eekunique
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Help with results
eekunique replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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IgA 0.51 (range 0.34 - 3.05 g/L) So while in range - it's quite low. TTG 11.00 (range 0 - 20 U/m) TTG has been above range before (but only just) so carried on eating normally and this was test 6 months later. Lab wouldn't test EMA because TTG was normal which I find annoying as he's had positive EMA before. Dr says all normal...
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Fluctuating results - help
eekunique replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes IgA was tested in both and came back as 0.53 first time and 0.58 second time. Range 0.35-3.05). IgG was only tested the first time which came back as "equivocal" at 7.9 (Range: negative <7, equivocal 7-10, positive > 10) do you think the IgA is lowish? Or ok for an accurate result? -
Fluctuating results - help
eekunique replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ah I didn't know this... Is it not as accurate for children? -
My son 8 year old had Ttg 14 (0-10) and positive endomysial. Joint pains and stomach ache. A month later retested, at this point in time he had no joint pains or stomach aches. Still eating same amount of gluten (diet not changed). Ttg < 2 and negative endomysial. Can anyone explain this? Could it be something other than coeliac? How...
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Scott Adams reacted to a post in a topic:
8 year old - further testing after positive bloods?
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Thanks
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Thank you so much for this. Really useful to hear.
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Thanks. They did the endomysial too which has just come back today as positive. Seems a shame to have to do such an invasive test next on such a small human.
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just got results back for my 8 year old: Tissue Transglutaminase IgA * 14.00 U/mL (0 - 10) Deamidated Gliadin Abs (IgG) 7.9 Negative : <7 U/ml Equivocal: 7 - 10 U/ml Positive : >10 U/ml Will the NHS do further testing or will that be enough to assume Coeliac? Will they want to do an endoscopy on an 8 year old? He doesn't...
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I've never had sedation before. How long does it last? I've been told I'm not allowed to drive for 24 hours afterwards! How awful is the endoscopy? Any discomfort afterwards?
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Time of day for TTG blood test
eekunique replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you. The most I'm managing is 3 and it's awful!! -
Do you know if time of day makes any difference to the TTG blood test? And what about whether you've eaten that day? I only ask as I'm also getting my TSH tested and I know it's important to do this first thing in the morning before eating. Thanks.
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Scott Adams reacted to a post in a topic:
Negative or weak postive test, however reduced gluen consumption
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I'm from the UK and did 23andMe to discover I have 2 coeliac genes. It took about 2 months to get the result. Maybe you could eat gluten sufficiently during this time and if it comes back that you have genes for coeliac then ask the Dr again for another blood test.
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Try taking out lactose. I have this and after years of pain I decided to try not eating lactose. It made an enormous difference. Lactose intolerance can be caused by coeliac disease because the enzyme to break it down is in the tips of small intestine. Lactose intolerance can also be caused by not having the gene to produce the enzyme. Either way the symptoms...
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Unfortunately with the NHS, the doctors are. They don't see patients as customers because it all gets paid through our tax. You're almost made to feel privileged to get an appointment in the first place. And then you have to work around the GPs egos as they hate you doing your own research. Totally different experience if you go private - which is pretty...