neesee

dksart, I sure wish you would reconsider. You and your loved ones are far more important than any possessions you might need to leave behind. Things can be replaced, people can't.

I'll keep you and all the hurricane area in my prayers.

neesee

This morning when I took the dogs out for their early AM potty, dd and I found a skunk running around the back yard with a yoplait yoghurt container stuck on it's face and head. The poor little thing was frantic. It was pounding it's head against the fence and the garage.

We weren't sure what to do. Dd tried to pull the container off, but it was stuck tight. I woke up dh for some help. We covered it with a blanket and dh had to hold it's head firm so he could twist and pull the container at the same time. That poor skunk was in the process of suffocating. He had almost no fight left in him. When the container came off , dh said he could feel him take a good deep breath. We all ran like mad to get away from it. It ran the opposite direction.

Yoplait needs to change the shape of their containers! They are a hazzard to all the critters we have around here. He must have gotton it out of one of the neighbor's trash.

I did send yoplait an email complaining about their containers. Hopefully they'll listen.

neesee

So at what height relative to your family member is considered short stature in the medical sense? Short stature due to disease or health problem not genetic. I know the most accurate way is to look at the growth chart. But I don't have one. Let's say if someone is shorter than his father by a lot, would that be enough to tell that his short stature is cause by a health problem?

I am about the same height as my father, only maybe 1 inch (or less) shorter ( I am 20 years old by the way).

For those who's growth is stunt because of Celiac disease, are they usually much shorter than their parents?

How tall are your parents? My dad was 5'8" and my mom was 4'11". I am 4'10 1/2". I have no idea if I would have been taller or not. My mom was a type 1 diabetic that showed very definate signs of having celiac. My mom's side of the family wasn't very tall. She had a grandpa that was 5' and 115 lbs. He was never sturdy enough to work.

It wasn't me that posted, but I believe the Dr. is Gail Cookingham. Her dad is a well known allergist around here.

neesee

I found this on the Delphi forums. Some of you might find it interesting.

Open Original Shared Link

I make a stove top version of this casserole frequently. I usually add ground beef and chilli seasonings to the mix. My favorite is the McCormicks tex mex mix. My family loves it! I'll have to try your oven version.

neesee

Nearly 21 years gluten-free and I'm still lactose intolerant.

neesee

Yolo, hangininthere, jestgar and rice guy all have it nailed. It's the potassium.

Like other celiacs here, I'm on a no-sugar, almost-no-fruit candida diet. I can't tolerate high sugar, or high salicilate fruits like blueberries, bananas and oranges. That makes it VERY difficult to get potassium. I exist on that fine line which you encounter occasionally.

I seem to tolerate lime juice well, and lemon juice okay. So every day I squeeze half of one of them in a glass of water, and that fixes the tired-and-dry symptoms I share with you.

People can, not just survive, but flourish on a blood sugar level near ZERO. It's called ketosis. We do not need sugar ....at all. And we need very little starch. But we require meat and fat.

..

Actually.....a blood sugar of nearly zero can and will kill you if you don't get it up to a normal level quickly! Your brain needs glucose and oxygen in order to function.

neesee

It does sound like the GI was acting defensively.......probably had the report in the chart for the day of the planned office visit which was cancelled...may have never laid eyes on the actual report until the patient was in the office in 2008! Offices are run differently, and that one might put results in a chart for same day appointments. I wonder when he cancelled? Same day? Days before? In my office , there is a laminated sign that says" IF YOU HAVEN'T HEARD YOUR TEST RESULTS BY 2 WEEKS, THEN NEITHER HAVE WE..PLEASE CALL"

Charts can be pulled away from clinical areas and if you don't have a tracking system for the results, they can be refiled into the record room until needed again! There are no infallible systems, but patients do need to ask for the test results if they haven't heard in a timely fashion. Subspecialists frequently send a letter of what they plan to do, but don't send the actual reports!! The GP/IM offices chase down results multiple times a day!If the GI's reimbursement was tied to the GP/IM actually receiving the results, well we might not have this problem!!!!!

I hope your husband is doing better now .

We had a similar situation. My son was having severe head pain with very high blood pressure and rapid heart beat. Our pcp sent him for an MRI. We called several times for the results and were told not to call anymore, they would call us if there was anything to report. Ds kept getting worse. We waited from Jan. until Mar. before I finally took him back myself to see what the dr could do for him. Ds was 21 at the time.

I asked the dr for the test results. He told his office girl to look them up. When he came in the exam room, he wouldn't look at us. Finally he looked up and said you need a neurosurgeon. Your son has a very large cyst on his brain.

Ds has a sub arachnoid cyst. It had crushed a good portion of his cerebellum. We were lucky his brain didn't herniate. He had 3 surgeries and a shunt was put in. He is still in pain to this day. His blood pressure is still bad and he takes 100 mgs of lopressor twice a day for his heart rate. He lives on disability.

We should have been informed right away!

neesee

I think the dr is a sob, a poor excuse for a dr anyhow. He probably wanted to be paid for the office call. I thought they all took an oath to do no harm. Withholding a positive celiac diagnosis is definately harmful.

neesee

I don't think they would cut out part of your colon because of celiac disease. I have diverticular disease and the are discussing cutting out part of my colon sooner or later. I'll know more next month after the colonoscopy.

Ask your Dr. for the celiac test. It can't hurt.

I have celiac and diverticulitis. The diverticultis if far more painful than the celiac. 20 year ago you couldn't have told me that. the celiac was tearing me up at that point.

I hope you drs come up with some answers and you feel better soon.

neesee

Yes, I actually did get lumps in my abdomen. My intestine felt like it was crawling around and then a lump would appear. I got it on my lower right side mostly. I was very thin and I think that's why my intestines were so visible. You could also see my pulse in my abdomen.

neesee

The GIG was my lifeline back in 1988. Dh called our local health department for information on celiac, and they sent me info put out by the GIG. My very first newsletter and gluten-free dietary guidelines.I became a member and bought my first gluten-free cookbook from them. God bless the GIG.

neesee

Well.... He did use the most specific test for celiac disease, however, it is subject to human error. The tests that seems to be the most highly favored right now are the total Iga along with the ttg. Igg seems to point to some sort of gluten intolerance, but not usually celiac.

I know i had extremely low cholesterol with my celiac. 96 total. 20 years later, I'm around 150. I eat a fair amount of fat. I just don't seem to absorb it all that well.

Good luck whatever you decide to to.

neesee

All of these same arguments could be made about oats. Some celiacs cannot tolerate oats and will have the same damage to the villi as to wheat. No one can predict who can and can't tolerate the oats. People on this forum regularly eat oats and assume they are safe for them based on their reactions. I know I cannot eat oats based on my reactions, and yes, I tried the certified gluten free oats. So all you oat eaters are taking the same risks you are chiding Josh for.

Furthermore, people are advised here everyday, to forget about the reliability of medical tests and base their diagnosis on their reactions to gluten. Josh is stating his reactions, or lack of reactions and getting reemed for it, even though he is also stating the results of his medical tests, which of course have no validity on this board.

I do not find it inconceivable to think there may be some people who do not react to malt barley.

Lots of things have been put back in our diets that were once considered off limits - vinegar for example.

It is said that the distillation process removes all the gluten in alcohol. However, I definitely react to grain based vodka, but have no problem with potato vodka. So if I have obvious symptoms to this, how many people are having low level ractions and therefore damage, but they don't know it?

I read Josh's post as him simply stating his personal experience and wondering if maybe in the future, it would be found that the levels of these products might be suitable for celiacs. He was asking if others had the same experience, not saying everyone could or should do this.

I don't think he should be attacked for sharing his experience. There were plenty of disclaimers given by those that had also tried it, that they may be an aberration. He also said the key to his success may lie in the fact that he is 100% gluten free in everything else.

I thought this was supposed to be a discussion forum for celiacs. I found his observations interesting. I would have liked to have heard from others who have tried this, but obviously, they would be put down as well, so I doubt we will hear from them.

If we are only concerned with proper information for new people, this board is full of poor advice and statements that need to go away.

I wasn't attacking Josh at all. I hope he understands that. I feel it is my responsibility to encourage him to be as gluten free as is possisible, without being obsessive.

When I was diagnosed, some 20 years ago, I was told it was okay to eat rice krispies and corn flakes because studies had shown the small amount of malt seemed to be well tolerated in most celiacs. So I am admitting that I do sometimes eat them with no ill effects whatsoever. My last ttg just came back and it's normal.

I never obsess about the cancer aspect of the whole thing. I was also advised that a celiac has a 20% greater chance of getting cancer than a non celiac. 20% didn't seem that big. I figure there's an 80% chance on my side that I'll die from something else. Just to be alive puts you at risk for something. I can't spend my life being afraid of something that may not happen.

However, this is a celiac board, so I still feel it's my duty to encourage all the celiacs here to do their best to be gluten-free, without being mean and obsessive. I don't approve of being nasty to others about what they eat or don't eat.

I have a shared kitchen and as far as I'm concerned, it's going to stay that way! I'm doing well with the celiac. Not the diverticulitis, however.

neesee

Josh,

You really shouldn't drink beer. I'm not one to preach at someone, but if something clearly has gluten, you shouldn't consume it.

I'm sure it's tough to be young, male and celiac, but you've got take care of yourself. You are only issued one body, and you are lucky enough to know you should be gluten-free. You've been given a gift. The gluten-free diet! Don't turn your back on it.

I'm not the paranoid type either. But if something clearly has gluten, I don't eat it.

neesee

Do you take vitamins at all, and if so, what do you take?

neesee

Hi TrilluimHunter, I'm glad to see you are feeling better. It sure is easy to blame everything on the celiac. I did the same thing recently. I had an attack of acute sigmoid diverticulitis. It went untreated for a couple of days because I told the er Dr. it was probably the celiac and she didn't look at any thing else. Big mistake. two days later, the 2nd er Dr. got it right. I spent a week in the hospital on IV antibotics. I thought I was going to lose my colon. I have a colonoscopy scheduled for sept. 4th to see how much damage I have.

We need to stop blaming everything on the celiac! Sometimes it just isn't.

I hope you continue to do well

neesee

You've been tested for allergies, not celiac. You need to go to your family Dr. and ask for a celiac panel.

neesee

This is kind of interesting. I don't know how reliable it is however.

Open Original Shared Link

neesee

I've become frusterated with his subject so I'm going to bow out. At this point, I agree to disagree

As far as the op and her gluten-free kitchen, I think she should do what makes her comfortable. If that's a completely gluten-free kitchen and her family is in agreement, she should do it.

neesee

QUOTE (Fiddle-Faddle @ Aug 2 2008, 12:54 PM)

But that's like saying that people with fibromyalgia and IBS don't make antibodies to gluten. We know now that they they do, but nobody ever looked for them.

I would really like to see some websites that back up this statement. So far I can't find any. I prefer .gov or .edu. sites as they are the most reliable sources.

neesee

But that's like saying that people with fibromyalgia and IBS don't make antibodies to gluten. We know now that they they do, but nobody ever looked for them.

NOBODY HAS EVER DONE A STUDY LOOKING FOR GLUTEN ANTIBODIES IN TYPE 2 DIABETIC AND PCOS.

I'm not saying that gluten is the one and only cause of type 2 diabetes. But if it's not, it sure as heck has a strong link.

And given that women with PCOS are told to control their symptoms with a low-carb diet, and given how many of those symptoms have links to gluten intolerance, I think it's pretty clear that there's a link there, too. And given my own "miraculous recovery" from those symptoms just from going off gluten, I suspect it's more than just a link.

Can you explain why my PCOS (including insulin resistance) disappeared on a gluten-free diet when I am, if anything, eating more carbs than I did before going gluten-free?

Well, why did I develop pre diabetes after 20 years on a gluten-free diet? I think it's because I ate too many gluten-free carbs. When you are prone to insulin resistance, it doesn't matter where you get your carbs. Gluten or gluten-free. Diabetics have to eat low carb. Especially the type 2s.

Hey, I've been through this. Mom was type1 and dad was type 2. Now dh and my brother have type2. Their blood sugar readings are much better when they low carb it and lose weight and exercise. They plain got too heavy.

neesee

I had nausea, vomiting and diarrhea and a low grade fever with my diverticulitis. I also had a huge pocket of infection that showed on my cat scan.

neesee

The connection between type 1 diabetes and celiac is that they are both auto immune diseases. Type 2 is not. Type 2's don't make antibodies. Type 1's do. Women with pcos don't make antibodies either. They have insulin resistance.

neesee