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ShelbyE720

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  1. I wanted to update everyone on my diagnosis in case this may ever help someone else reading this thread. Today I had an appointment with my dermatologist whom took the time to dive into all my test results and even consult with another GI doctor he knows. He came to the conclusion that he believes without a doubt that I DO actually have Celiac Disease...
  2. AnnaNZ- I am roughly 50% Germanic Europe and 25% England & Northwestern Europe with a few other small amounts from 3 other regions… I hope you get some answers soon! knitty Kitty- That is SO interesting! I never would have thought that with how the genetic information was presented to me. I feel like it may be safe to say that I actually DO have c...
  3. Yes, I did get a copy of my exact genetic results. The variants are as follows: HLA DQ A1: 01 and 05 HLA DQ B1: 0301 and 0503
  4. Thanks Russ! makes you wonder why my doctor dismissed it as an etiology so quickly? * sigh*… I just don’t understand.
  5. That’s a very enlightening perspective. I have done a lot of research on Celiac disease, but not a ton on NCGS yet. Discouragingly, on the internet you find everything from “this isn’t real” to “it’s very real, and needs to be taken very seriously”. It’s scary that a specialist would only give me a few sentences message on my test results to diagnose me....
  6. Trent’s, thank you so much for replying! I’m pretty disheartened by my doctors lack of interest in my results. I had antibody testing at Quest for Transglutamimase AB IGG/IGA and Gliadin IGG/IGA. Of these tests, all results came back at a value of <1 EXCEPT the Transgltutiminase IGG came back at 15.46 (values for these were considered positive at ...
  7. I’m hoping someone here can give me some hope about my current situation! I’ve spent the last 6 months seeing numerous doctors looking for answers to various wild problems I’m having. I went from perfectly healthy to quickly deteriorating over the course of the last few months. It started with extreme fatigue and cracking lips and turned into skin rashe...
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