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Always-Hungry-Kate

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Always-Hungry-Kate

  1. Always-Hungry-Kate
    My apologies for being a little late to the party, here, but I had to chime in (finally) after struggling with unrelenting insomnia for almost 2 months, now. Although I believe the brunt of it was caused by a monoclonal-antibody, anabolic osteoporosis drug I was on until January 10 (2024) -- when I stopped due to the severe side effects it caused -- I am...
  2. Always-Hungry-Kate
    Yes, O.K. Glad to hear that same answer — and coming from a gastroenterologist, too. The thing is, I’ve been eating quite well my entire life and my blood work and scans never came up showing my being iron deficient, or with bad, thyroid numbers, or metabolic issues . . . but then again, no one was really looking for that stuff until October of this yea...
  3. Always-Hungry-Kate
    Was thinking about trying that, but — as of this minute — plain yogurt and (especially) probiotic (dairy) drinks give me relief (at least for a little while during the day). Also, because the celiac caused my recently-diagnosed osteoporosis, consuming a number of different dairy products is the quickest/easiest way for me to get the calcium and D that my ...
  4. Always-Hungry-Kate
    Yes, the H. Pylori test was a part of the endoscopy I had (with biopsies taken) at the end of November. When I got the results, the only things that were found other than the celiac was a slight hiatal hernia and inactive, chronic gastritis. Immediately after the endoscopy, the gastroenterologist who performed it, met with me while I was in recovery...
  5. Always-Hungry-Kate
    Thank you for the insight. The thing is, I never had reactions to gluten in the past, so even if I ingested it (somehow), I don’t have a visible reactions to it. At least, I never did. I’ve been eating bone-killing gluten for decades and was never this nauseous for this long. After speaking to an assistant at the gastroenterologist’s office today...
  6. Always-Hungry-Kate
    Please forgive my posting yet another question, but this “nausea component” of being a celiac-disease patient still has me baffled. Of course, I keep looking-up this same question on the internet, but am not getting the answers I need. When it comes to a newly-diagnosed celiac patient — or even if it’s someone who has been diagnosed months ago — w...
  7. Always-Hungry-Kate
    Of the (so far) 17 separate results that came from the samples taken, only the D (too low) B6 (high), and Carotene (really high) were out of range. The thiamine, folate, B1, iron, magnesium, selenium and calcium were all well in the normal range(s). The thiamine even came out as higher-up in the normal range. There were even more results delivered on...
  8. Always-Hungry-Kate
    Yes, normally, for people who can drink carbonated liquids, ginger ale would be a stomach-settling thing to have. In my case, since 2007, when I was first diagnosed with osteopenia, I am not to drink any kind of soda. Apparently, it leaches calcium from your bones. Having said that, the only other thing I was given to handle the nausea is generic...
  9. Always-Hungry-Kate
    Thank you for the fast response. I’m so sorry that you are experiencing the same thing, but of course, I am relieved to know that it seems to be a very common side effect of this new diet. At least now — after two months being gluten-free — I seem to be having a few good hours during each day, but I’m still not having what I would call “strong,...
  10. Always-Hungry-Kate
    Although I am a few months late, here (I only just joined the group over a week ago), I wanted to chime in on this what-I-think-is-strange “nausea” topic. I was given a prescription for generic Zofran, which thankfully, I haven’t had to use yet. But if it gets worse, I definitely will start taking it. So far, with everything I’ve been reading, nausea...
  11. Always-Hungry-Kate
    Since I did not see very many discussions on this exact topic, I thought I should add it. Maybe there are other celiac patients out there who are just as confused about this particular topic as I am. As of late last week, soon after I finished a very comprehensive vitamin/mineral blood test, the results started coming in within 24 hours. As I expected...
  12. Always-Hungry-Kate
    Please forgive this late reply on this topic, but I just joined the group a week ago and am still catching-up with all of the various topics, here. As of today, I am still getting the results of a comprehensive vitamin/mineral blood test that I had done late last week. As I kind of expected, my vitamin D level was lower than it should’ve been (causing m...
  13. Always-Hungry-Kate
    Welcome to The Club, although I’m sorry for how you are feeling right now. Please be comforted in knowing that your story is all-too-familiar. When you mentioned how you were given almost no information, I got mad all over again when I thought my OWN experience, when I found out — on the morning of October 22, 2023, via the automatic results that wer...
  14. Always-Hungry-Kate
    Update: just found out — from the results automatically sent from the lab where I had the vitamin/mineral blood test done yesterday — that the only thing that seems to be “low” is my Vitamin D level. I find that odd because it’s in a lot of the things that I’m eating and drinking and I take a 1000 IU supplement each day. But again, it could be due to t...
  15. Always-Hungry-Kate
    Thank you. As soon as I have the results of my blood test and/or hear back from my new GCP, I’ll be reporting everything here — I will want to get people’s opinions and hear their insights. This site has been a great help.
  16. Always-Hungry-Kate
    Oh-my-gosh, YES, this was VERY helpful! It was not until I joined these Celiac groups (this one and one via FB) that a whole new world of information is being shared with me. I am so grateful for all of you. I’m so sorry that you went through such Hell trying to find out what was wrong! The only thing that’s making me feel better right now — with...
  17. Always-Hungry-Kate
    Ah, O.K. Good to know. Depending on the results, I am sure my new GCP will be in touch with me and either suggest a good multi-vitamin that will fill-in the deficiencies or . . . tell me to “keep up the good work” if the levels appear to be acceptable. So many people were suggesting that I get one of these types of tests so, I’m just getting it over ...
  18. Always-Hungry-Kate
    Just wanted to follow-up on the fact that I read the article you posted here and found it extremely interesting. It gives me hope that maybe this insane hunger and anxiety will eventually go away since they are completely unfounded. According to all of my biometric tests/screenings, assorted scans, and my recent endoscopy, there is nothing clinically “...
  19. Always-Hungry-Kate
    Yes, that’s been good for me, too. You’re right: most of the labels on them are marked “gluten-free”. I also tried almond butter for the first time a few weeks ago. Never had it before; it was good.
  20. Always-Hungry-Kate
    Yes, I bought a block of Swiss Cheese today — after I attended a holiday party last night and found that the cheese and grapes were the only things offered that I could eat. (All of the pastries, hors d’oeuvres and hot finger foods they had looked SO good, too; at least there was something for me.)
  21. Always-Hungry-Kate
    Oh, wow. I haven’t read that yet — i.e., the “Opiate Factor” you mentioned. Interesting. If it were actually a withdrawal reaction, though, wouldn’t I be experiencing headaches or body-aches? So far, I have any feelings like that. I’m also grateful that — since diagnosed with this — I have not been so sick that I’ve been vomiting, because that woul...
  22. Always-Hungry-Kate
    Yes, I have been doing that too — with protein bars, eggs, protein drinks (which are a lot like “Boost” and “Ensure”; loaded with vitamins/minerals) — which all help, but it seems like within an hour I’m hungry again. (Note: there are times when I practically overindulge in [good] food; I eat so much that I sometimes feel nauseous afterward — almost like...
  23. Always-Hungry-Kate
    One more question for anyone who can answer: about how long (I know everyone is different) before you start to feel somewhat "normal" again, with NORMAL feelings of hunger, WITHOUT feeling nervous/shaky . . . WITHOUT feeling nauseous. (I'm actually somewhat afraid of the answers I will get here, but I do want to know.)
  24. Always-Hungry-Kate
    Thank you. No, I'm not vegetarian or anything like that. No other restrictions, yet. I wake up with terrible hunger pangs. First thing: I go to the fridge and guzzle a gluten-free smoothie drink that is mainly made of mango and/or blueberries. Each bottle is usually over 200 calories; that is usually not enough. So then, it's a probiotic yogurt drink...
  25. Always-Hungry-Kate
    Oh-my-gosh, your story meant so much to me! Please know that I completely understand what you went through, because I just started this journey in late October of this year -- after going DECADES undiagnosed. I am so glad I joined this group -- I just joined today, actually because I know I do NOT need a therapist or psychiatrist as my last doctor...
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