GardeningForHealth
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GardeningForHealth
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Most doctors would dismiss the experiences I have described here, including my food diary, as somatic reactions, and begin to think of me as a hypochondriac--so I am very careful about what I share with doctors. Most of the research done so far in the medical field has focused on Type I hypersensitivity: classic IgE-mediated allergic responses. I wasn...
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So, an update...whatever is going on with me goes way beyond gluten. I have been keeping a food diary since June 2024, and I now have a long list of foods that I reacted to. My methodology was to test a specific food several times to verify a reaction. Here are the results: Anything that comes out of a sealed package (can, jar, sealed bag) triggers a...
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FMT has a strong potential to either cure or improve many diseases, including Celiac Disease. However, the FDA has only approved FMT for the treatment of C.Diff infection at this time, and FMT is not approved in the United States for any other treatments. However, I hope that this changes in the future. Preliminary studies have shown benefit of FMT for...
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I tried taking 10mg loratadine to calm the histamine response, but it had no effect when I consumed foods that I am sensitive to. Still got all the symptoms anyway: extreme fatigue, brain fog, etc. I wonder why it didn't work.
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Are you making sure to eat protein and fats every time that you consume gluten? Protein and fat help to keep blood sugars in control. What proteins do you typically eat when you consume gluten?
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Help plz with results. celiac?
GardeningForHealth replied to Layu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Regarding diarrhea, this is a classical presentation of Celiac Disease. Not all people with Celiac will have this. There is a condition known as "silent celiac" in which the person has Celiac, but they do not notice any symptoms. Or a person with Celiac may only notice neurological signs of Celiac but not notice any gastrointestinal discomfort. -
And don't forget the last name in that list of authors: Alessio Fasano (the link cuts his name off). Dr. Fasano is the doctor behind all of this research and he is the one who discovered zonulin. Dr Fasano and all the authors, through their CDGEMM study, have possibly cracked the code of Celiac Disease and possibly many other autoimmune diseases, by...
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Very curious to see all the test results once they have come in.
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Help plz with results. celiac?
GardeningForHealth replied to Layu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As Wheatwacked said, you might have Celiac Disease. You need an endoscopy to check your intestine for damage. If you have damage, then you have Celiac Disease. But even if you do not have Celiac Disease, you should remove gluten from your diet forever, because of the positive Anti-gliadin IgG test result. This is because your immune system is strongly... -
I thought that TgAB was actually the one linked with cancer. "Thyroglobulin antibodies are also measured regularly in the follow-up of thyroid cancer." https://www.btf-thyroid.org/thyroid-antibodies-explained Also, my sister had thyroid cancer and had to have her thyroid removed. Then what is an objective way to determine low iodine status? ...
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I was having trouble integrating this into my understanding of the pathogenesis of Celiac Disease, but I think I've managed to make sense of it now. Let me know what you think: TLDR version: Gut dysbiosis --> Zonulin increase --> Intestinal permeability --> Mast cells in the lamina propria encounter gluten and are sensitized to gluten ...
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Canyon Bakehouse stuff: Yeah I used to eat that a lot too--was a staple in my diet. They contain non-gluten grains that you may be cross-reacting to. Teff, sorghum, etc. Boar's Head: They recently had a recall for lysteria... Udi's burger buns: see Canyon Bakehouse Gluten-free spaghetti noodles: see Canyon Bakehouse Mashed potatoes...
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I am not sure; I tried looking up an objective diagnostic criteria for diagnosis of Hashimoto's, and it seems to be subjective, which is disappointing. I was expecting to see criteria such as "If TSH is above this, and if T4 is below this, and if T3 is below this, and if antibodies are above that, then a diagnosis of Hashimoto's Thyroiditis is called for...
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My blood labs came back a few days ago as follows: Celiac Panel: Immunoglobulin A: 161 (ref: 87-352) Deamidated Gliadin Abs, IgA: 3 (ref: 0-19 neg, 20-30 weak positive, >30 positive) tTG IGA: <2 (ref: 0-3 neg, 4-10 weak positive, >10 positive) Diabetes screen: A1C: 5.4 and glucose in normal range Vitamins...
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Well looking back I think I made a lot of assumptions with AIP (due to the AIP diet's claims) that I shouldn't have, such as "my gut has healed," "the foods that I re-introduced are not hurting me, its something else," etc. I think we cannot assume our intestines have healed or that any particular food "should" be safe, and instead, upon re-introducing...
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Well that was years ago but yes back then I did resume dairy consumption. However, a few days ago I've stopped dairy again and I may never go back to it. How long have you been doing AIP now?
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Guys, I really do appreciate you trying to help me. The fact is, I do need help. But because of the huge volume of info out there on these topics (it could fill several libraries), I would prefer to reel it in to only info that is directly relevant to what I am dealing with in this thread, and that is the question of, "What is making me sick, and how...
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At this point, knitty kitty, I question everything, all the medical advice, about nutrition and what works and what doesn't. I tried benfotiamine, and it made me worse. Based upon my own experiences in which large amounts of vitamin supplements caused me harm, (Vitamin B6 at 12x to 25x of RDA which led to ataxia, some of which is permanent, and now selenium...
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1. If you are a person with Celiac, then you must stay gluten-free. You cannot get better unless you go gluten-free. 2. Your microbiome is likely destroyed and you might be headed for C. Diff. The only good news about that, is that if you get C. Diff, then you become eligible for an FMT, which has a huge potential to fix a lot of what you are going through...
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It is this kind of thing that increases confusion about gluten-free labeling. Determining what is safe to eat for a person with Celiac should be simpler.
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Along my journey to reclaim my health, I have been exposed to various statements in books, publications, and doctor interviews about health that ended up not being true for me, and that ended up hurting me, such as: 1. If you have Celiac, all you need to do is stop eating gluten, and your gut will heal. (Years later, studies came out showing that this...
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These are my own experiences and may be quite different and extreme from what is typical for those with Celiac Disease. I have been doing "mini-eliminations" and "mini-reintroductions" in my diet over the past 41 days, and I have found a lot of foods trigger a glutening reaction. I have no idea if these foods contain gluten; it could be something else that...
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Interesting, it does appear that histamines play a role; I need to spend some more time reading that, but I am having significant brain fog and fatigue today. I have been doing elimination experiments with my diet and achieved a breakthrough when, 41 days ago, I stopped all my vitamin supplements. The baseline fatigue and brain fog that I have been...
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If it is certified gluten-free, but has wheat, it should be reported to the certifier for misbranding and they should do a recall.
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Vit B-12 and other serum levels
GardeningForHealth replied to ShelleyWeiser's topic in Related Issues & Disorders
What were your lab results? What were those lab results? Hoping TTG-IgA and TTG-IgG is on there too.
