Bandmom
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My son was diagnosed Celiac disease via bloodwork taken years ago. We. have been strictly following a gluten free diet but his bloodwork was coming in at 43 for all these years. Now we recently had a endoscopy with biopsy and the results normal, but a new diagnosis has come to light sucrase-isomaltase deficiency and lactose Intolerant. Now I am so confused. Even though biopsy came back normal dr says he still has Celiac and now CSID. I guess i am frustrated now how do you eat with having both conditions and my son is puzzled as well as he has not had any stomach issues. Anyone with experience having both celiac and CSID?
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Scott Adams reacted to a post in a topic:
TISSUE TRANSGLUTAMINASE AB, IGA is high and GLIADIN (DEAMIDATED) AB (IGG, IGA) - low - negative
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The only test performed on my son is only blood work to diagnose him with Celiac Disease. Is this the new standard now or should a Biopsy be performed as well as follow up? Just curious if i should request for biopsy testing as well even though dr never ordered it.
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I truly appreciate all the information provided. I wish he would have a reaction to eating gluten as this would be way easier to pin point what it is but he is asymptomatic.
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Original diagnose was >100 so it is down from original diagnose, but seems to be stuck at the 43 range.
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Yes he does drink milk and Ice cream that is Gluten Free but not dairy free. I hope i dont have to take that away too. Although he has not had any reactions or any issues with Milk.
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My son is 16 and is he has been really carefully as he has other food allergies which makes being Celiac even harder. His food allergies reactions are way worse than having gluten.
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Here is the exact test name with reference. GLIADIN (DEAMIDATED) AB (IGA) - 1.4 results GLIADIN (DEAMIDATED) AB (IGG) - 2.2 result U/mL See Note 1 Value Interpretation <15.0 Antibody not detected > or = 15.0 Antibody detected For the Ttg reference: Value Interpretation <15.0 Antibody not...
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My son follows a very strict Gluten free diet for the past 2 years and do not understand how his Ttg IGA can be at 43.7 but the Gliadin Iga at 1.2 and IGG 2.2 which is considered normal and negative. Liver panel was normal. I am at a lost of how to get this number down.