Irishgirl5

Thank you for your reply. I was also confused at the paediatric's original concern at 13.3 being elevated yet it is under 19 CU. He referred my son to gastro because of his tummy pain/constipation/diarrhoea symptoms. I was under the impression that the blood test would be repeated by the gastroenterologist to re-check his levels. Obviously they are...

It's been a while since I last posted on here but I thought I'd give a brief update ... My son had his appointment with the paediatric gastroenterologist. The consultant said my son is not celiac based on his blood test he had done last August (Tissu transglutaminase IgA lev - (PBK) - Normal. 13.3. CU. <19.90CU). She gave my son a choice as to whether...

Thank you for your reply and insight. I will see if I can scan a copy of my Son’s full blood results. He had an abdominal ultrasound yesterday to rule out other causes of tummy pain and the results are all clear. His kidney, liver, spleen, tummy, lungs all seem fine. This is great news of course but still no answers….. Interestingly the sonographer com...

I phoned my GP for the results of my son’s second test that was done in August and they don’t have a copy of the results because it was the hospital that requested the test not my GP Apparently they run two separate systems which is inconvenient. My son has an abdomen ultrasound tomorrow afternoon - I’ll see if they have a copy of the blood results while...

Ok thank you for the information.

I only have the details for the first blood test which was done in May. I will ask my GP for details of the second blood test. Here goes: Tissu transglutaminase IgA lev - (PBK) - Normal. 13.3. CU. <19.90CU IgA - (PBK) - Normal. 1.11. g/L. 0.80 - 3.00g/L All seems in the normal range. The consultant is referring my son to the...

Your advice makes sense. Gluten has to be present in the body for the test to detect it. It's frustrating having to wait until December for another blood test but I am aware this is to give the iron supplement time to do it's job. That's interesting about a possible intolerance to dairy. I guess I could try lactose free milk in the meantime to see if...

Hello, I’m new here and hoping for some advice! My 8 year old son has been tested twice for celiac disease. Both results showed an elevated TTG but not 10x above baseline. His first TTG was 13.2 and the second 12.8. I’m a bit confused because his results needed to between 0-19 which his is but his consultant has referred him to see a gastroenterologist (ap...