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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Corn would not make DH flare unless it was either CC'd in processing or was contaminated through your prep and cooking process. For example grilling the corn on a grill that had gluten prepared on it previously or washing it in a colander that had pasta drained previously. IMHO Squirmy is spot on. Give yourself some time to heal on the gluten free diet and...
  2. ravenwoodglass
    Welcome to the board. The OP hasn't been on the board in almost 6 years. You may want to post a new topic with what is going on with you. There are amny knowledgable folks that would be happy to try and help.
  3. ravenwoodglass
    Your symptoms are not unusal nor is the duration for some of us. You have given your antibodies a good flare up. It is good that you went to the doctor to make sure that nothing else was going on. Be kind to your system as much as you can. Eat mostly whole foods for now and it is a good idea to cook your veggies and fruits well to make them easier to digest...
  4. ravenwoodglass
    I had severe DH for over 40 years. It was the first severe celiac symptom I had. Not everyone takes years to see the outbreaks decrease. I only had to avoid iodized salt and stuff like seaweed. I did not have to give up dairy products after the first couple months (after my gut healed a bit) and when I added them back I started with low lactose foods like...
  5. ravenwoodglass
    I think you are undoubtably right. Thanks for replying.
  6. ravenwoodglass
    Just curious, how long do you have symptoms after you get glutened? I'm asking because I wonder if your bodies quick reaction and causing you to vomit might lessen the length of time you have symptoms? I have never thought to make myself throw up when the first symptoms show up. I wonder if it might make the night I have three days later easier. I would...
  7. ravenwoodglass
    Celiac is an autoimmune disease the reaction and symptoms are caused by the antibodies flaring. Because of this for some the time frame from exposure to symptoms can vary. Some get hit with obvious symptoms right away but for some the timing might be longer. In my case that gut wrenching pain and the D show up 3 days later. I do have neuro symptoms that show...
  8. ravenwoodglass
    Yes this can happen. What you described is what I go through with even the tiniest amount of gluten. The only difference is I will bleed for a few hours afterwards now. Just this pain alone is enough to make me extremely cautious. It can be so bad that it feels like I am going to pass out. I make sure to bring a phone into the bathroom with me when it happens...
  9. ravenwoodglass
    Being awoken in the middle of the night by extreme pain and the need to have a bowel movement is not IBS. According to my GI that is a hallmark sign of celiac. IMHO the first thing that he/she should do is call their doctor and order a repeat panel. They don't have to wait for another attack or for an appointment. Gluten can be sneaky and your friend may...
  10. ravenwoodglass
    I can only speak from my own experience but when first diagnosed I would break out in new lesions within an hour or two. I would also get a feeling like I was falling even if I wasn't. Let me know I was in for a real rough time for a while. However as time went on, and I suspect the antibodies left my skin, the time between a glutening and a breakout became...
  11. ravenwoodglass
    Pamela's is my favorite also for things like cookies, cakes and muffins. I like Tom Sawyer to use in scalloped potatoes and such.
  12. ravenwoodglass
    Symptoms like that are not unusual at all. Peoples symptoms can vary. Some folks get severely ill from even the tiniest amount of gluten while some celiacs are symptom free even on a regular gluten filled diet or think their symptoms are 'normal' or attribute them to something else. With a brother that is diagnosed it is likely you also are celiac. As mentioned...
  13. ravenwoodglass
    Thank you for your reply. I will check out the Manage Followed Content. Also thank you for once again making the last post visible in the sections. It helps me to see what sections may have new posts in which I might be helpful in replying.
  14. ravenwoodglass
    Two things, one does the format of this board have to change on what seems like a weekly basis? It seems every time I come on I need to get used to a new board. Personally I find it confusing and it discourages me from reading posts and trying to answer questions. Also when I do reply to a query I find my email blown up with other's replies even if I hit...
  15. ravenwoodglass
    You can definately have celiac without either one of those two genes. I am, as previously stated, an example. I have to agree with your husband that celiac can not be firmly ruled out, at this point, by gene testing. What do the doctors say about that elevated test level and that it is going up? What other conditions have been ruled out by testing?...
  16. ravenwoodglass
    I am someone with an oddball gene. In my case DQ9. Gene testing can not firmly rule celiac in or out at this point in time. Keep in mind celiac is autoimmune not just a GI disorder. Your primary can give you a formal diagnosis based on your antibody levels going down and symptom remission on the diet. Some of those other allergies could resolve in time...
  17. ravenwoodglass
    Those white matter lesions are likely UBOs or Unidentified Bright Objects. They are associated with antibodies that are attacking the nervous system. There has been research done that is able to be found on sites like the NIH. Don't lose hope, keep seeing your PT and working hard and most of all have patience. I had my first symptoms of ataxia in childhood...
  18. ravenwoodglass
    Welcome to the board. You only need one test to be positive to have celiac. Did they test his total IGA? Some folks are deficient and that would make the IGA test useless. As to the gene testing do be aware that while rare there are other genes that are associated with celiac but they usually only test for DQ2 and DQ8. Gene testing is also not diagnostic...
  19. ravenwoodglass
    Perhaps the reason they are finding that some folks are showing villi damage after taking antidepressants is because those people are undiagnosed celiacs with a predominately neuro presentation. I had years of DH and severe depression before GI symptoms were more than an occasional issue. I have had no clinical depression symptoms since I healed and had...
  20. ravenwoodglass
    It could be something as simple as a large gas bubble working it's way through. You can try massaging your abdomen firmly to see if that helps. If the pain is severe and lasts more than a few minutes do talk to your doctor about checking it out.
  21. ravenwoodglass
    Anxiety can be tough and often help is needed to get through it. Do ask your doctor for a referral to a psychologist who can help you deal. If the anxiety is mainly because of fear of having a D attack while out I found taking a dose of Immodium before I went out to be helpful. If it is a generalized anxiety then talk therapy can be helpful. Your psychologist...
  22. ravenwoodglass
    It is also possible that family has one of the rarer celiac associated genes. In my family it is DQ9 that is present not the usual DQ2 or DQ8. Doctors don't usually check for that one.
  23. ravenwoodglass
    Welcome to the board. This condition can be a bit overwhelming at first but we are here to help you get through it. It is best to stick with whole foods at first. Veggies, frozen without sauce is fine, fresh meats, chicken, fish, fruits etc. are going to be safe. You don't need all new pots and pans or dishes and silverware. Just wash them well. If you have...
  24. ravenwoodglass
    I agree that you should go and bring your own food or eat something before you go. As someone who spent years in the food industry (with many as the cook at a place that specialized in dietary restrictions) I can tell you that the caterer has your best interests in mind. The chances of CC are always there when others are preparing food in their kitchens....
  25. ravenwoodglass
    Call your doctor's office in the morning and tell them what is going on. The doctor can reissue the script and then contact the pharmacy and tell them that you need that med from the maker you used before. It is also possible that she may have something else going on. Having watery D for that long is a concern. You want to be sure it was the med and...
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