Sareliza
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So what happened with respect to these guidelines is that when he first tested positive in the 70’s they said they would not take the referral unclear he tested positive over 10x a second time. But his number dropped to 12 which is just under 2x the limit so now he doesn’t really meet referral guidelines.
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This from the BC Children’s Hospital celiac referral guidelines for Physicians: Patients who have two readings of tTG > 10 ULN (spaced by 1 month) are considered to meet non-biopsy diagnosis criteria for celiac disease with an accuracy of > 95% . Referred patients will be reviewed by our dietitians and teachings related to gluten free diet will t...
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Thank you for the advice. Yes, while his weight is okay his height growth curve has started to fall off and iron continues to lower as well. We go into our GP again next week to review so we will push for an expedited scope and if that fails I think you are right that we need to drop the gluten and see how he does. Thank you again.
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Not yet. We were told we might get an appointment in 3 years. There is a huge wait list.
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Scott, Our Province requires two tests at 10x above normal spaces one month apart to qualify under the European rules and because his level went down to 12 he doesn’t qualify. He apparently needs to have a repeat test at least 2x Upper limit of normal to get a referral and anything other than that is just followed by repeat blood work. His 12 result p...
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Thanks Trents. He did have a normal total IGA but hasn’t had any tests beyond that and the standard tTG-IGA. We are reluctant to proceed with gluten free for the reason you mentioned until we have had a GI consult. I will look into having the other serology run to see if it can give us a clearer picture though.
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Hello, My 8 year old has tested positive three times on his TTG IGA over the past 1.5 years with results consistently a low to mid positive (most recently 12 U/ml with 7 or under being normal which is down from 76 last year, despite still eating gluten). His ferritin is also low, and he has low lymphocytes. He has weekly migraines with dizziness...