Linda68

You used to only be concerned truly diagnosed if you had a biopsy. Even if been eating gluten free for a decade, Drs would insist on 6 weeks of eating gluten and biopsy. Most refused due to extreme symptoms when consuming gluten. This would be wonderful to see.

Surprising to have GBS from COVID vaccine and not the flu vaccine. It is a known side effect of Flu vaccine and extremely rare for COVID vaccine. As GBS is an acute 1 time reaction and begins to heal with treatment and physical and occupational therapies. The same disease is also a long term autoimmune trigger disease called CIDP (Chronic Inflammatory Demyelinating...

My living in US might also change my treatments. I am on several different supplements for my GBS/CIDP prescribed by my newest neurologist who has several other CIDP patients for more than a decade which are not related to my long term vitamin and mineral deficiencies that I take too for 20+ years now. I have been on IgG infusions for 17 1/2 years. It...

After 32 years of misdiagnosis for my gut issues, in Jan 2001 I had more severe symptoms of GBS than you described— same symptoms but to a greater extent. Also after a Flu vaccine, standard one. I was treated by neurologist with high dose oral Prednisone beginning with 80 mg. It stopped the progression of damage but did nothing for the damage. Physical a...