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newtonfree

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by newtonfree

  1. newtonfree
    Happy to help. The reason they say not to take calcium together with iron is that calcium inhibits iron absorption. So it's not specifically dangerous to take the calcium with food containing iron, as long as you understand that the iron in that food will not be properly absorbed. So, if you were relying on that food to meet your daily iron requirement...
  2. newtonfree
    Knitty kitty is right on the money. Calcium and magnesium are a balancing act and most people get too little of both. Magnesium bisglycinate, sometimes just labeled "glycinate" (same molecule) is much more easily absorbed than the inorganic forms like magnesium oxide and I recommend bisglycinate to nearly everyone, celiac or not. As KK already said,...
  3. newtonfree
    There are a few issues in your original post that should probably be addressed separately. Casein is a milk protein, so right off the bat, that product certainly isn't vegan if that's your concern. There is also some evidence of cross-reactivity between casein and gluten in terms of the antibodies we form as celiacs. Personally, I challenged dairy...
  4. newtonfree
    The most serious adverse effects of thiamine are usually seen with parenteral (IV) forms that we commonly administer to patients such as alcoholics. There's debate as to whether it was a direct effect or a result of older vehicles or contaminants (we used to use premixed solutions of the various things we needed to give alcoholics, called "banana bags" after...
  5. newtonfree
    Correct, NSAIDs independently can cause NSAID-induced enteropathy like I mentioned above. But it's early days in terms of understanding it. And we will preferably use clinical data when we can get it, rather than making assumptions based on first principles. In the case of the first study we talked about, it was very interesting to me that NSAID use was such...
  6. newtonfree
    No, that is not at all the conclusion supported by the data. This is why I laid out my analysis above. The odds ratio for PPI, NSAID and SSRI use were each on the order of 1.5-1.7, meaning those groups were about 50%-70% more likely to have unhealed villi (though saying even that much is a stretch, since the 95% confidence interval dipped as low as ...
  7. newtonfree
    A few quick notes on why that study makes me think, "I'd like to learn more," but not, "this is worth hanging my hat on." 1) Multivariate analysis is tremendously opaque and therefore difficult to audit for errors and biases. It's good for pointing us in a direction that may be worth examining, but is several steps of abstraction away from the kind of...
  8. newtonfree
    Trents is actually correct that chronic NSAID use can damage villi, and it's not a "one in a million" chance or anything like that. We call it NSAID-induced enteropathy, and it has only recently come to our collective attention just how common and serious it may be. There have been some preliminary studies, like one that found signs of small bowel injury...
  9. newtonfree
    I have read some direct testing reports of Tylenol and Advil products that did not detect any gluten. If you are reacting to medications, it may be independent of gluten - people can have sensitivities and allergies to the dyes and other ingredients used in medications. Seeing an allergist about this would be a high priority in my opinion. The...
  10. newtonfree
    A good point (also, thanks for not pointing out my typo in the paragraph you quoted - I should have said "one non-gluten food" rather than "non-wheat" since, of course, rye and barley at not wheat but certainly contain gluten!). And yes, oats are in the same subfamily as barley, rye and wheat, but chimpanzees and gorillas are all in the same subfamily...
  11. newtonfree
    As a doctor, I agree with most of what you say here. In the case of my own symptoms, I've been thinking along the lines of OAS and true food allergies, since my symptoms are of the classic allergic constellation. But the one thing I disagree with in this post is the statement, "At this time, there is no scientific basis for eliminating non-gluten foods...
  12. newtonfree
    Be wary of the "a little information is a dangerous thing" phenomenon. As has been pointed out, bananas are I) high histamine, II) capable of causing direct food allergy, and III) capable of cross-reacting in oral allergy syndrome. Trusting a random Google hit that mentions lectins as "the answer" could blind you to the alternative answers that may be...
  13. newtonfree
    All solid advice. I do generally treat everything I have to eliminate right now as "eliminated...for now" with the hope that, as I heal, they may return (because I know for certain that at least some of them should return, in some form and/or quantity). But you're right that it's like a hurricane, and I'm in the cleanup and rebuilding process. My...
  14. newtonfree
    Interesting, the bananas were always raw but the plantains were cooked and still produced exactly the same symptoms despite my intense wishes that they wouldn't. Maybe it's not OAS, then. The symptoms seemed consistent with it, but the cooked plantains were exactly as bad as the fresh bananas.
  15. newtonfree
    Flippin' heck. The tongue itching/burning and throat symptoms are very similar to what I get, and I also had a mini flare of my DH recently, around the same time as the OAS type symptoms. I basically pared my diet down to a low FODMAP AIP diet recently in order to try to settle everything down, as I'm recently diagnosed and haven't been gluten-free terribly...
  16. newtonfree
    I just started reacting to bananas - strongly - this past week. Was eating 1-2 a day for months on end before that. For me, the symptoms were scratchy throat, painfully swollen tastebuds, postnasal drip, acid reflux, and upset stomach. Did several tests of withdrawing and reintroducing them while changing nothing else, and it's clearly the bananas...
  17. newtonfree
    That's an interesting point. Also, I live in Canada - so I have no idea what regulations a package of pure psyllium husk falls under. Considering the fact that you find psyllium-based products like Metamucil in pharmacies and not in the "baking" section of the grocery store here has me wondering if psyllium isn't even subject to food regulations here...
  18. newtonfree
    Don't be too frustrated - it was a question, not a statement about what they "should" have done. Depending on their differential diagnosis (the list of conditions they suspect it could be), sometimes a biopsy is contraindicated - the location on the body, pain level, difficulty healing, risk of infection, etc for certain skin conditions in certain spots can...
  19. newtonfree
    Did you have bloodwork done, like anti-tTG and/or genetic testing? No single test for celiac disease is definitive - every test has a given false negative and false positive rate. Diagnosis typically involves multiple tests in order to be certain. The more tests are positive or negative, the more confident you and your doctor can be that the diagnosis...
  20. newtonfree
    Well, that certainly tracks with my experience. Thanks. Hadn't thought of histamine specifically.
  21. newtonfree
    1000-1200 calories is definitely too low for most 130lb adults to feel well on. That's actually the medical definition of a low-calorie diet (<1200 calories), which is something typically prescribed to morbidly obese patients (meaning obese patients with obesity-related health consequences like high blood pressure, type II diabetes, sleep apnea, etc) to...
  22. newtonfree
    During my journey toward my diagnosis with celiac disease, I stumbled upon psyllium husk fiber as an IBS treatment due to a study that found significant improvement in IBS symptoms on a high-dose regimen (with high enough water intake to go along with it). I started taking 3 tablespoons daily, split up into two doses, with 750 mL of water each time,...
  23. newtonfree
    Have you been tested for celiac disease itself? Anti-tTG, gastroscopy with duodenal biopsy, things like that? Dietary wheat allergy and celiac disease are very different, but both respond of coursr to a GFD. Has a dermatologist taken a look at your rash? I'm one of those lucky celiacs with DH, and I certainly think you need to have your rash looked...
  24. newtonfree
    Recommendations vary a bit depending on which country you're in and therefore which governing body or expert association your doctors turns to for guidance. For example, the (American) Celiac Disease Foundation recommends an anti-tTG at 3-6 months post-diagnosis, 12 months post-diagnosis, and then annually thereafter. The Canadian Celiac Association...
  25. newtonfree
    Be careful with the Haagen Dazs. As a recently-diagnosed celiac, you might not realize which foods you're cross-reacting with. I'm much more recently-diagnosed than you, but am already aware of two of my own cross-reactions since I had been on an elimination diet with continual food challenges over the last year or so. Dairy is an issue for many celiacs...
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