Jordan Carlson
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Hello, I’ve been gluten free for over a year now. I now know and understand that I have been celiac my whole life and my body has been battling without me knowing. Wondering if this has happened to anyone else after diagnosis but I feel like my immune is system is stuck fighting. My mouth is always tingling, I always see stars in my vision, my heart i...
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Raw Meat Craving
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the info @knitty kitty! I really appreciate when people recommend things for me to try, it helps a lot! I will run this stuff by my doctor at my next appointment next week. It is also good to know I am not alone with the continued reactions though. It has been pretty difficult for me and has taken a bit of a toll on my mental... -
Raw Meat Craving
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take... -
Well, currently making my way through my first gluten reaction after being gluten free after my ednoscopy for about 2 and a half months. Mustve been some cross contamination in the food at the wedding I was at. Usually takes about 1-2 days for the reaction to reach its peak. Then the nausea gets pretty bad and end up having to take multiple trips to the...
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Does anyone else get muscle soreness and joint pain after eating popcorn? I thought maybe it was a fluke the first time it happened but I tested it out this past weekend and the day after it felt like I had the workout of a life time lol. No stomach pain or bloating, just the muscle soreness and joint pain. Anyone experience anything like this?
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Scott Adams reacted to a post in a topic:
Constant Hunger
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Scott Adams reacted to a post in a topic:
Hello everyone, i think ive found what is wrong with me!
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@Tjweston I second @trents caution about going gluten free prior to getting tested! Unfortunately to get the endoscopy to get the diagnosis for celiac disease, it took a full year from when I tested positive on the blood work for celiac to get in for the procedure. I went gluten free when I found out through the blood work I was potentially celiac as I...
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Constant Hunger
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Ginger38Yes, defenitely do some research to see if higher fat diet is suitable for you! If you have a history of high cholesterol I would talk to your doctor or health care provider prior to making any drastic changes. But for the beef, I keep it super simple and to me it is delicious! As I said prior, I cook my meat in some butter. Then as soon as I... -
Constant Hunger
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Ginger38 well since I am pretty new to this I have been experimenting with different ways of eating to see what makes me feel best. Over the past couple days I have been eating very similar to a carnivore type style diet and it has been working fantastic for me! So I am getting majority of my fats in a day from eggs and beef (although I always buy extra... -
Constant Hunger
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey @Ginger38! I tried out what @Scott Adams mentioned about adding some healthy fats in and its a huge help! Feel much better and I don't have that constant hunger feeling nearly as much. But I agree, the constant hunger is frustrating! Especially after you just ate a good sized meal! -
Biopsy Results
Jordan Carlson replied to Jordan Carlson's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds good! I will list by each biopsy the terms I do not under stand that were found: Gastric Lesion Biopsy: Foveolar Glandular Hyperplasia Duodenum: Villous Atrophy and Intraepithelial Lymphocytosis There was also mucosa found through out the duodenum, terminal ileum and colon biopsies. When looking online I saw each stage of celiac... -
Anyone on here farmiliar with stomach biopsy results and know the terminology well? I have the results of my biopsy and would like to know more in depth about. Such as what stage celiac disease I have. The resrouces and knowledge of celiac disease in my town is pretty slim so aside from the diagosis I did not get much information. If anyone can help, that...
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I know its a common symptom for the first little while when the stomach begins to absorb nutrients again, but wondering what the right thing to do is. I am eating a large amount of food (mostly protein and clean carbs like oats and rice) and I am feeling better than ever before! I am not gaining weight at all either. So I am assuming the correct thing to...
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Scott Adams reacted to a post in a topic:
Raw Meat Craving
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Raw Meat Craving
Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the reply @Scott Adams! I actually just started a extra strength multivitamin yesterday! I assumed the craving had something to do with a deficiency of some sort. Was thinking maybe even a protein deficiency since I am an active person. I will give the multi vitamin some time to work! -
Hello everyone! So I am on week 4 being 100% gluten free again. Long story short, I was back eating gluten for 3 weeks prior to my endoscopy to get the celiac diagnosis. Now that I have been gluten free for 4 weeks, I have a very strong craving for specifically raw meat haha (raw salmon, raw steak....etc). When I was eating gluten, I craved greasy and sugary...
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Thanks for the reply's @Scott Adams and @Beverage! I will try the recommendations you both have. Starting to learn that one of the hardest parts post diagnosis is the trial and error stage as its not as simple as just eliminating gluten. But in the end it will result in me feeling much better and living a better life so I am up to the challenge! Thanks guys...