Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

PA Painter

Advanced Members
 View Profile  See their activity

  • Posts

    17

  • Joined

  • Last visited

  • Days Won

    1

PA Painter last won the day on February 29 2024

PA Painter had the most liked content!

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

PA Painter's Achievements

Apprentice

Apprentice (3/14)

  • Dedicated Rare
  • Collaborator Rare
  • One Month Later
  • Week One Done
  • Reacting Well Rare

Recent Badges

7

Reputation

  1. PA Painter
    Thank you for being so informative. Hopefully we get some good research soon. The NIH should be all over this, among other things.
  2. icon Scott Adams reacted to a post in a topic: Trying to be patient
  3. PA Painter
    Right now the only symptom I have is peripheral neuropathy and extreme fatigue. I am on an extra vigilant no bs chicken and veggies diet and feel fantastic except I can get enough sleep have stabbing/burning pains in my feet/toes. My doctor said it's impossible to have neuropathy from NCGS. He is an intern.
  4. PA Painter
    They said no celiac. I still can't eat gluten it messes me up. I am having severe neuropathy. I tried whey protein isolate again after the results and got a nasty neuropathy flare that is now on day 5 from a fourth of a serving. My doctor refuses to acknowledge gluten sensitivity or it's symptoms. He asserts that I am healthy. I don't understand why whey...
  5. icon Scott Adams reacted to a post in a topic: Trying to be patient
  6. PA Painter
    The endoscopy was due to the GERD. They said my esophagus is eroded, my stomach is fine, no polyps, and 6 sample were taken from my colon for celiac biopsy. I had reached a plateau and would not get batter despite being gluten free. I had to give up dairy and begrudgingly coffee. The coffee was messing my nerves up seriously bad. It has been quite an adjustment...
  7. PA Painter started following Always hungry since gluten-free? , Trying to be patient , Weird Limb Sensations and 1 other
  8. PA Painter
    Hello everyone! Reading some experiences here has been so helpful I feel responsible to share my own so far. I am pretty sure I have been having mild gluten and food related reactions my whole life. I could never figure out what was happening, didn't know what they were, didn't know what caused them, didn't know why I sporadically felt like poop for 3-5 days...
  9. icon Blue Roan reacted to a post in a topic: Weird Limb Sensations
  10. PA Painter
    I was continuing to get a reaction from processed food. I had to change to nothing but one ingredient foods like chicken and vegetables. I am still working it out. I glutened myself with instant coffee believe it or not. After going to the elimination diet all weird sensations have eased off, until I glutened myself. The idea is to slow introduce foods to...
  11. PA Painter
    I get ill feelings from pretty much all of the processed "gluten free" food. The frozen diners are a big no go. The cookies are good but they get me sick too.
  12. PA Painter
    I'm on some what of an elimination diet right now. Yesterday I introduced a new instant coffee to my morning smoothie that lit me up. I am still hurting now but it's ebbing off. The brain fog, stiff shoulders, etc. All from 2 scoops of instant coffee in my smoothie. I switched back to Cafe Bostello this morning and no issues. This thing is hard to nail down...
  13. PA Painter
    Yes, I just glutened myself yesterday. My two middle toes and two pinky fingers are always burning with neuropathy. It is a horrible pain. I feel red hot spikes right now. NSAIDs don't hold a flame to nerve damage pain. It just started for me. I have upcoming procedures.
  14. PA Painter
    That's worth looking into. Thanks! I hope that's not it. I go through a lot of oat milk. The only thing new was my instant coffee. I switched to NesCafe's "Iced" version. It's supposed to dissolve easier so I would assume that it has been processed more than the regular instant coffee.
  15. PA Painter
    I have an endoscopy coming up. I discovered that I had celiac after sustaining some pretty nasty damage from GERD. I only ever got GERD and neurological symptoms. The prepackaged meals trigger me too unfortunately.
  16. PA Painter
    I am getting the rollar coaster ride too! I don't eat anything that should have gluten but I still get, neuropathy, joint pain, headaches, cramps and twitches. It has gotten to the point where all I eat it is grilled chicken and mixed veggies every day for diner. This morning all I had was an oat milk/ isolate whey/ instant coffee/ smoothie and I could hardly...
  17. PA Painter
    I wish. I can hardly eat.
  18. icon Scott Adams reacted to a post in a topic: Longterm symptoms unbeknownst
  19. PA Painter
    Thank you!
  20. icon PA Painter reacted to a post in a topic: Longterm symptoms unbeknownst
  21. icon Scott Adams reacted to a post in a topic: Longterm symptoms unbeknownst
  22. icon PA Painter reacted to a post in a topic: I am not sure how to feel...
  23. PA Painter
    Thank you for the reply. In a way I am relieved to finally know what is going on with the arthritis etc, but am a little freaked about all of the potential problems that could spawn from this. I have had family tell me I'm crazy which is BS. I appreciate the heads up on gene testing. I'd rather not eat gluten ever again
×
×
  • Create New...