Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

ravenwoodglass

Moderators
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I use the Immodium or a marked gluten free brand in caplet form. While it worked quick the Immodium liquid tastes really awful.
  2. ravenwoodglass
    Yes from most of the makers I know of but to be sure ask your pharmacist to check. That you have celiac should be noted in your file since they need to check every script.
  3. ravenwoodglass
    I have DH and am very sensitive. I use Andalou shampoos and conditioners as well as their facial products with no issues. I like the ones for sensitive skin and have used their anti-aging line. I really enjoy the Cocoa Mask. Smells so good and leaves my skin nice and soft. I also use Cerave. I like the tub for the body and use their Facial Moisturizing Lotion...
  4. ravenwoodglass
    Have you considered that it may not be gluten that is impacting you with things like dried fruit? You may be sensitive to more than just gluten. Sulfites might be the issue with the dried fruits. In addition you mention DH. I had severe DH and iodine would cause a flare even if what I ate was gluten free. I also found that soy would cause a gluten like reaction...
  5. ravenwoodglass
    I find Cream of Buckwheat cereal to be soothing and easy to digest. I use Pocono brand. It is grown and processed a couple towns over but is available nationwide and they may have it available off line. Other than that I go with stuff that is easy for me to digest. Homemade chicken soup, well cooked veggies and fruits etc. I hope you heal quickly.
  6. ravenwoodglass
    Please make sure the derm is familiar with how to biopsy. If they biopsy the lesion it will be a false negative. (I had lots of derms do the biopsy in the wrong place greatly delaying my diagnosis) The biopsy needs to be done next to an active lesion not on it.
  7. ravenwoodglass
    By 'the big C' are you worried this is a sign of colon cancer? While they have cancelled your follow-up appointment you might still want to try calling and asking to speak to either a nurse or the doctor. In myself mucus is a sign that I have eaten something I don't tolerate. It can be your bodies reaction to consuming something to which you are intolerant...
  8. ravenwoodglass
    Call your doctor and ask for the doctor to call you back or to speak to a nurse. They will know what procedure was done and if this is something you should worry about. Hope you get some answers and are feeling better soon.
  9. ravenwoodglass
    I don't think so. Could you have come in contact with something during the move? Had they recently remodeled the place you moved into? Drywall mud has been a problem for me in the past as was wallpaper glue. Could a significant other not brushed their teeth throughly before a kiss? You mention having your own fridge and dishes which makes me think you might...
  10. ravenwoodglass
    Hi Bruce welcome to the board. You have come to a great place for info and support. Do be sure to read the Newbie 101 post at the top of the Coping section. Cyclinglady has given some good advice sticking to whole foods is a good idea as is the idea of a food and symptom diary. It can take some time to heal and we can have a lot of ups and downs at first...
  11. ravenwoodglass
    I agree completely with Scott. The only thing I would add is to have your doctor rerun the panels after 6 months or so. If your antibodies are down and you feeling better you have your diagnosis.
  12. ravenwoodglass
    Celiac blood testing is specific to celiac. IMHO endoscopies for adults are not needed either but the sure do make money for the doctors, hospital, etc.
  13. ravenwoodglass
    Sure is likely. Many tablets that are not chewable have an enteric coating that will dissolve in the stomach to prevent irritation to the throat. If you chewed it because you needed it to act quickly you may want to talk to your pharmacist about a good chewable tablet or liquid.
  14. ravenwoodglass
    That soap and many others should be safe. What you want to look for in soaps, shampoos and conditioners is wheat germ oil and oats. I also have DH and have found many that are safe including both organic and non-organic brands. Do make sure that your doctor is doing regular blood work if the med you were given is Dapsone. It can be quite toxic and your liver...
  15. ravenwoodglass

    No symptoms

    ravenwoodglass replied to Safia's topic in Doctors

    Welcome to the board. Please be advised that we don't have doctors here to answer your question the topic you have posted in is one to advise people about doctors that may be able to help them. Are you in a country that is being impacted by the Covid virus? If so you may not be able to get back in to a doctor until things calm down. Usually when someone...
  16. ravenwoodglass
    I agree that it sounds like you definately have an issue with gluten. If I read correctly you were already gluten free when you were tested so that could be a reason for a negative. Have you tried taking liquid Pepto Bismal? I get horrible stomach pain from soy and just one dose stops it quickly. Ask your doctor if it is okay to try as they should know if...
  17. ravenwoodglass
    Welcome to the board. You may want to drop anything with even certified oats for a bit. Some celiacs will react to oats the same as gluten. From personal experience I would suggest to avoid soy protein or flour for a bit. I thought for quite awhile that I was being glutened by gluten free foods and it turned out to be ones with soy. You can try adding both...
  18. ravenwoodglass
    Were you given pain meds? If so did your pharmacist check to make sure it was gluten-free?
  19. ravenwoodglass
    I had to get just a couple things yesterday and while my favorite bread was very low in stock gluten-free pastas and other items were in good supply. The rest of the store was cleaned out of meats, eggs, and of course paper goods like TP and paper towels. I am relieved I only have to feed myself and my pets and had to go to two stores to get enough dog food...
  20. ravenwoodglass
    Do you have celiac that has presented with nervous system symptoms? I had severe nerve impact and this did happen to me prediagnosis. I do think it would be wise to see your doctor. You do not want to choke to death and you need to find out what is happening. I realize that this is a scarey time to have to go but some doctors will have masks at the office...
  21. ravenwoodglass
    I think you misread info. I am firmly diagnosed. I was diagnosed before gene testing was being done. Thankfully because if gene tested before diagnosis I would have been told I wasn't celiac and would undoubtedly be dead by now. It wasn't until 5 years after both of my children were also diagnosed that one of them got gene tested and was told the blood and...
  22. ravenwoodglass
    I am one of those oddballs. 5 years after diagnosis and healing one of my diagnosed children had their genes tested and was told they couldn't be celiac. That prompted me to get my genes tested and found I have a double DQ9. DQ9 has fairly recently been shown to be associated with celiac. Here is a link to one article but there are more out there. https...
  23. ravenwoodglass
    The boat feeling did resolve but I do still have some residual balance issues. However I had ataxia impact from the time I was a child until my 40's. Glad to hear you are seeing someone that will be looking specifically for the UBOs. My neuro delayed my diagnosis by years by thinking my lesions were 'normal' when a spinal tap didn't come back positive for...
  24. ravenwoodglass
    Your description of walking on a boat is how I describe my ataxia. I also had brain fog so severe that I couldn't name a fork if you asked me what it was called. Have the doctors done a brain MRI? If your issues are from celiac that is impacting your nervous system you will have what are called UBOs on brain scan. They are similiar to the lesions caused by...
  25. ravenwoodglass
    Your allergy test reactions sound like mine prediagnosis. The allergist tested me for 99 things and the only thing I didn't react to was beech trees. He later said that was his clue that I was celiac and after being celiac for over 40 years I was referred to a GI doctor who confirmed celiac. After a few months the only true allergies I had turned out to be...
×
×
  • Create New...