GardeningForHealth
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GardeningForHealth
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Like you, I am a regular consumer of Larabars. I am adapted to dates so I get no digestive issues at all from it, but I have been suffering from fatigue and brain fog for a long time now and this bar might be contributing. It is possible that Larabars might be a source of gluten-exposures. I see on their website they make this statement: "For our gluten...
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Because you have not done any testing yet to see if you have Celiac, and because you experienced new/more/continued symptoms despite being on the gluten-free diet, if I were you I would go back on gluten again for a few weeks and get the full Celiac blood lab panel done. You need clarity; you need to know what is really going on in your body. Making guesses...
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Eliminate Final Step-Down from the program, and like trents said, add random unannounced testing.
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I am really starting to see that things are not where they need to be for Celiacs and gluten-sensitive people. My sister, who years ago tested positive for Celiac and had a positive endoscopy to confirm, just recently tested mild positive for Celiac again, after being on the gluten-free diet and having negative blood labs for many years. Her recent test...
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Well it really shocked me because for the past few years I had been operating under the assumption that ever since the FDA came up with their 20ppm rule, that that came with legally required testing on any product that carried a "gluten-free" label of any kind. Now I know that this is false, just shocking and disappointing. That 20ppm rule should have come...
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Well guys, you know what they say about those who assume. I was assuming that my diet was free from all exposures to gluten, but I am now re-evaluating this assumption, because it may in fact be wrong, in light of this post: Thankfully I never did buy any of the foods on Mom's Across America's list of gluten-containing "gluten-free" foods. However,...
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nuts and seeds
GardeningForHealth replied to CeliacWarrier's topic in Gluten-Free Foods, Products, Shopping & Medications
I used to buy from nuts.com but their prices have gotten pretty high. -
nuts and seeds
GardeningForHealth replied to CeliacWarrier's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm interested in where to get certified gluten-free cashews, walnuts, pecans, almonds, and sunflower seeds. The vast majority of nuts and seeds at CostCo are not labeled gluten-free. I get the pumpkin seeds that trents mentioned and they are pretty good. I had a reaction to the already-shelled brazil nuts from CostCo though, even though they are labeled... -
Waiting for results
GardeningForHealth replied to Di Wallace's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow. That wasn't handled well by the doctors. I am not sure why there is such uncertainty and confusion around the endoscopy. Doctors and researchers make such a big deal about getting the endoscopy to confirm the diagnosis, but there seems to be so much uncertainty and gray around the endoscopy. Years ago, my sister had a very very high celiac blood... -
I'd be interested to see your Celiac blood test results posted here.
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Since you are taking levothyroxine, that means you were diagnosed with hypothyroidism too, and this can also be responsible for fatigue. I've read for years in forums that people on levothyroxine complain that it doesn't do enough for them. Fatigue is very common in autoimmune disorders in general. You know what they say about autoimmune conditions (such...
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I believe this is called "Refractory Celiac Disease." It seems that doctors treat it like it's irritable bowel disease (IDB): https://pubmed.ncbi.nlm.nih.gov/32654085/
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About a year ago I went to a Mexican chain restaurant. I told them that I was Celiac. They said "we have a gluten-free tortilla." I said, are you sure its gluten-free? They said their supplier has labeled it gluten-free. Well, they brought the meal to me, and the tortilla was light tan/brownish color, and it looked just like whole wheat to me. 15+ years...
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Dr. Fasano speaks about microbiome "profiles." He has made distinctions between unhealthy profiles vs healthy profiles. I would be interested to know the answer within the context of Dr. Fasano's CDGEMM study. For example, of the study participants who did not develop high levels of zonulin, how did their microbiome profile differ from the ones that did develop...
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Dr. Fasano states in this video, starting at 22:50... ...that before zonulin levels become elevated, the gut is in a state of dysbiosis. So dysbiosis comes first and causes the zonulin levels to rise which then a few months later leads to Celiac Disease. To me, this sounds like zonulin is not the culprit, but rather the gut dysbiosis. And so...
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Wow. I am reading this for the first time. Fascinating. That second article you linked to calls out a prolamin, "zein," found in corn, and discusses a blood test for it, called IgA AZA (anti-zein-antibody). This is the corn equivalent to the wheat anti-gliadin antibody IgA AGA blood test, found in the Celiac blood panel. This would likely promote corn...
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I read this post and your blog post about Thiamine last night, and that was fascinating. I will be taking a blood test soon to see if I am deficient.
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This sounds quite similar to my situation. A hypothesis: perhaps the original gut dysbiosis that caused our celiac disease, does not get repaired over time with the gluten-free diet. Perhaps our guts remain in some state of dysbiosis, and this over time causes increasing sensitivities to food antigens despite the gluten-free diet.
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A linked article to that one, https://pubmed.ncbi.nlm.nih.gov/33984722/ titled "Food antigens exacerbate intestinal damage and inflammation following the disruption of the mucosal barrier" states that collagen is a food antigen. I eat collagen on a regular basis, and collagen is a healthy food that cannot be avoided if you eat a healthy diet. Collagen is...
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This seems to be a common problem for us Celiacs, but a search on Pubmed does not seem to reveal that this problem is being researched or even acknowledged. I wonder if anyone here on the forums knows more about this.
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That is a very good question. What came first, the gut dysbiosis, or the epigenetic changes? I am assuming that its mostly a combination of various environmental factors--antibiotics, viral infection, pre-natal environment, toxins, diet, etc. And I believe that epigenetic changes can accumulate with each generation.
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Recent scientific research done by Dr. Alessio Fasano and others seems to point to gut dysbiosis as the cause of Celiac and other autoimmune diseases. The obvious next question would be: what therapies will come out of this research? High intensity probiotics? Microbiota transplant? I am ready. One thing that I see lacking in all of this research, however...
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Well that definitely doesn't sound like fun. I tell you what, after 10 years of having to be careful about foods, and eliminating more and more foods from my diet (which gets really old), while dealing with recurring CFS, I am nearly at my limit and I'm now looking into solutions beyond just gluten-free diet, which in my case is not sufficient.
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Yes, I am very careful with my diet and I screen pretty much everything I eat. I stick with already-screened brands.
