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Monette Bebow-Reinhard

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Monette Bebow-Reinhard

  1. I had two iron infusions a week apart, was told you don't get just one. The problem is in how long you went before diagnosis. I know I was misdiagnosed by one doctor but changed clinics, where I found relief. I think COVID did this to me. I don't know what that rating means, but all of this needs to be discussed with your doctor. I hear you about alcohol...
  2. People keep telling me to go to Costco. I'm not a member and there isnt one near me. I have a nice cooperative that i joined, though. Thanks
  3. Thanks Scott, I don't think I am very sensitive. It's just frustrating when you don't see gluten-free on stuff and maybe it's okay but maybe it's not. I found out most beef jerky is NOT gluten-free and I'm traveling next week. Fortunately I found enough travel foods that are, because chances are good I won't be able to eat breakfast in the motel. I now also...
  4. I've got the Planter's Chili Lime nuts and today I was feeling great until after consuming some. Here's the ingredients: NATURAL FLAVOR Ingredients: Peanuts, Contains 2% or less of Peanut Oil, Sodium Diacetate, Sea Salt, Sugar, Dried Chili Peppers, Citric Acid, Spice, Canola Oil, Yeast Extract, Gum Arabic, Modified Cornstarch, Corn Maltodextrin, Torula Yeast...
  5. Oh, thank you! I know my friend is paranoid about every little thing, but I don't plan to be unless I find I'm that sensitive, too.
  6. I thought it was anything on or near the mouth. If I'm careful, I should be able to continue using what I have. Just don't let it run in my mouth, right? I'm really not in favor of throwing all this shampoo away.
  7. I appreciate your concern, Raquel - everyone here has been great, and just what I need!
  8. I'd like to avoid constipation, though. I'll see what the blood test shows on Friday. I do agree these other suggestions I just printed make sense.
  9. Additional? As the One a Day supposedly has 100%. Wait, let me check. Yup. Plus I'm eating more beef now, I was pretty much avoiding it. Can't eat pork - won't eat pork. I'll see what Doc says after my blood test on Friday. Thanks, you've been so helpful!
  10. Oh, that's good to hear, Scott, as that's what I'm taking and I wasn't about to toss them! (grin) But the original comment was that even when I take one, and feel less tired for a while, it doesn't seem to last the full 24 hours.
  11. Thanks I'll print those recommendations for my next visit to the drug store. And since I don't know how long I've been gluten intolerant, as the doc says, another day can't hurt. I'll take my chances. Not made of money, and honestly, since I was hoping to be diagnosed with anything BUT this, I'll take my chances on small amounts for another day or two.
  12. Has anyone tried using GliadinX when dining out? Just in case? I headed out of state for work next week and I worry about this. I have a very active lifestyle and can't be pinned to my own kitchen counter.
  13. Thank, Trents. I agree, it's so very difficult. I am taking a one-a-day but it seems to wear off by mid-morning next day. Should I up that to two a day? I wasn't sure that would be recommended. I know Doc didn't say anything. I've had two iron infusions. Getting blood tested again on Friday. But I'm not going truly gluten free until I eat the crap I've already...
  14. Yeah, I thought that sounded wrong too. And I had the endoscopy last Friday, but I had to ask what he saw in my haital hernia that a different doctor diagnosed me having back in 2001 and he says I don't have that. Ah ... what? No GERD? No acid reflux? Well, okay, I'll go off that diet then. I know, sometimes nothing they say feels right. But what else...
  15. I was diagnosed with a low functioning gall bladder long before this, first having symptoms with pain in that area over a decade ago. I suppose it's possible I was already being affected by celiacs, but doubtful. I'm told Celiacs is genetic, and likely my mother had it and died from malnutrition. I'll never know. But I know my grandmother had GERD, which...
  16. Really? So I guess maybe undiagnosed celiacs could cause other issues? I stopped the PPI when I heard it could cause malabsorption of nutrients. Then he put me on Sulfracate which is horrible to take. So then you have two diets? For GERD I can't have sparkling water, which I love, spicy foods, beans, broccoli (that's killing me), and even apples at the wrong...
  17. Anyone here juggling more than one chronic condition? I've recently added Celiacs disease to my diets for gall bladder disease and GERD. How does one live like this? I don't see the need to toss pans - I'm just going to clean them with vinegar and baking soda. It's not like I don't wash them. I am sooooo struggling with this.
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