I am 3 months into a gluten free diet the first two months my energy was high, Pelvic pain was gone and my systemic inflammation disappeared. Over the past month I had brain fog when having dairy so my nutritionist recommended cutting it out as well as gluten-free oats. Long story short l, now I have brain fog that is absolutely debilitating within 10 minutes of eating any food even in small amounts and builds over an hour where it feels like I’m almost intoxicated. I can no longer work, can’t drive after I’ve eaten food and sometimes my body will be so exhausted after eating something as small as three bites of unseasoned, ground turkey that I have to sleep for four or five hours.
-I am not anemic, my vitamin d is fine, blood panels and cbc are good but it’s almost like my body can’t handle digesting food. Only time I can work is when I fast and eat zero food which doesn’t help because I work 16 hour shifts. My symptoms are trigger by all food, I tried plain rice, I tried a bite of strawberries, arugula, gluten-free, dairy free, Frutose free and a low fodmap diet. I have zero vili left and was diagnosed with stage 3C celiac disease in May, 2024. I was reading online about pancreatic enzymes and a condition called EPI. (exocrine pancreatic insufficiency (EPI). People with EPI don’t have enough pancreatic (digestive) enzymes to break down foods and absorb nutrients.) it’s common in 30 percent of people with celiac disease. Could that be it? Anyone have any tips or ideas?
-Side note I’m suppose to have a major spine surgery in 5 days. My nutritionist and primary doctor cleared me because my labs are good and all I have is debilitating brain fog, and chronic exhaustion only when consuming food. Would it be dangerous to still have surgery early in celiac recovery?
-Please throw your thoughts and suggestions out there. I need help brainstorming, it feels so isolating and lonely. Ps is it possible to get disability or can someone tell me how to start the process? I can’t keep fasting for 18 hours a day just to work. Thank you!
Chronic brain fog and fatigue with eating ANY food.
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
Hello,
I am 3 months into a gluten free diet the first two months my energy was high, Pelvic pain was gone and my systemic inflammation disappeared. Over the past month I had brain fog when having dairy so my nutritionist recommended cutting it out as well as gluten-free oats. Long story short l, now I have brain fog that is absolutely debilitating within 10 minutes of eating any food even in small amounts and builds over an hour where it feels like I’m almost intoxicated. I can no longer work, can’t drive after I’ve eaten food and sometimes my body will be so exhausted after eating something as small as three bites of unseasoned, ground turkey that I have to sleep for four or five hours.
-I am not anemic, my vitamin d is fine, blood panels and cbc are good but it’s almost like my body can’t handle digesting food. Only time I can work is when I fast and eat zero food which doesn’t help because I work 16 hour shifts. My symptoms are trigger by all food, I tried plain rice, I tried a bite of strawberries, arugula, gluten-free, dairy free, Frutose free and a low fodmap diet. I have zero vili left and was diagnosed with stage 3C celiac disease in May, 2024. I was reading online about pancreatic enzymes and a condition called EPI. (exocrine pancreatic insufficiency (EPI). People with EPI don’t have enough pancreatic (digestive) enzymes to break down foods and absorb nutrients.) it’s common in 30 percent of people with celiac disease. Could that be it? Anyone have any tips or ideas?
-Side note I’m suppose to have a major spine surgery in 5 days. My nutritionist and primary doctor cleared me because my labs are good and all I have is debilitating brain fog, and chronic exhaustion only when consuming food. Would it be dangerous to still have surgery early in celiac recovery?
-Please throw your thoughts and suggestions out there. I need help brainstorming, it feels so isolating and lonely. Ps is it possible to get disability or can someone tell me how to start the process? I can’t keep fasting for 18 hours a day just to work. Thank you!