neesee

im looking at his Laboratory report and I do not see anything about TTG or EMA ?? all we know is that he tested "high" the paper has "Gliadin antibody IgG 35 H U/mL" and that part was high lighted with some big words !! When I called the Dr (yes I had to call because an office staff member called with NO answers to my questions!!!) he said, over the phone, you might want to start you son on a gluten free lifestyle and we are going to set you up with a Ped GI Dr at the Children hospt.

and the test was done at Sonora Quest Laboratories.

IgG is the least specific for celiac. I would definately do the biopsy.

neesee

I have a question....

Our son was DX on 12-05-08 (blood work) and he is 3 1/2 years old having said that our GI apt is at the end of the month. What I would like to know, what is a "high level"? How do I know if our son tested high? I have his results... should we do the scoop or not. I dont really want to stick s tube down him. He has been gluten free from day 1 of his DX and is doing wonderful! I love the new little guy I have now LOL!!

sonia

I would probably go for the scope. It will give you a better overall picture of what exactly is going on inside.

Which blood test was positive? TTG and or EMA are the most specific for celiac.

neesee

Yep, been diagnosed three times, once in 1997, once in 2002, and recently again in November 2008. The first two times my GI doc said the damage was mild, and it was even difficult for her to find a place to biopsy the second time around. When I was worse off on the GFD both times, it didn't make any difference to her if I did the GFD or not, so I dropped it.

This time, a new GI doc did a follow-up CT scan and the TTG test. The CT showed the lining of my jejunum was 15x the thickness it should be, and my TTG level is 134, along with significant villi damage. That along with DH would confirm that I have celiac disease.

But I can decide that the results so far mean it wasn't approached properly, so I can take a deep breath, give myself a few weeks to plan it out right, and do it again. If I just keep going along as I am, I risk damaging my health, losing my job, and trashing my life even more than it already has been. There aren't any positives in that outcome that I can find. After having celiac for all these years, I doubt if 3 or 4 more weeks eating gluten again is going to kill me.

Yep, I think so too. Thanks for the support.

It sounds to me like you're sicker and more rundown the you want to to admit ( so like a guy). Can you afford a sick leave? You do need to take some time and get your head on straight and rest!

I swear, the diet isn't that bad. I should know, I've been gluten-free for 21 years! As far as how your diagnosis was approached, I don't think anyone is prepared to hear they have a major health problem. You can't plan for it! Oh wait, I'll have cancer next year june 25 2010 sounds good. I'll be ready for it then. You have celiac now and you have to work with it now.

Maybe your Dr could prescribe a medication to help soothe your stress. I took Xanax for a solid year. It helped me through the bad days.

There is a lot of great diet info here on this website. There are lot of really kind helpful people here as well. We are all pulling for you. You can do this.

neesee

Are you positively diagnosed through a small bowel biopsy and or skin biopsy? If so, then you can't just decide the gluten-free diet isn't for you at this moment.

The gluten-free diet saved my life and slowly restored my health. It takes time to work. In all honesty, I would have to say it took a good three years for me to be better. I still have my problems, but I function a whole lot better.

I was too sick to consider whether I had withdrawls or not. I don't think I did. I had major malnutrition. That causes a host of symptoms all on it's own.

Don't give up!! You can't afford to!

neesee

There are a lot of other antigens that they test for. We all no about the Rh factor (+ or -) because that's the one that will kill you immediately if it's wrong.

This site has a lot of info, if you're curious.

Open Original Shared Link

That would be me. Thanks for the link. It's interesting stuff. I knew there was more involved than just to + and the -, but I haven't found a lot of information on it.

FWIW, Hillary Clinton has a fairly rare blood type. Dd was working for the red cross when HC was scheduled to come to town. Her visit was delayed for a few hours so they could acquire her very special B- blood. That was back when her hubby was president.

neesee

I'm surrounded by diabetic's, your fasting blood sugar is very good. Your celiac tests are negative. That's all I can help you with.

neesee

This chart explains blood types and who can receive or donate what type of blood.

Open Original Shared Link

neesee

I'm O. The universal donor and receiver, that is what my dr. told me.

O negative is the universal donor, but I'm pretty sure that AB positive is the universal recipient.

neesee

Just use whatever the doctor precsribes. It will be just fine. I had a colonoscopy in September and then I had a partial colectomy in October. The prep for the colectomy was the worst. My last meal was early Tuesday evening and my surgery was friday morning. And as far as having a reaction from being little, I'm 4' 10 1/2" tall. I'm very small. It didn't hurt me. I was pretty sick at the time too. Much better now.

I would like to suggest buying baby wipes and diaper rash cream. The prep tends to make one a little sore.

neesee

Hi Cat....I'm O positive. I have light brown hair (blonde as a child), blue eyes, and I'm 4'10 1/2" inches tall. I'm german (swiss) irish and english.

neesee

I had been unable to eat anything for a solid month before my biopsy and I still had a very positive biopsy. The cleanout won't make any difference at all.

neesee

I know, I know. I'm an idiot. I have the worst memory on the face of the planet. It was in fact an actual biopsy. Really I just remembered that they did something to check my skin. My memory can be very vague. I didn't remember what exactly they did or what the results were until I called them to verify. So, it was a biopsy and it was positive. Sorry for the confusion.

Alia

You are not an idiot. With a positive biopsy, that means you do indeed have celiac. You should have been gluten-free after that biopsy was done!

neesee

They did a swab and that and it came back positive.

That's what you said in your first post. Did you have a biopsy done in addition to that swab? A swab isn't a biopsy.

neesee

Try your local health department for help. That's who helped me the most. They hooked me up with the GIG and sent me a lot if information about the diet. Of course that was before the internet!

I really didn't learn a darn thing from the dietician anyhow. I was covered 21 years ago, but I wouldn't be now. I was in the hospital though.

neesee

We have a lot of snow here in mid michigan,but the most difficult thing to cope with is the cold! Last night the wind chill was -12. It seems too early for this kind of cold and snow. Dh goes out every morning and plows paths in the yard for our little poodles Little Toby is only 4.5 lbs! The little guys do seem to appreciate it.

Tiffany....I loved your pictures. They made me smile. Thanks for sharing them.

neesee

It's good that it doesn't bother you Peter. My dh drinks a fair amount of it too. He has type 2 diabetes. It seems to help fill him up when he has no more calories to spare. It is invalueable to a diabetic. Unfortunately, it gives me cramping and a little diarrhea. So does Splenda.

neesee

People with seizure disorders are not supposed to use aspertame at all for any reason. It can cause seizures. My dd dated a guy who had seizure disorder. His dr. told him absoutely no aspertame. It's really bad stuff.

neesee

Goofy man He washed it all up. I'm still not using it for anything except cleaning the fish tank from now on. I'm going shopping tomorrow and a nice new colander is on my list.

I love this man to pieces. We've been married for 36 1/2 years now, but there is only so much I'll put up with! He needs a job. Retirement is driving me crazy. He has too much energy to sit at home. He's taking things over that he knows nothing about. My housework! He has his chores and I have mine.

Oh and he broke the aquarium! Joey has a new one now and a few more guppies to go with it.

neesee

Dh has dirty aquarium gravel in mine. It stinks! He thinks I'm still going use this thing after he disinfects it! I think not!

It's my grandson's aquarium. It was a clogged up mess when we found it this morning. I thought his mom was taking care of it. She's been awfully busy between working and going to college full time. I think she's just worn out. My poor dd.

Oh well, I love my dh to pieces, but I am getting a new colander!

neesee

DR5/DR7 combine to form 1 DQ2 gene. I don't see any other genes listed in the article. It says a very few celiacs don't have DQ2 or DQ8, but it doesn't list which genes they are.

neesee

Maybe this could help. Open Original Shared Link

neesee

Cake type donuts to dunk in my morning coffee

I just plain don't like Lara Bars! I don't understand the hype about them. They taste bad to me. I don't waste calories on food that isn't really good.

neesee

I've been gluten-free for just about 21 years now, and I'm still severely lactose intolerant. I gave up hoping a long time ago.

neesee