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EmilyKate

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  1. EmilyKate
    So have you just put it down to having an intolerance to gluten? Have you had a food allergy test
  2. EmilyKate started following Constant low back, abdominal and pelvic pain! and Blood Tests showed positive for celiac / Endoscopy confirmed no evidence of Celiac
  3. EmilyKate
    Just stumbled across this thread and I am in the same boat. Had a positive blood test for coeliac disease, long story I won’t bore you with but eventually I was told to have an endoscopy to confirm the coeliac. My results have come back negative… I’ve got a follow up appointment booked in with the gastro team but basically I’m just sat here wonderi...
  4. icon Beverage reacted to a post in a topic: Constant low back, abdominal and pelvic pain!
  5. EmilyKate
    Sorry to hear you’ve been struggling for so long too! It really is such a mystery illness and there’s just not enough knowledge about it amongst the GP’s. Good luck with your journey too x
  6. EmilyKate
    Wow- lots to consider here thank you!
  7. EmilyKate
    Thanks for sharing that article. Mine spiked after being 6 months gluten free so they thought it would have gone down, perhaps I need to get re-tested to see if it has gone down now after a year. thanks for the tips about vitamins too! Got a long list to discuss with my GP when I finally get the appointment!
  8. EmilyKate
    Yeah I feel a lot better already just talking on here! Yeah I completely agree! Well I’ll keep you posted if I get anymore answers from my GP in terms of next steps. Coeliac disease really is an evil little body destroyer that needs to be stopped (other than just stopping eating gluten) by some remedy. We’d all be rich if we had the answer!! ...
  9. EmilyKate
    Oh gosh, well I hope you get answers soon! There really needs to be more information on it, but it is reassuring in some ways to know others are experiencing the same things and we’re not going crazy!
  10. EmilyKate
    Ok I am going to do this for sure as at least a starting point, and let hope I see some improvements! Thank you for your advice x It really is isn’t it? And like you say I just think there’s still so limited understanding of it. I mean my consultant and all doctors I’ve come into contact with were made aware of it but have never even taken it into ...
  11. EmilyKate
    Oh I’ve never even heard of that cream but I do get cystitis the odd time, so yes may try that thank you. also in regards to my liver function, it was this level that was abnormal: Serum alanine aminotransferase level - 45, normal scale is 0-34 so wasn’t off the chart high but still abnormal
  12. EmilyKate
    Hi Cristiana, Thanks for responding so quickly. I will look into the predunal nerve stuff as I am often constipated too. I’ll also do some reading on the sacroiliac joints too. I am wondering if I need to get a general food intolerance test just to see if I am sensitive to other foods. In terms of my diet I eat everything g...
  13. EmilyKate
    Hi Both, I have stumbled across this discussion and I felt like I was literally reading my whole life. I just want to share my story as to be honest with you I feel completely lost, without answers and just hoping even by connecting with people that are experiencing the same things might help. I am 30 years old from the UK, and was diagnosed...
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