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JA917

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  1. icon Beverage reacted to a post in a topic: A year and a half of test confusion...
  2. icon Beverage reacted to a post in a topic: My 5 months of Struggle
  3. JA917 started following A year and a half of test confusion... , How many grams is there in one slice of wheat bread? , Advantages vs. Disadvantages of having an official Celiac diagnosis and 1 other
  4. JA917
    If I'm not mistaken, you need to count by the grams of GLUTEN, not the gram weight of the bread. So, instead of counting each slice of bread as 35 grams, it would be counted as 2 grams, so that's why the recommendation is 5 slices a day = 10 grams. One of the moderators can correct me if I'm wrong on that!
  5. JA917
    Question re: life/health insurance: if you're already under these policies, do you have to notify them if you receive an official diagnosis, or is that only for new policies? I have had two active term life insurance policies for many years that I pay a set amount into. And my employer covers my health insurance. So, do I need to let them both know if...
  6. JA917
    I'm new here so I'm not sure if I'm allowed to recommend doctors? But I am in Manhattan and see Dr. Lauren Schwartz at Manhattan Gastroenterology. I am still in the process of (potentially) being diagnosed and she has been wonderful. She has experience in Celiac and has a very calming bedside manner. I feel confident I'll get the right diagnosis with...
  7. icon knitty kitty reacted to a post in a topic: A year and a half of test confusion...
  8. JA917
    I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
  9. icon Scott Adams reacted to a post in a topic: A year and a half of test confusion...
  10. JA917
    Thank you. I certainly take it seriously, no matter what my diagnosis is, and I do a lot of my own research also. I just want to make sure I'm doing everything "right" as much as I can without jeopardizing any test result accuracy since this may be my last shot at getting an official diagnosis since I plan to go fully gluten-free afterwards! Yup...
  11. JA917
    I am actually in the middle of this article currently already! Thank you. This website is extraordinarily helpful.
  12. JA917
    Gotcha. I'll give 100% gluten-free a whirl after my testing concludes. I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to...
  13. JA917
    Thank you! I think what I'm currently worried about is, provided that my capsule endoscopy is negative and NCGS is then presumed, how to get a Celiac diagnosis down the road if I do go gluten free now and find relief (without worrying about cross contamination). The gluten challenge seems like such a nightmare! But, if my test results do indicate NCGS...
  14. JA917
    Thank you for your response! I am actually genuinely looking forward to removing gluten (after all my testing is done) to see how I feel... My remaining question for you is: Are positive antibodies ever seen with NCGS? My understanding was that those only show up with Celiac since NCGS doesn't involve the same type of immune response as Celiac. But I...
  15. JA917
    Hi all, I've really been on a rollercoaster journey the past year and a half while trying to narrow down whether I have Celiac or not. I was hoping that if I can give you my (potential) evidence for Celiac vs. potential evidence against, you all can weigh in on what you think? FOR: -Positive for one Celiac gene (DQ2). -Chronic reflux...
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