Wends
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Wends
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Hi from the UK also (up north). Have you heard of the Coeliac and gluten-related disorders ( neurological) researchers / specialists at NHS Sheffield Hospital and Uni of Sheffield? They are leading the way on the blood test for TTG6 (TTG2 is related to Coeliac disease). TTG6 is specific for neurological and gluten ataxia. These patients may or may not...
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Hi. Yes villous atrophy can be caused by something else. In children it is well known to be caused by milk protein and soy protein as well as gluten, in those susceptible. It can also be caused and temporary to a gut infection in some. In the context of celiac disease it’s possible you may be unknowingly ingesting gluten - and that’s always what doctors wil...
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Sorry just getting a hang of how the forum works. My reply to Ann. is the same, and Hope is helpful to you! But should add gastrointestinal disorders EGIDs and for example chronic gastritis can benefit from figuring out the possible culprit food/s. In addition to avoiding irritating substances, spices, alcohol, tomatoes, citrus, vinegar, coffee, chocolate...
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Hi. I’m new to the forum. I posted on someone else’s yesterday about possible EGIDs esophagitis being the most common. I have family who sufferwith it. I too get the clogged throat but would say mildly and I manage by knowing certain things that set it off, and predominantly follow a restricted whole food diet in addition to gluten free. It can be antigen/all...
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Hi. Sorry to hear. I’m in the UK and have a bit of personal experience of the diagnosis of gastrointestinal disorders. Unfortunately there are many gastrointestinal disorders that can cause similar symptoms and really need to be ruled out under specialist gastroenterology care. First of all did you have an endoscopy with the dx of reflux and nothing e...
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lol I’ve done a few elimination and reintroduction diets over a number of years! Initially I did the York test for intolerance too, that showed milk, egg yolk and egg white, yeast and gluten. I was on a gluten free diet but not strict because of bloating and pain mostly. - I rarely had bread etc. but would eat round things so was really a low gluten d...
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Hi John, yes they are the alleles currently known that are associated with risk of Coeliac disease. So a useful test to know your susceptibility, including the newer DQ7 rarer allele. I’m personally interested in the newer HLA-DQ7, as wasn’t tested for that on the NHS; they test for the standard High Risk alleles - HLA-DQA1, HLA-DQB1 (DQ2.5 and...
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Thank you, rageagainstthewheat. Love the name by the way! I’m a lot better than I was touching wood. IBS flares still even though follow strict wheat/gluten free. I try to follow low histamine diet and carb restricted diet which seems best for me personally, but it’s taken years to figure out. There’s a lot of gluten free certified foods I cannot tolerate. I ea...
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Hi. I’m new on here too. It’s a tough one when you don’t have an absolute diagnosis. Having the gene doesnt diagnose you’re correct only points to susceptiblity So many gastrointestinal conditions can cause similar symptoms, unfortunately. It took over 15 years for my unconfirmed diagnosis, personally. I was gluten free for IBS and female health issues as reco...
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Hi John1. My first reply was moderated because I mentioned a different company that test to the one you asked about. Not sure why. I’m newbie on here too! Anyway. And the one I was referring to is what lead me to research and read recent papers on Pubmed on the HLADQ7 allele, which is rarer. I’m awaiting results. The markers are quoted from a d...
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I’ve done quite a bit of research reading and the science is ongoing, there’s new genes associated with Coeliac being discovered. It may come down to genetic ancestry as recently HLADQ7 is a new one that is not tested for in the standard test. This may account for the less than 1% of coeliacs without DQ2 or DQ8 high risk alleles. It’s true most Northern Europ...
