JForman

Scott, thank you SO MUCH for this!! She has been through so much in the last three years as we've tried to track down answers. This language will definitely help me help her to reframe.

We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself...

We eat beef multiple times a week and eggs nearly daily. I will look into choline deficiency though! Thanks! Thanks so much!

I just realized we had labs from another place as well. Not sure if any of these is the "total IGA" you mentioned: Jan 2023 - TISSUE TRANSGLUTAMINASE AB, IGA was 17.5 (15 considered high) Jan 2023 - Immunoglobulin A was 90 (range is 22-140)

It's funny you say that because as I was typing about my potential issues with gluten, I thought "wait. Why haven't I gotten tested." Honestly, it comes down to money and time. We have been pouring tens of thousands into her care (We don't have traditional medical insurance). And I have been off gluten for so long and have such quick and noticeable reactions...

Thanks so much. I will definitely look into this.

Thank for you such a lengthy response! She has been on gluten (eating whatever) for quite some time, and was when we did the scope after the first round of labs. Lately, I’ve been feeling a bit “crazy,” after so many doctors have been unable to find a root cause for her troubles. Your insight is helping me feel less so. I do have NCGS. Or I sup...

Hi all, desperate mama here. It's been 2 years of doctors for us and our now 6 year old. I'll try and keep the story brief. Essentially, she is plagued with constipation despite a relatively well rounded diet. GI's initial answer was miralax daily, but they did run celiac labs. Initially (June 2023) they came back as: Deamidated Gliadin Abs...