Thanks for the messages of support. My GP has given me the number of the gastrologist to chase them up. I said I shouldn't have to chase this up - I expect them to do their job!
I then contacted the secretary for the gastrologist and of course got through to an answer phone.
This ridiculous process is sending a message out that coeliac disease...
Thank you to both of you for replying. I'll check the results given been lost. Honestly, with an anti-tTG of 614.and a father who's confirmed, I know I have it so I wouldn't be going through another gastroscopy again. Hopefully they're just very very.... very slow! The time length of May to Sept sounds familiar!
Late response, but I'm interested to know how long it finally took to receive your results. My initial NHS blood test took one week to come back with an anti-tTG more than 60 times higher than the strong positive of 10 (614). That should be enough for a diagnosis, given my dad has confirmed coeliac. I waited 4 months staying on a gluten diet before my gastroscopy...
Hi, I know this is 4-year late response, but I had no pain (just lots of bloating and diahorrea) before being diagnosed. Since going on a gluten-free diet, I'm experiencing increasingly worse abdominal pain, mainly on the right hand side. I think it's constipation as a result of cutting gluten out, but it's horrible. I had no deficiencies as an undiagnosed...
Update, I asked to see my blood test results and I'm not deficient in anything. My thiamin levels are normal. I've asked for a bone density scan. My iron haem levels in my red blood cells are on the high end of normal, with iron serum levels right in the middle of the normal range.
My daughter's recent anti-tTG level is over 500. She's anaemic and has...
Many thanks, will do. I have Glucokinase MODY, which is a type of diabetes where glucose levels are mildly elevated. It doesn't require medication, and isn't an autoimmune disorder. My dad also has mildly elevated glucose levels. It's thought that the glucose receptors in the pancreas have a slightly higher threshold before insulin is released. I'm not underweight...
Thanks for the info. I haven't had that checked, but will enquire about it. I have a GP appt on Monday so will ask then. I'm pretty sure I have some vitamin and mineral deficiencies that had led to the tori, plus I have dry eyes (vit A), I've had bad palpitations and an irregular heartbeat, I have migraines, etc. and ehile not at all overweight, I've been...
That's the reason I've asked for a bone density check. I don't want to guess. My minerals levels were completely healthy in my October blood test, and higher than average amounts of calcium have to be present in the mandible in order to grow mandibular tori - the calcium has to already be in the bone matrix to be used to grow them. Hypercalcaemia is as damaging...
Hi Archie, I've recently gone gluten free. I've noticed exactly the same as you - hardening of stools but also increased flatulence. I think this is for 2 reasons:
1) Our bodies are finally digesting food, and spending longer digesting fat and protein whereas before, some fat and protein was going straight through. (Yellow-orange faeces are causes by...
Hi, I was wondering if any other members have coeliac disease and mandibular tori. I have both, and a Google search led me here, to a 20 year old post where 2 group members also had both. Mandibular tori are bony growths on your lower jaw. They are uncommon, with only around 2.7% of the general population having them. They're believed to be caused by grinding...