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Jordan Carlson

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jordan Carlson

  1. Jordan Carlson
    Hello, I’ve been gluten free for over a year now. I now know and understand that I have been celiac my whole life and my body has been battling without me knowing. Wondering if this has happened to anyone else after diagnosis but I feel like my immune is system is stuck fighting. My mouth is always tingling, I always see stars in my vision, my heart i...
  2. Jordan Carlson
    Thanks for the info @knitty kitty! I really appreciate when people recommend things for me to try, it helps a lot! I will run this stuff by my doctor at my next appointment next week. It is also good to know I am not alone with the continued reactions though. It has been pretty difficult for me and has taken a bit of a toll on my mental...
  3. Jordan Carlson
    Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take...
  4. Jordan Carlson
    Well, currently making my way through my first gluten reaction after being gluten free after my ednoscopy for about 2 and a half months. Mustve been some cross contamination in the food at the wedding I was at. Usually takes about 1-2 days for the reaction to reach its peak. Then the nausea gets pretty bad and end up having to take multiple trips to the...
  5. Jordan Carlson
    Does anyone else get muscle soreness and joint pain after eating popcorn? I thought maybe it was a fluke the first time it happened but I tested it out this past weekend and the day after it felt like I had the workout of a life time lol. No stomach pain or bloating, just the muscle soreness and joint pain. Anyone experience anything like this?
  6. Jordan Carlson
    @Tjweston I second @trents caution about going gluten free prior to getting tested! Unfortunately to get the endoscopy to get the diagnosis for celiac disease, it took a full year from when I tested positive on the blood work for celiac to get in for the procedure. I went gluten free when I found out through the blood work I was potentially celiac as I...
  7. Jordan Carlson
    @Ginger38Yes, defenitely do some research to see if higher fat diet is suitable for you! If you have a history of high cholesterol I would talk to your doctor or health care provider prior to making any drastic changes. But for the beef, I keep it super simple and to me it is delicious! As I said prior, I cook my meat in some butter. Then as soon as I...
  8. Jordan Carlson
    @Ginger38 well since I am pretty new to this I have been experimenting with different ways of eating to see what makes me feel best. Over the past couple days I have been eating very similar to a carnivore type style diet and it has been working fantastic for me! So I am getting majority of my fats in a day from eggs and beef (although I always buy extra...
  9. Jordan Carlson
    Hey @Ginger38! I tried out what @Scott Adams mentioned about adding some healthy fats in and its a huge help! Feel much better and I don't have that constant hunger feeling nearly as much. But I agree, the constant hunger is frustrating! Especially after you just ate a good sized meal!
  10. Jordan Carlson
    Sounds good! I will list by each biopsy the terms I do not under stand that were found: Gastric Lesion Biopsy: Foveolar Glandular Hyperplasia Duodenum: Villous Atrophy and Intraepithelial Lymphocytosis There was also mucosa found through out the duodenum, terminal ileum and colon biopsies. When looking online I saw each stage of celiac...
  11. Jordan Carlson
    Anyone on here farmiliar with stomach biopsy results and know the terminology well? I have the results of my biopsy and would like to know more in depth about. Such as what stage celiac disease I have. The resrouces and knowledge of celiac disease in my town is pretty slim so aside from the diagosis I did not get much information. If anyone can help, that...
  12. Jordan Carlson
    I know its a common symptom for the first little while when the stomach begins to absorb nutrients again, but wondering what the right thing to do is. I am eating a large amount of food (mostly protein and clean carbs like oats and rice) and I am feeling better than ever before! I am not gaining weight at all either. So I am assuming the correct thing to...
  13. Jordan Carlson
    Thanks for the reply @Scott Adams! I actually just started a extra strength multivitamin yesterday! I assumed the craving had something to do with a deficiency of some sort. Was thinking maybe even a protein deficiency since I am an active person. I will give the multi vitamin some time to work!
  14. Jordan Carlson
    Hello everyone! So I am on week 4 being 100% gluten free again. Long story short, I was back eating gluten for 3 weeks prior to my endoscopy to get the celiac diagnosis. Now that I have been gluten free for 4 weeks, I have a very strong craving for specifically raw meat haha (raw salmon, raw steak....etc). When I was eating gluten, I craved greasy and sugary...
  15. Jordan Carlson
    Thanks for the reply's @Scott Adams and @Beverage! I will try the recommendations you both have. Starting to learn that one of the hardest parts post diagnosis is the trial and error stage as its not as simple as just eliminating gluten. But in the end it will result in me feeling much better and living a better life so I am up to the challenge! Thanks guys...
  16. Jordan Carlson
    Hello! Anyone else get a reaction from products containing yeast extract? Even if its claimed gluten free? Have been getting itchy rashes on my hands and arms after eating and the common ingredient in all the foods that have been causing this was the yeast extract. I am Canada based and it seems that the only gluten free foods that I tolerate well have the...
  17. Jordan Carlson
    Hello everyone! I recently just had my endoscopy/colonoscopy to confirm my celiac diagnosis. I also was diagnosed with chronic gastritis. I believe it would be considered Lymphocytic Gastritis as intraepithelial lymphocytes were present in my biopsy. But I am no doctor so please correct me if I am wrong! Anyways, looking for tips on how anyone else managed...
  18. Jordan Carlson
    Thank you very much for the info Scott! And the seafood and dairy products makes a lot of sense now. As much as the dermatitis herpetiformis (if that is what it is) would get better, It still has minor flare ups but I do eat a lot of seafood and do have milk here and there so it very well could be that.
  19. Jordan Carlson
    sorry, didn't realize the picture was so horrible lol. But yes to all of the above. The small darker areas in the photo are the little blisters on my hand.
  20. Jordan Carlson
    Hey Scott! I have experienced the vertigo many of times and know exactly what you’re talking about. This is a little different though. I guess a better way to put it is that it is a major change in blood pressure rather than heart rate.
  21. Jordan Carlson
    Is that what this is? I am newer to the celiac scene lol. Always thought it was eczema that would never end. But makes a lot of sense if it is dermatitis herpetiformis!
  22. Jordan Carlson
    Hey everyone! Wondering if anyone else experiences this. After eating a larger, my heart starts to pound to the point where I can feel my heart beat in my ears. Also experience heart palpitations along with it and usually an anxious feeling. Almost like my body has a massive stress response after the meal. Thinking maybe keeping meals smaller while my stomach...
  23. Jordan Carlson
    Very interesting. Thank you for sharing! I have my endoscopy/colonoscopy in about 2 and a half weeks to confirm celiac and also test for suspected inflammatory bowel disease so I have no idea the extent of the damage to my insides or anything like that. Will be interesting to see what comes of it. Thank you again!
  24. Jordan Carlson
    The Tissue Transglutaminase Ab IgA test normal range is 12 U/mL or less. And my result was 40.2 U/mL.
  25. Jordan Carlson
    Hey everyone! Just wondering if anyone else is comfortable comparing blood test results to mine. When I tested positive on the blood test (Tissue Transglutaminase Ab IgA) my result came back at 40.2 U/mL. I have read that some people have a much lower number than me and will get the endoscopy biopsy done and still have the disease present and get the celiac...
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