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ItchDrivingMeCrazy

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  1. icon Scott Adams reacted to a post in a topic: Advice please before I see dr again
  2. ItchDrivingMeCrazy
    Hi Scott Really interesting articles 🙂 As I mentioned in the answer above, I did have Covid at some point around April, and the rash started developing around 4-8 weeks later. I don't think it could be either shingles or chicken pox though. It started in the summer and was still growing when I started the cortisol treatment halfway through December. ...
  3. ItchDrivingMeCrazy
    Hi Knitty Kitty No, I haven't had a Covid vaccine since 2020. I did however have Covid around April last year and have been thinking it might have triggered something. I had no rash symptoms or itch when I had Covid. It was at least a month before the first itch started on my leg and it is not similar to how others I have read about have described...
  4. ItchDrivingMeCrazy
    It would be great to have a definite reason. I'm glad you know how to treat yours. I still get the bruising. The dermatologist says it's from the itching. I hope that she is right (everyone must be right about something 🙂 My whole body was under attack at its worst. My arms and legs were so swollen I couldn't bend them! I ended up bed-bound for ab...
  5. ItchDrivingMeCrazy
    Hi 🙂 Thanks for your message Hayley3. I have not figured out the reason for my rash yet, but thankfully it is much much better now. I started 35g of cortisol a day in December, and it is tapering off until at some point in mid-March. I was also very low in vitamin D and have been taking supplements to raise those levels. I'm so grateful fo...
  6. PinaKnudson started following ItchDrivingMeCrazy
  7. ItchDrivingMeCrazy
    Very helpful articles, thank you so much. Two of them I'd read last week but the others were new. I feel like I read and read so much but it is quite hard to make sense of it all. I'm still not sure what has caused the rash, so I am quitting gluten and iodine to see if it helps. Knowing that I probably need to start again if further tests are required...
  8. ItchDrivingMeCrazy started following Advice please before I see dr again and Iodine and gluten-free
  9. ItchDrivingMeCrazy
    Hi everyone, I am trying to figure out if I have DH. Excruciating rash.. My bloods came out negative - IGA 1.2 g/L [0.8 - 4.0] (I'm still waiting to see the doctor. I am planning to find out more about what type of test they did after reading a lot online of TG2 and TG3) I find it really hard to understand which is what. I had a skin biopsy...
  10. ItchDrivingMeCrazy
    Thanks, Trent for all your advice. I saw an article on this site that was helpful in explaining how difficult it is to get the biopsy right. It's a difficult balance though to ask health professionals questions about their procedure and experience. I find that I have annoyed them in the past just by saying that DH does not always manifest on the bum...
  11. ItchDrivingMeCrazy
    Thanks Knitty Kitty. That is an article I had NOT come across 🙂 I had planned to ask my doctor for a blood test to check for any deficiencies. I had low D vitamin in 2017 so that was why I started to think it might be a deficiency. I eat quite well but the D vitamin is sun and I guess I'm not always outdoors that much. I will ask if they could please wi...
  12. ernieb

    If your problems is gluten sensitivity resulting in DH, I predict that biopsies will not show positive.  I had multiple biopsies ordered and reviewed by various physicians, dermatologists, surgeons, internal med, and none, NONE of them dedected anything from their biopsies.  Only when an experienced allergy specialist took one look at my skin then he was the very first of many docs to say without question my particular DH issue.  

    1. ItchDrivingMeCrazy

      ItchDrivingMeCrazy

      Thank you Ernieb,

      I have decided to start a gluten-free diet after the biopsy is done. What you say supports that decision. I have no idea at the moment what is causing the issue, but I know that I can eat a healthy diet that is gluten-free, so I cannot see the harm in going down all avenues. 

      All doctors I speak to tell me to stay off the internet. But I must say that without the internet I would go insane. All your answers here support ways that can lead to a solution. The hope of finding an actual reason for this is much more calming than a tube of steroids.

  13. ItchDrivingMeCrazy
    I would sign up for any drug - wicked or not - if it took the itch away 😉 Not sure if my doctor would allow it unless the biopsy comes out with a clear positive result. Which makes sense I guess, I do want to find out the cause and treat it. I do think it is the gluten causing this though, so I will cut it out after the skin biopsy. Thanks for yo...
  14. ItchDrivingMeCrazy
    Thanks! This makes so much sense. My dad has mentioned to me that his Psoriasis and migraines are much better since he was diagnosed with Coeliac Disease, and we always assumed that it was partly because his body is now much healthier. I know that my nephew who also has Coeliac Disease suffered from migraines as a child. I have now managed to...
  15. icon Scott Adams reacted to a post in a topic: Advice please before I see dr again
  16. ItchDrivingMeCrazy
    That sounds exactly like my legs. Then hives on my arms. The hives are the main thing that I can't find when reading other people's stories. Thanks for your reply.
  17. ItchDrivingMeCrazy
    Thanks for taking a look Scott 🙂 Did you ever experience hives when itching?
  18. ItchDrivingMeCrazy
    Hi again. Thanks for your replies above. Scott: I've read through the material and it is really helpful. There are some good questions that I can raise when I see a health professional next. Trent: Yes I was eating gluten when I did the test. I have always been told by my dad not to cut it out on my own, but to go through the proper channels. That...
  19. ItchDrivingMeCrazy
    Hi, This will be a long post, so apologies in advance. I am really grateful for any advice as I’m at my wits end! I have an extremely itchy rash that has developed over the last four months. It started as two small itchy areas on the front of both shins. No visible marks. A rash started to show around two weeks later. Six weeks in I had a large r...
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