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Jujuconnor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jujuconnor

  1. Jujuconnor
    A simple blood test will confirm if your celiac or not…..
  2. Jujuconnor
    Thanks so much, i see GP this week and mayo lung doctor in 2 weeks. I can always send a message to mayo - I will let you know. I will mention all that you mentioned……TY
  3. Jujuconnor
    One more question…………….headaches daily since going gluten free. My lung coordinator says it might be from going cold turkey. I appreciate all the help and support.
  4. Jujuconnor
    Lol. I was told the transplant surgery itself or months with feeding tube may be the cause. I do have kidney disease (injury) so it’s a double edged sword with decisions regarding treatment. (Iodine) My kidney was able to heal enough to stop dialysis and not get on the transplant list (for now). thank you for all your help, greatly appreciated and I...
  5. Jujuconnor
    Thanks again….they want me to take slow mag, 3X day. It really upsets my stomach and makes the diarrhea worse, so I cannot take it until this diarrhea stops. Sometimes they give it to me by IV. I will definitely have the thiamine & B complex checked. And any others mentioned earlier……….
  6. Jujuconnor
    Thank you……they did put me on 1000mg vitamin D. Have been taking for a few months. Have only been home for a couple weeks, was in transplant center for 3 months after hospital. Plus, last month in hospital for 2 weeks with Covid. It never ends, but I’m glad I’m getting answers!
  7. Jujuconnor
    I will get the Thiamine checked, if they haven’t already. I was diagnosed with celiac from blood test, colonoscopy and biopsy. The “fingers” in my small intestine are gone and I have “pockets”. It sounds like Thiamine might be the cause of many of my other problems also. Thank you so much for your help…….and quick response…..
  8. Jujuconnor
    Recent lung transplant patient (7 months). Procedure done at Mayo, the best care available in my opinion. Long story short, I had 2 days left with my lungs. Was on life support for 40 days and in ICU for 90 days. I had to learn how to walk, eat & swallow all over again. I also had kidney failure - was on dialysis for months, diabetes and diarrhea...
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