sh00148

Thank you. Yes I’d looked into both of these causes. My only thoughts on a triggering event were when my daughter was born and she had breathing difficulties so was in NICU. It’s all quite fascinating. My husband shows signs of celiac. Low immune system, b12 deficiency, peeling skin and more recently severe and intermittent allergic rhinitis. ...

Thank you. This was my thinking too. My son is actually undergoing celiac testing now too as he has been experiencing digestive issues most of his life at 5 years old. Not constipation, more loose bowels, flatulence etc. In a very strange way, I’m hoping that his will come back positive too so that we get some answers and can actually start to help h...

This, I do not know. She was diagnosed after almost daily vomiting in the evening in June/July. Her X-ray showed she was back up all the way up her digestive tract. Even then, she was pooing daily. Possibly a delay, yes. I don’t know. It’s all a mystery, but the celiac disease must be causing this.

Thank you. I’ve emailed PALs again tonight requesting relatively urgent referral. I can’t stand the suffering for her anymore. I’m going to try and do the movicol in the morning from now on like you suggest as it does seem to bother her in the evening.

So our local testing says anything under 5 was normal. 5-10 required further blood tests and 10+ meant celiac is very likely and to refer to gastro. My daughter’s was 120. The paediatrician said it was some of the highest results she’d ever seen. The more I read on here the more I wonder whether we’ve been dealing with the celiac the whole time ...

Thank you again. We only upped the movicol due to the vomiting starting again. It’s been 3 times in the last two weeks. No other symptoms. I’m just so fed up of the waiting and I just want her to get better.

Sorry to clarify, my daughter is two.

Thank you so much for replying. Tonight, we only did one which is her usual maintenance dose and then immediately after she vomited. My gut tells me it’s not the constipation. I have been waiting 3 weeks for a referral since her initial hospital appointment. I contacted PALs yesterday and the paediatrics department called but seemed clueless about h...

In our experience, yes. My daughter has recently been diagnosed and these are her main symptoms as well as a bloated tummy. Out of interest what’s the vomiting like? Is it intermittent? Just one episode? Day or night?

Hi there, my daughter has been tested for celiac and in her initial blood tests she came up as a clear positive of 120+. We are still awaiting an appointment with the gastro team so are currently following a normal diet. Her diagnosis came about as she was intermittently vomiting and it turned out that she had severe fecal impaction all the way...