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SunshineFace

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  1. icon SunshineFace reacted to a post in a topic: How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
  2. icon SunshineFace reacted to a post in a topic: How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
  3. icon SunshineFace reacted to a post in a topic: How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
  4. SunshineFace
    Thank you for the insights/link, @trents! I'm glad you mentioned it; the article clarified some of the questions I had after watching a researcher interview on BeyondCeliac, talking about 'long-term immune T-cell scarring'. Exciting times for research though, with implications for related autoimmune conditions! And maybe making EGD testing in the future unnecessary...
  5. SunshineFace
    Yes @plumbago! You're right! I hadn't thought of that... Celiac may show up in the future! So if there is no confirmation of Celiac with current EGD, it could serve as a baseline for future testing.
  6. SunshineFace started following Labcorp Celiac Testing for Providers vs. On Demand for Patients and How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
  7. SunshineFace
    Hello @trents! May I ask the question in reverse? If I present at EGD with zero villous atrophy confirmed with multiple biopsies, that means I am either presenting as a non-Celiac OR I've eaten well enough for long enough to heal all remnants of Celiac-induced atrophy? Is that the goal of a Celiac eating a gluten-free diet? To be indistinguishable from a...
  8. icon Scott Adams reacted to a post in a topic: Labcorp Celiac Testing for Providers vs. On Demand for Patients
  9. SunshineFace
    Thanks again @Scott Adams! I pick up something new every time I read over these articles. I also wanted to share a link to Labcorp's current Celiac tests (as of Aug 2024); they have options for both patients with diets containing gluten and patients on a gluten-free diet! (This page is from the 'Provider' tab, with test panel numbers/descriptions...
  10. icon Scott Adams reacted to a post in a topic: Labcorp Celiac Testing for Providers vs. On Demand for Patients
  11. SunshineFace
    Yes, I was super excited to see all the Celiac Panels @RMJ, and then immediately overwhelmed because I have no idea what I'm ordering either! That helps a ton! And was exactly what I was looking for: a specific breakdown of which test(s) were done, which were ordered, and which ones can I order myself, so thank you for taking the time to spell it out! And...
  12. SunshineFace
    Hey all! Several testing questions, thank you in advance... I haven't drawn these yet and hoping to get clarification here first before I go! I've switched providers and new doc ordered something called "Celiac Disease Panel" blood-work. But in the meantime, I set up my new patient account w/Labcorp & noticed they have OnDemand testing, so I paid...
  13. icon Scott Adams reacted to a comment: Dr. Rodney Ford is not Full of it!
  14. SunshineFace
    Thanks for sharing @Scott Adams! Much appreciated... I'll be over here binge-reading every one! 🤓
  15. icon SunshineFace reacted to a comment: Dr. Rodney Ford is not Full of it!
  16. icon SunshineFace reacted to an article: Authentic Mexican Gluten-Free Pico de Gallo
  17. icon SunshineFace reacted to a post in a topic: Which blood test to order to check levels
  18. icon SunshineFace reacted to an article: What Are the Symptoms of Celiac Disease?
  19. SunshineFace started following What is the Relationship Between Oxalate and Celiac Disease? and Dr. Rodney Ford is not Full of it!
  20. SunshineFace
    Here is Dr Ford's Ted Talk from 2014:
  21. SunshineFace
    I appreciate the author starts off by talking about how we can think outside the box to put all the puzzle pieces together! I originally learned about oxalate while researching autism & high oxalate foods when my grandsons were diagnosed autistic a few years ago. Since they have food sensitivities, it made sense to look at all the dietary interventions...
  22. icon SunshineFace reacted to an article: What is the Relationship Between Oxalate and Celiac Disease?
  23. icon Scott Adams reacted to a post in a topic: Inconclusive Newbie Test Data?
  24. icon SunshineFace reacted to an article: Interpretation of Celiac Disease Blood Test Results
  25. SunshineFace
    YaY!! Thank you!! 🥳
  26. SunshineFace
    Thank you @Scott Adams for the links and the encouragement! And just to be sure I understand, the 6-8 weeks is only for bloodwork - as it takes a while for antibodies to build up, but they remain elevated for weeks after stopping consumption. And it sounds like bloodwork isn’t always that accurate? But only 2 weeks to show damage to vili verifiable o...
  27. icon SunshineFace reacted to a post in a topic: Why corn intolerant after 4 mths gluten free?
  28. icon Scott Adams reacted to a post in a topic: Gluten Free Chocolate
  29. SunshineFace
    Yes @Ginger38, this is a hard place to be when you can tolerate very little! I used to eat carbs ALL THE TIME. Like almost exclusively. This list you gave: "toast, corn dogs, pizza crusts, pizza rolls, soups” That was my diet for decades. Very little thought to proteins and fats. And when I had to change my diet for blood sugar reasons - it was only then I...
  30. SunshineFace
    @Jane07 I just found this collection of gluten-free recipes! Looks like many options, including vegan, lactose intolerant, etc and some with real cream & egg yolks! Have fun! 😋 https://flippindelicious.com/gluten-free-ice-cream-recipes/
  31. SunshineFace started following Gluten Free Chocolate and Gluten Free and Diabetes - This is a NIGHTMARE
  32. SunshineFace
    Hi @Ginger38! So sorry you are having to go thru this! It’s so frustrating!! I am new here so I still have a lot to learn about ‘glutening’ but I wanted to share my story in case it helps. I first changed up my diet due to pre-diabetes diagnosis last fall. (Celiac/Gluten intolerance was never on my mind) I kept testing multiple times a day, and I found out q...
  33. SunshineFace
    It’s the middle of summer where I live ☀️ and I found I still had an old ice cream maker so I’ve been making my own. Sometimes I’ll throw in fresh fruits and other times chocolate & nuts. Anyone else making ice cream or popsicles or other cool treats? 😎
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