
Carriefaith
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Be careful of the outbak in Kitchener, Ontario. I ate there last week and I got very sick. I ordered from their gluten free menu too.
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burdee,
Thanks for your input. My GI doctor thought that after 4 months on the gluten free diet that I should be feeling better but I wasn't really feeling any better at all. I was still very sick. It was very dissapointing to try so hard on a gluten-free diet and see hardly any results. I thought I was doing something wrong.
Maybe my intestines needed more time to heal? I don't know. I know there was damage to my intestines because I had a postive biopsy. But maybe the damage was quite extensive and my intestines just need a longer healing time.
It seems like a lot of people on this board are still very sick after months of being gluten free so maybe certain people need a longer time to heal before they feel better.
I am still not 100% but I feel much better on the medication. The medication seems to control "things" to a certain degree. It makes life a lot easier.
I can't tolerate any dairy even with lactaid, so maybe I am casein intolerant. I refuse to go near any dairy products because of the reactions I get.
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I used to think that practically everything I ate was contaminated with gluten because I was getting reactions to almost everything I ate. After 4 months into the gluten-free diet I wasn't getting much better.
My GI doctor said that everything I ate could not be contaminated with gluten.
Turns out I have both Celiac Diease and irritable bowel syndrome (IBS) (I am also lactose intolerant). My GI doctor told me that the celiac disease probably brought on the IBS.
I am now on a medication (Modulon) for IBS and am feeling a lot better and I don't get sick all the time.
Hope this helps!
-Carrie
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At home I do a lot of things to prevent cross-contamination from gluten. I am very sensitive so I have to be extra careful. Here are some things that I do at home to avoid cross contamination.
1. Wipe down counter tops well before preparing food.
2. Check "clean" utensils, plates, and cookware for crumbs before using and wash again if necessary.
3. Buy new cookware if old cookware if scratched. If old cookware must be used just be very careful.
4. Use a separate toaster/toaster oven
5. Use separate deep fryer
6. Use separate butter/peanut butter/jam and label as Gluten-free if people can't remember.
7. Be careful when using the BBQ
Hope this helps!
-Carrie
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If a celiac pill came out I would probably only use it to avoid cross-contamination when eating out or when eating at other people's houses. I don't know if I would trust it to use all the time. In order to convince me to use it all the time, I'd have to see good scientific results and scientific studies that prove that it works and does not allow any intestinal damage.
I would pay up to 75/year to use only when eating out, which would be about 2-3x a month if I had the pill.
-Carrie
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I have sleep problems but I think it might be because of the medication my GI doctor has me on to help prevent my permenant diarrhea.
I almost always feel like I took a handful of those non-drowsy over-the-counter medications that you can get for sinus problems, flu, colds......
I am so wide a wake at night I find it very hard to get a good nights sleep
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-Carrie
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I had joint pain in my knees and hips before my diagnosis in March 2004 and up to about 2.5 months after being gluten free. I haven't had anymore knee/hip pain in the last month or so. I guess it takes awhile for the body to heal.
-Carrie
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I was just wondering how common other food allergies/intolerances are among other Celiacs.
Thanks for any replies!
-Carrie
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I had the same problem for awhile. I used to have lots of hair come out (More than normal) I thought I may have bald spots if it kept up.
Once I went gluten-free it stpped falling out so much. Thankfully!
-Carrie
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What are your 3 favourite desserts?
blueberry pie
cheesecake
strawberry creps
What are your 3 least favourite desserts?
pumpkin pie
heavy chocolate desserts
rice pudding
How many other people do you live with?
1
How many other people do you most regularly eat with?
anywhere from 0-4 depending on the day
What meals do you prefer?
Home cooking
How much do you feel is a reasonable price to pay (per portion) for a dessert?
I'm from Canada so I guess around 4-5$ American.
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I think that this is a very good question.
I react to the smallest traces of gluten and I will be sick for at least a day.
My concern is also about cross contamination for example,
Some flavors of lays chips are gluten free but there is a risk of cross contamination. If I eat the gluten free lays chips I get sick from the cross contamination, but if someone else with celiac disease also eats the same chips and doesn't get a reaction does that mean that they get damage to the intestines even though they didn't get a reaction?
So the question is,
If some celiacs are reacting to the "gluten free" lays chips does that mean that every celiac that eats them is getting intestinal damage by eating them?
- Carrie
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Karen, I have celiac disease and I am also dairy intolerant. After 4 months of being on the gluten free diet I was still having "permenant " diarrhea. Nothing seemed to want to stay in my system for a long period of time. Sometimes the food I ate was almost instantly out. It was awful.
I was weak, tired, annoyed, underweight, and very frustrated.
I went back to my GI specialist and he said I should be 100% dairy free and 100%gluten free of coarse. Then he suggested that I may also have IBS (Irritable bowel syndrome) in addition to Celiac Disease. (Oh joy).
He started me on a medication called Modulon and it has worked wonders! I actually had almost a week of no diarrhea!
I have learned the hard way that the drug doesn't work well if you have a gluten accident.
But as long as there was no gluten in me I was fine and felt wonderful, better that I had in months!
Just thought you'd be interested
-Carrie
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I get sick after I walk through fields containing grains that celiacs cannot have. I must injest/inhale some of the plant or something without noticing. Once I was so sick I could barely stand up. I have to walk though these fields once in a while for my work. (I can't exactley hold my breath beacuse I have to walk quite a distance and the plants are sometimes taller or the same size as me).
I was just wondering if anyone else has reacted to walking thorugh wheat/oats/barely/rye fields and what you do to avoid getting sick?
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I can't see why not unless you're anemic or have some other nutrient absorption problems.
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I've always been thin but when I got really sick with celiac disease I lost 10-15 pounds (depending on the day) and I can't gain it back. People frequently comment on how I look too thin. It's really annoying.
I want to gain weight but I can't.
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This website says they are
Open Original Shared Link
but when I eat them I get sick
I am super sensitive to gluten so it's probably cross contamination or something (like the whole lays issue). I'd be careful.
-Carrie
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Hey, I am 23 years old and from Canada. I was diagnosed this past winter (2004) with a combined biopsy and blood test. I have been on the gluten free diet since the day of the biopsy! I am also lactose/dairy intolerant and have also been trying to be on a dairy free diet as well.
-Carrie
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I defininately reacted to the Neutrogena Sunblock Lotion, SPF 45. I know that I've reacted to it before but I've blamed it on other things. I didn't relize that the small amount of suncreen that I got into my mouth could cause such a reaction but it did! Has anyone else reacted to this sunscreen?
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I did some research and the Neutrogena Sunblock Lotion, SPF 45 has Oat Extract. I used it and I think I am currently reacting to it. Just a warning. This is where I got my info.
Open Original Shared Link
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I've been on the diet for about 4 months. The only thing that has improved is that I have more energy...... but everything else hasn't changed one bit.
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Thanks for the info on Minute Maid raeofsun.....
I guess we can't trust anything by them but their 100% juices (Or until the end of the year, when they know more about their products).
-Carrie
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I was at Swiss Chalet the other day and they had a celiac, gluten free menu! I actually got to keep the menu! It was great!
Swiss Chalet is the only restaurant that I know that has a gluten-free menu in Canada (Other than the fast food chains like Wendy's, Burger King, and MacDonald's)
Has anyone else been to restaurants in Canada that offer gluten-free menus?
Thanks!
-Carrie
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That's odd...
That Heniz gluten-free list doesn't match up with this list:
Open Original Shared Link
which was updated in February 2004
I'm just worried because I eat some of the products on this list that aren't on the list that they gave you.
Heinz
GLUTEN FREE PRODUCT LIST
Bean Products
Original beans in tomato sauce
Original beans with pork & molasses
Deep-browned beans in tomato sauce
Deep-browned beans with pork in tomato sauce
Deep-browned beans with pork and molasses
Bar-B-Q style beans
Chili style beans
Maple style beans
Light red kidney beans
Dark red kidney beans
Chili style red kidney beans
Condiments
Western Grill Barbecue sauce: Garlic
Western Grill Barbecue Sauce: Honey and Garlic
Western Grill Barbecue Sauce: Mesquite Smoke
Western Grill Barbecue Sauce: Original
Western Grill Barbecue Sauce: Chicken and Rib
Diana's Marinade: Lemon Pepper
Diana's Marinade: Steak Spice
Diana's Marinade: Teriyaki
Tartar Sauce
Vegetable Salad
Seafood Sauce
Pure apple cider vinegar
Pure white vinegar
Yellow mustard
Sweet relish
Tomato Products
Tomato ketchup
Ketchup kickers: Hot & Spicy
Ketchup kickers: Roasted Garlic
Ketchup kickers: Sweet Basil & Oregano
Organic Tomato Ketchup
Tomato Juice
Tomato paste
Tomato pur
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Hi,
I have Celiac Disease and have been on the gluten-free diet since March (That's when I found out).
Yesterday I got really sick and the only thing different I had was lemonade (I know it wasn't anything else I had because I have been eating the other foods with no problem for awhile now).
Anyway, I came across this website:
Open Original Shared Link
and if you scroll down to the lemonade, it says that it has wheat in it..........
I was just wondering if anyone else has had bad reactions to lemonade and does Minute Maid actually have wheat in their lemonade?
I've heard recently that Coke/ Minute Maid no longer says that all their products are gluten free but I have no confirmation on this.... Does anyone know anymore details?
Thanks
-Carrie
Kraft Gluten Free And Lactose Free Product List
in Gluten-Free Foods, Products, Shopping & Medications
Posted
I was doing some research today and I came across this Kraft gluten-free and lactose free product list. I thought it was great so I thought I'd share it with you guys!
Open Original Shared Link
If the above link doesn't work click on this link and scroll down to the bottom where it says: Kraft Canada has a 16-page pdf file listing all their gluten-free products (as well as lactose free and kosher)
Open Original Shared Link
- Carrie