neesee

I only attract mosquitoes when my hubby isn't around. They like him best! Occasionally, I do get bitten and yes they itch. I believe everyone gets somewhat itchy. However, some people do get allergic reactions. I don't.

neesee

I'm o+ and biopsy diagnosed.

neesee

Hi,

What test is that?

I had a permeability test when I was diagnosed. They put some chemicials in a clear liquid and had me drink them. Then they collected my urine for 24 hrs. Nothing to it! However, I never did learn the results, they just waited for the biopsy results and told me I had sprue. I had been in the hospital for a good 2 weeks by then. I was so sick! Every moring the nurses would go down to peds floor to get some fresh pjs for me. I was a mess. Anyhow 20 yrs later I'm doing pretty well. I have good days and bad days, like everyone here. I'm not dying anymore. I am so grateful for the diet!

neesee

Yes, you certainly can get addison's from renal tuberculosis. My dad had renal tb when I was a child. It's something I will never forget. He almost died from it. His drs wondered if he grew up on a farm because you get this form of tb from drinking unpasturized milk. His mom's family were farmers from Iowa. He did spend one summer on his aunts hog farm in Ilinois.

It appeared that he developed cancer in that kidney when he got older.

By the way, his grandparents were german, from Switzerland.

neesee

Bravie,

You aren't the only one with problems! My son has no health insurance either. He has a posterior fossa subarachnoid brain cyst, hypertrophic cardiomyopathy, hashimoto's thyroiditis , elevated liver enzymes, and he has passed 6 kidney stones. He does have a local county plan that pays for office calls and generic Rx. That's all! He can't go to the hospital for anything. I pray he doesn't need his shunt replaced for a long time. Oh, I forgot his extreme high blood pressure and high heart rate. 200 beats pre min. without his lopressor.

Guess what his gut hurts too! Because I am a biopsy dx'd celiac, He went gluten free. His belly is better now. Way less bloated, less diarrhea.

You aren't the only one who has it tough! Maybe you should straighten up and try to figure something out for yourself.

neesee

Bravie,

Maybe your diagnosis isn't correct. How were you diagnosed? Did you have a biopsy? If it was blood tests, which one was positive? EMA and tTg are the most specific. Anyhow,if I were you, I would check back in with my Dr. Maybe he missed something

neesee

Your baby will be just fine!

neesee

Unless you are asian with DQ4 everyone has gluten sensitive genes according to Enterlolab. However, you don't have the genes for celiac.

neesee

Wow! If you have addison's, your potassium levels must be dangerously high. I hope the drs are addressing that issue as well. How is your blood pressure? Not too low I hope.

neesee

I also had a fasting glucose of 99 so I was heading for probably type 1 diabetes since I had exercised and was thin and I am in my 50's

I'm not so sure about that! Type 1 hits like gangbusters,usually with heavy flu type symptoms. Type 2 sneaks up on you with a rise in blood pressure and cholesterol and slowly rising blood sugar. Usually, there is weight gain, but occasionally a type 2 will be a normal weight.

neesee

Type 2 diabetes has no connection to celiac. I don't believe high blood pressure is connected either. I've been gluten free for 20 yrs, and on blood pressure meds for 10 yrs.

It is type 1 that has the connection. My mom had that. Dad was type 2. He lost a lot of weight and gained excellent control of his blood sugar that way.

neesee

He did not have a trigger that we know of. We had him tested after I was diagnosed because he is my first degree relative. He had no outward symptom other than not growing for a year. My older daughter was negative, and we have not tested our baby yet.

It's good you caught his celiac earlier rather than later.

I think it's difficult for most people to pinpoint a trigger. I'm not sure at what point I developed celiac either. I do remember having a severe gastroenteritis when I was 19. My mom had it at the same time. It was the worst we had ever had. It took several days to get better. Mom never did. In 3 weeks time she had lost 20 lbs and had high blood sugar and ketoacidosis. That's when she became a type1 diabetic. She was 44. She lived to be 55.

neesee

Colleen , What do you suppose was your son's trigger?

neesee

I was biopsy diagnosed Jan. 1988. I've been gluten-free ever since. My balance gets worse every day. Stairs are starting to make me extremely anxious. I won't go near them until I steady myself and grab the handrail. Dh laughs at me when I walk down the hallway, because first I hit one wall and then the opposite. He call me bing bong. I'm not amused.

As far as I know, all my vitamin levels are where they are supposed to be.

Hi Jay...It sounds like you might be describing the arachnoid membrane. I don't know if there is a connection between celiac and something like that or not. I do know that my son has a posterior fossa subarachnoid cyst. It had to be shunted in 2001. I am a biopsy diagnosed celiac.

By the way, you are only 1 year older than him and have the same name.

Hi....I'm from the Flint area. I lived in Durand for 11 years when I was young and stupid. We got a good deal on a house back then. I about died of boredom in Shiawassee co. It was good to move back home.

I get most of my gluten-free goodies at Meijer's Kroger's and Dale's Health foods. There are no gluten-free restaurants close to me.

Actually, vitamin C is water soluble along with B vitamins. Vitamins A,D,E and K are the fat soluble vitamins.

When my dh didn't have his blood sugar under control, he was freezing. Especially after he ate his meals. I'm quite sure it's a diabetic problem. It took a fair amount of time before that improved.

He's not the one with celiac, I am. He is a type II daibetic.