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KimMS

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  1. Another question related to lowering antibody levels and gluten-free eating: What are thoughts about celiacs and shared kitchens? I and one of my children have celiac but the other two family members don't. We have removed all gluten flours from our kitchen, and we have separate toasters. Most of our meals are gluten-free, but the other two family members...
  2. I'm sorry if this is addressed elsewhere, but I couldn't find it! It seems like from this thread that people generally avoid Starbucks other than black coffee. Is this because of the cross contact risk? I'm wondering about things like flat whites or lattes that are only milk and coffee. Do you recommend avoiding altogether?
  3. Thank you everyone for your responses. Quick clarifying question (if there is an answer for this!): If my gliadin antibody iga is positive but it has been trending down (rather than going down and then back up), does it necessarily mean I have had gluten exposure? Or could it mean that I haven't been on a gluten-free diet long enough to get it down to normal...
  4. Thanks for your reply. IvIg is Intravenous Immuno globulin (immunotherapy used often for autoimmune diseases). Longer story but in 2022 doctors realized that several neurological symptoms were due to the fact that I lost part of my cerebellum (showed up on MRI). So they ran lots of tests to figure out what was causing it. The only thing that showed up positive...
  5. Hello, I was diagnosed with gluten ataxia and celiac about 18 months ago. I have been on a strict gluten-free diet (only gluten intake has been accidental). I don't have digestive symptoms but I have neurological symptoms. These have improved but not fully resolved (and might never). My doctor wants me to try IvIg treatments. I have read that before...
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