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frankenstein

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  1. Just to close the loop here, a genetic test confirmed that this is not celiac. Wishing all good health.
  2. Thanks. Helpful information. So much of my stuff seems to not fit the celiac experience I dunno.
  3. Sorry no I mean outside of a testing scenario. If a person with celiac eats gluten, how long after eating do you feel worse from it?
  4. Understood. Just to note though I really really don't have much gluten. Like especially when in low FODMAP it's been no gluten. My current take is the fodmaps are making me feel crummy since there's not much I'm eliminating diet wise I haven't been already. And I nearly always make my food. If one feels bad from gluten before going gluten free, how many...
  5. Thanks. This is a bit overwhelming. I don't think I have it. I'll continue to eat gluten free for some time and see how I feel. Currently it makes me feel worse so we'll see. I wish for the bloodwork done this year that I had been told to eat gluten for six weeks before since my diet was different this year because of my issues to see if the thing in 201...
  6. Thanks I think I get what you mean. FODMAP initially provided me relief when i did it last year with different symptoms. This time around, when I went back on it, it is not doing much. I guess I'll do the genetic one. If I understand correctly about "total IGA test ", you are saying by doing it, it can show me if i have the rare condition, which would...
  7. Hi please see post 1 for what i had done in 2018 through LabCorp. That was the one that had the weak positive. Sorry I don't know all these terms so I am just writing down what the paper says. In Post 22 i am quoting Scott's advice as i am confused about it. Post 22 isnt talking about myself.
  8. Hi Scott. I am confused. You first said "Get a total IGA test done--you can do this while on any diet". Then you said "I'm not really sure how helpful doing a new total IGA test would be at this point." Can you clarify?
  9. Thank you. I can. I appreciate the offer to help. I am carrying being burned badly by people who led me in the wrong direction before. I took some herbal supplements in April that gave me immediate malaise, I had a month where I had to force myself to eat through pain, I lost 10-15 lbs in a month, and since April pain has been a frequent factor. My gut was...
  10. It's not stomach located type symptoms so it does not seem like that
  11. It is rabbit holes to go down the route of even if the lab work won't spot it. And it's outrageous for the other forum writer here to say you have constipation so that certainly means you have these super rare deficiencies. I was hoping this forum would be different than what it is. Again we are not meant to chat here and I wish us all good health.
  12. You quote it to Buddha on your profile. My we are not meant to chat with a cordial farewell. Your response was not.
  13. You... you do realize your quote here that you attribute to Buddha is not actually a Buddha quote?
  14. Hello. What are your credentials? Constipation can happen due to hundreds of issues. You seem to have quite a focus over the years on thiamine. What I described is not gastroparesis. I do not lack magnesium and B vitamins. Thiamine deficiency is rare in the US, even in those with celiac. I wish you all a good day. We are not meant to chat.
  15. Currently constipatory or just like not everything coming out as it used to, a mix of burning pain and intense discomfort, severe tightness with no way to relieve it, energy draining discomfort, cramping some of the time, and occasionally the pain is so bad it feels like someone wringing the intestines like a towel. Often feeling like everything's is just...
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