gffoodie
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dermatitis herpetiformis getting worse
gffoodie replied to gffoodie's topic in Dermatitis Herpetiformis
I have always been Vit D deficient so I do supplement - but I honestly have not been the best with consistency there. I do feel like the nuts could be a potential problem as I keep seeing people say similar things - I plan to trial them out and see! I read about B3 and was thinking about supplementing that too.. I take a daily prenatal form Thorne right now... -
dermatitis herpetiformis getting worse
gffoodie replied to gffoodie's topic in Dermatitis Herpetiformis
thanks so much for the support! I dont take any meds but I do take a prenatal vitamin from Thorne (hoping to get pregnant in a couple months and hoping to have this more under control by then). I will definitely trial the almond butter and almond milk - I consume a lot of them, which could be making things worse. -
Hi all - I posted here a couple weeks ago about my tag-iga antibodies remaining high despite strict gluten-free diet. My most recent blood work showed they are finally went down a lot and the diet is working! YAY! However - I have noticed that the stricter diet has actually made my dermatitis herpetiformis worse - which is so confusing to me. I went...
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I am not sure.. my doctor wants to give it more time before making that assessment. I do get acid reflux (and always have) which I do not think is linked to my celiac, but I received an endoscopy to make sure I did not have a stomach ulcer when my acid reflux was really bad for a month and when they were in there they noticed the damage to my small intestine...
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The iodine would more effect my DH symptoms vs my antibodies and lab results. The oats I cut out in attempt to try to lower my antibodies due to high risk of cross contamination. Even certified gluten-free oats - my doctor suggested it as more of an elimination diet to see (especially because we are both having a hard time understanding what could be contributing...
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I do use non-iodized salt but I am curious about the sources in the eggs and daily that I eat pretty daily. I feel like it is so much trial and error!
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thank you for your support - and I am sorry for the journey you had to go through as well! I do eat eggs daily to get in protein at breakfast - I find that without dairy and oats I have a hard time with food in the morning. I also typically put some cinnamon in my coffee and use paprika, salt, pepper and garlic to cook - I will take a closer look into...
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thanks so much for your advice and support! your right it is so frustrating! regarding my numbers - my first two sets were at my PCP and previous GI who I did not like... the most recent two are from my new celiac GI and thankfully all future lab work will be with him which makes it easier to see trends and compare. Everything in my kitchen is brand...
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Scott Adams reacted to a post in a topic:
DH and ongoing high antibodies despite strict gluten-free diet.. feeling hopeless
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Hi Cristiana! thanks for your comment! I am hoping with more time and consistency I will start to see progress in the right direction. I am taking Nature's Made vitamin D and Super B complex - the bottles say Gluten free.
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I am using gluten-free products on my lips but I have not looked into other household items, but I will! Thanks so much for sharing!! so glad you found relief - the itching is insane. I will further explore the Allegra for myself!
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Thank you - I have read through previously and it is very helpful! I do have a 100% gluten-free home and I have only eaten outside of my home ~4 times since October (2 of those times were at a 100% gluten-free restaurant.) Even prior to that I really tried to limit any outside exposure by bringing my own food or going to highly rated places on Find...
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Thank you for the reminder - totally forgot to add the reference values. Here is the lab work with reference values. Deamidated Gliadin Abs, IgA: 139 (Negative 0 - 19; Weak Positive 20 - 30; Moderate to Strong Positive >30) Deamidated Gliadin Abs, IgG: 91 (Negative 0 - 19; Weak Positive 20 - 30; Moderate to Strong Positive >30) t...
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Hi all - I have been struggling lately due to persistent DH and high antibodies. I got diagnosed vis biopsy and blood work in May 2022 and since have been on a gluten-free diet. In June 2023, I got diagnosed with DH after my honeymoon (I did not have any rash for the first year of my celiac diagnosis) and ever since I feel like I react to gluten significantly...