mine. The scope wasn't painful but extremely uncomfortable, and I gagged through most of the procedure. I'm assuming they would give complete sedation to a small child, but you never know.

- I would ask when to expect results and if he could go over them with you.

- I would also ask when you could start a gluten free diet with your daughter (If you want to try it). I asked and I started mine the day of the scope!

I wish your daughter luck on the scope! She'll do fine

-Carrie

Dad's side - Scottish, Irish

Mom's side - Irish, Norwegian, English

I am the only one in my family that has been diagnosed with celiac. My mom is the only other person that has been tested (as far as I know... I have a hudge family, lots of cousins).

I was in a wedding (a bridesmaid) last June and I got along just fine!

I brought my own food to the before-wedding dinner and I snacked on some veggies and fruit after the wedding. I just went with a positive attitude and I didn't regret not being able to eat any of the gluten foods.

I think that you should go and have a good time! If you don't feel comfortable bringing your own food eat before you go.

Something that may help.....

Eat something that you love before you go and while everyone else is eating dream of new gluten-free recipes that you can try and enjoy

Thanks everyone

I guess I was the small percent of people that get to feel the entire process, pain and all. The pain meds didn't work too well! I am feeling a lot better today, a little discomfort but nothing too bad. It sort of feels like I did 200 sit-ups. You know that sore muscle feeling.

Thanks for the links Karen, I'll look into that!

Thanks so much for your replies. I feel better knowing that it's somewhat normal to feel pain for awhile after the test.

My doctor didn't specifically say what he was looking for because I guess the problem could be a number of things. My doctor told one of the nurses that my colon looked ok with no obvious problems (I'm assuming that means it's less likely to be chron's/ulcerative colitis/polyps/diverticulitis, which is great ). He took biopsy's during the colonoscopy and I will have to wait awhile for the results. Other than collagenous colitis, I'm not sure what else they may find in the biopsy's.

I'm not exactly sure what hemp hearts are? I'm assuming they help with energy? That would be wonderful! I need energy!

Thanks again!

-Carrie

I found this question and answer here at this website:

Open Original Shared Link

Do you have any gluten-free products?

Although The Quaker Oats Company of Canada primarily produces products that are grain-based, we do have a few gluten-free products. Most flavours of Quaker

I had my first colonoscopy yesterday. My GI doc wanted to see if there was anything else going on other than celiac disease since I am not improving on the gluten free diet. I may have something in addition to celiac disease. I hope not though!

The colonoscopy was very painful and uncomfortable even though I was all drugged up (I had a sedative, a painkiller, and a drug to help me forget). However, I am still in a lot of pain, it hurts to breath deeply/walk/move. It is a bearable pain just extremely uncomfortable. It feels like my entire colon/large intestine is badly bruised or something. I also feel nauseated.

I know some of you have had colonoscopies and I was just wondering if this is a normal reaction and if anyone else has experienced these symptoms?

Thanks

I found this here Open Original Shared Link

disodium guanylate: This is a flavor enhancer derived from fungal sources.

disodium inosinate: This is a flavor enhancer, which may be non-vegetarian. Its sources are mineral, animal (meat/fish), vegetable, or fungal.

Looks like disodium inosinate could be a problem. Like celiac3270 said, call the company to be sure.

Celiac will cause villi damage and I think that gluten/wheat sensitivity just causes symptoms and not villi damage.

I guess with enterolab, the closest you could get to diagnosing celiac disease would be a positive gene test AND a positive gluten sensitivity test. The only way you can be sure is a by having a positive biopsy.

Celaic or not, your body obviously has an issue with gluten so I'd stay away!

Unfourtunately my fatigue and energy levels are not better after being gluten free for almost 9 months. This could be due to celiac but it's doubtful since I've been on a strict gluten free diet for so long. I'm going in for a colonoscopy tommorrow to see if there is anything else going on (most of my other symptoms have not improved either ). However, I think that the majority of people feel better within a few weeks or months of going gluten free.

Also, I found that gluten gave me "brain fog" or difficulty in concentrating. I don't have that anymore, thankfully.

Even if you don't have celiac disease you may be gluten intolerant or wheat intolerant. You can get a blood test that checks for wheat intolerance. I think the diet is worth a try. Also have you been checked for crohn's disease?

Joint pain was and still is a problem for me (however, the pain is less often now after going gluten free). Before going gluten-free, I had pain in both knees, my hip, and sometimes my ankles. Now I just experience some knee pain once in awhile.

Try taking daily calcium and vitamin D supplements. These may help.....

I had fatigue as a symptom before going gluten free and I wasn't anemic.

  Quote

I sleep for 8 hours most nights but wake up feeling like I haven't slept. Also, when I exercise for an hour at 50% max heart rate (relativily a low effort) I feel like death afterwards. In addition to all this I can't see to think straight or keep my mind focused.

Celiac is definatley a possibility for you. Not everyone gets ALL of the symptoms. Some people will only get fatigue and lack of enerey without the GI problems. And some people will have no symptoms at all and still have intestinal damage.

Hope this helps.

Tinkyada is the best gluten-free pasta I've had yet. It tastes the same to me as gluten pasta. Yum!

OhNoes! - thanks!

I am also lactose intolerant (or casein intolerant). I just know I don't tolerate dairy very well! I am also wondering though if I have any other allergies or intolerances. I'm thinking of elimanating other foods to find out. I know it will be hard but I'm desparate to get better! I'm going to wait until after my colonosopy results and then I'll decide if I'm going to do the elimination diet.

Thanks for the advice!

I had some of my nutrient/vitamin levels checked two weeks ago and they were all excellent except calcium which was just ok. I take vitamins every day so I think this helped some. I am super paranoid about gluten getting in my system so I check everything (meds, vitamins, lip gloss ect). I'm like 99% sure I'm gluten free.

I don't know what's wrong........I wish I did though!

I agree, I refuse to eat at fast foods restaurants anymore. Contamination is very likely. I might order a pop but that's it.

Hey everyone,

I've now been 8 and a half months gluten-free and I'm still having problems. I've stopped taking the meds becuase they are not working anymore

My energy levels are still very low (I haven't excerized since September becasue I just don't have the energy) and I continue to have all of the GI problems and some additional problems as well

I am having a colonoscopy next week to see what's going on...... I'll keep you posted. I won't find out the results until December 13th or 14th or something.

Hopefully everything will be ok. I just want to get better

Breakfast examples:

- banana

- pear

- gluten-free waffles

- gluten-free buns or bread

Lunch examples:

- gluten-free rice pasta with gluten-free tomato sauce

- leftovers from dinner!

- salad

- carrots

- rice cakes and peanut butter

Dinner examples YUM!:

- gluten-free curry

- gluten-free shake-in-bake chicken with potatoes+carrots

- steak/fish/turkey/roast beef/chicken with potatoes, carrotes, + mixed veggies

- veggie and rice casserole

- stir fry (veggies, meat, sauce, and rice)

- soup

- chili

- gluten-free hamburgers with corn on the cob

Snack examples:

- cashews

- popcorn

- corn chips and gluten-free salsa

- fruit to go bars

- carrots

- oven baked fries

You could make dinner for your date at home. I do this all the time! That way you will know for sure that you won't get sick!

I know celiac symptoms are embarassing to talk about, especially for those of us that get the nasty GI symptoms. But if you find it hard all you have to say is, "if I eat that I will get sick and it will damage my intestines". Most people are happy with that explaination and if they want to know more it shows they care, which is a good thing!

I went to a thankgiving dinner where the gluten stuffing was cooked inside the turkey and I didn't eat it. It's too risky. I just brought my own leftovers. It may seem insulting to some but at least you know you're safe!

That's all that matters

It was a year ago when I finally realized that there was something seriously wrong with me. I couldn't keep anything in my system for about 3 or 4 days. Everything instantly came out. I thought I might be getting dehydrated or something. It was on a weeked so I went to outpatients and got referred to my GI specialist. Four months later I had got diagnosed with celiac.