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SunshineFace

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  1. Thank you for the insights/link, @trents! I'm glad you mentioned it; the article clarified some of the questions I had after watching a researcher interview on BeyondCeliac, talking about 'long-term immune T-cell scarring'. Exciting times for research though, with implications for related autoimmune conditions! And maybe making EGD testing in the future unnecessary...
  2. Yes @plumbago! You're right! I hadn't thought of that... Celiac may show up in the future! So if there is no confirmation of Celiac with current EGD, it could serve as a baseline for future testing.
  3. Hello @trents! May I ask the question in reverse? If I present at EGD with zero villous atrophy confirmed with multiple biopsies, that means I am either presenting as a non-Celiac OR I've eaten well enough for long enough to heal all remnants of Celiac-induced atrophy? Is that the goal of a Celiac eating a gluten-free diet? To be indistinguishable from a...
  4. Thanks again @Scott Adams! I pick up something new every time I read over these articles. I also wanted to share a link to Labcorp's current Celiac tests (as of Aug 2024); they have options for both patients with diets containing gluten and patients on a gluten-free diet! (This page is from the 'Provider' tab, with test panel numbers/descriptions...
  5. Yes, I was super excited to see all the Celiac Panels @RMJ, and then immediately overwhelmed because I have no idea what I'm ordering either! That helps a ton! And was exactly what I was looking for: a specific breakdown of which test(s) were done, which were ordered, and which ones can I order myself, so thank you for taking the time to spell it out! And...
  6. Hey all! Several testing questions, thank you in advance... I haven't drawn these yet and hoping to get clarification here first before I go! I've switched providers and new doc ordered something called "Celiac Disease Panel" blood-work. But in the meantime, I set up my new patient account w/Labcorp & noticed they have OnDemand testing, so I paid...
  7. Thanks for sharing @Scott Adams! Much appreciated... I'll be over here binge-reading every one! 🤓
  8. I appreciate the author starts off by talking about how we can think outside the box to put all the puzzle pieces together! I originally learned about oxalate while researching autism & high oxalate foods when my grandsons were diagnosed autistic a few years ago. Since they have food sensitivities, it made sense to look at all the dietary interventions...
  9. Thank you @Scott Adams for the links and the encouragement! And just to be sure I understand, the 6-8 weeks is only for bloodwork - as it takes a while for antibodies to build up, but they remain elevated for weeks after stopping consumption. And it sounds like bloodwork isn’t always that accurate? But only 2 weeks to show damage to vili verifiable o...
  10. Yes @Ginger38, this is a hard place to be when you can tolerate very little! I used to eat carbs ALL THE TIME. Like almost exclusively. This list you gave: "toast, corn dogs, pizza crusts, pizza rolls, soups” That was my diet for decades. Very little thought to proteins and fats. And when I had to change my diet for blood sugar reasons - it was only then I...
  11. @Jane07 I just found this collection of gluten-free recipes! Looks like many options, including vegan, lactose intolerant, etc and some with real cream & egg yolks! Have fun! 😋 https://flippindelicious.com/gluten-free-ice-cream-recipes/
  12. Hi @Ginger38! So sorry you are having to go thru this! It’s so frustrating!! I am new here so I still have a lot to learn about ‘glutening’ but I wanted to share my story in case it helps. I first changed up my diet due to pre-diabetes diagnosis last fall. (Celiac/Gluten intolerance was never on my mind) I kept testing multiple times a day, and I found out q...
  13. It’s the middle of summer where I live ☀️ and I found I still had an old ice cream maker so I’ve been making my own. Sometimes I’ll throw in fresh fruits and other times chocolate & nuts. Anyone else making ice cream or popsicles or other cool treats? 😎
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