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Jujuconnor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jujuconnor

  1. Jujuconnor
    ❤️
  2. Jujuconnor
    Thank you…will do!
  3. Jujuconnor
    Oh I truly appreciate this….and we did go this route. My body cannot handle the magnesium. We tried and tried…….we even did IV magnesium….i go for my monthly checkup with the lung team in 2 weeks, I shall bring this up..
  4. Jujuconnor
  5. Jujuconnor
    I hope I’m doing this right…. This response is meant to go to kitty, I wish these would say where they are posting before they go……..
  6. Jujuconnor
    I can, however need to be careful because of the potassium and kidney disease, don’t forget no dairy…it’s not fun being me….I appreciate all the help…I really do. I’m going to look into kitty’s website as I’ve been having a lot of brain fog……it’s been scary I have problems with this website, I cannot figure out how to go to a specific “page” or a ...
  7. Jujuconnor
    Way too complicated for someone with ADHD to understand, but I get the point. One thing I don’t mention often is my donor had syphilis and hepatitis B. The doctors said legally they had to tell us that, but it doesn’t go into the lungs. So I’ve been scared to death about both of those things. I can’t spell or speak anymore…my brain just doesn’t work ri...
  8. Jujuconnor
    I can, however need to be careful because of the potassium and kidney disease, don’t forget no dairy…it’s not fun being me….I appreciate all the help…I really do. I’m going to look into kitty’s website as I’ve been having a lot of brain fog……it’s been scary I have problems with this website, I cannot figure out how to go to a specific “page” or a ...
  9. Jujuconnor
    I do have some good days…..on those days I’ll eat a healthy dinner…I’m also lactose intolerant….🤦‍♀️🤦‍♀️🤦‍♀️
  10. Jujuconnor
    Not much….at all. I’m malnutritioned I’m sure. My hair on arms are very long, when I used to have none. Stomach is bloated…can’t loose weight. Pain on right side now instead of left, it never ends……now I can’t even eat rice cake’s because they get caught in my throat. I have tracheal stenosis and esophagus problems from the lung transplant and life support ...
  11. Jujuconnor
    I need to delete this topic as the runs have returned….
  12. Jujuconnor
    My doctor thinks it may be the anti rejection medication, there is no alternative….I stopped only the Imodium. Stools not totally normal, but a lot better. My body still recovering…..
  13. Jujuconnor
    After a difficult lung transplant, celiac disease being one of many problems as well as diarrhea (I’m going to say the runs) for the past year during my recovery. last week I became so bloated and sick of taking the Imodium that I just stopped. I was taking 8 a day, for a year. Total runs for a year. Doctors at Mayo Clinic said constipation can c...
  14. Jujuconnor
    Have RA, osteoarthritis, degenerative arthritis and kidney disease.
  15. Jujuconnor
    Yes, on vitamin D 1000 mg. Yes I have hashimotos. I think the runs are from the anti rejection medications from the lung transplant.
  16. Jujuconnor
    👍
  17. Jujuconnor
    I wouldn’t eat gluten again for a test……..there is no benefit in a official diagnosis that I know of and there is no cure. The only treatment is a gluten free diet. Trust your doctors and if you don’t - get a new one. If I were in your position I would just go gluten free and make sure there’s no other hidden problem. Good luck!
  18. Jujuconnor
  19. Jujuconnor
    I didn’t prepare or do anything for the blood test. For the colonoscopy I had to do the prep…..I get my medical work done at Mayo Clinic, I trust they know what they’re doing. I’m sure there’s all kinds of tests out there, mine was a simple blood draw and the colonoscopy. No further testing was needed. My treatment plan…….gluten free for life. Good l...
  20. Jujuconnor
  21. Jujuconnor
    I have read that celiac is hereditary………….now you have me wondering about MLC! It a merry go round…..I haven’t lost much weight, only since they put me on thyroid medication around the same time as my celiac disease. Besides the blood test, I had the colonoscopy. ❤️
  22. Jujuconnor
    Celiac is an autoimmune disease, and with autoimmune diseases they come in 2’s or more……RA started all my problems. They think the surgery from the transplant started the celiac. They say sometimes surgery causes it for no reason….I’m no expert, all I can do is share my experience. I wish you and your nephew the best….
  23. Jujuconnor
    And when I say almost completely destroyed, I mean almost completely destroyed. While on life support and about 4 weeks after I woke up I had a feeding tube. About 3 months. They pump oats and barley into your stomach, that’s it. Oats and barley, big no no for celiacs. Not knowing I was celiac that continued and when I learned how to eat again there w...
  24. Jujuconnor
    Is that an internet or social media thing? I would ignore that and get the blood test if you’re really concerned about it. There has been diet fads forever. There’s the no carb, grapefruit only, etc., etc. The gluten challenge might be good for gluten sensitivity or intolerance. Celiac disease is a real medical condition. My small intestines are almost com...
  25. Jujuconnor
    Thank you…..I think I was getting hidden gluten possibly from light coffee creamer. Now we have been only buying fresh or marked gluten free. This is my 2nd day without any bloating and/or diarrhea without pills since my surgery in March. Thank you……..
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