Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Kate Murray

Advanced Members
  • Posts

    8
  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kate Murray

  1. @trents no worries. Agree, I think a study on this would be interesting. My daughter is DQ2.2 (homozygous).
  2. @trents I think you misinterpreted my intention with that statement, I was indeed differentiating between people who truly have celiacs disease (aka all the things you mentioned, biopsy, elevated TTG, genetic markers) vs gluten sensitivity. I was merely intending to say that in my experience of knowing people with gluten sensitivity, they seem to tolerate...
  3. Hi @knitty kitty MCAS and SIBO were both tested for and ruled out. Short term she was treated with steroids and high doses of antihistamines but we elected to discontinue that protocol because the side effects of adding more medication was not the answer for her sensitive body. As an example of how we began to discover and isolate “natural flavor”: In her...
  4. @knitty kittythank you, and yes, tryptase levels were measured as part of her reaction to look at or rule out MCAS. In fact, many, many additional blood tests and other tests were run for a variety of autoimmune reactions. After keeping a highly detailed food and symptom log for several months, the “hidden” gluten exposure was still found to be the ultimate cul...
  5. @trents specific instance? I am the mother of an 18 year old, who I personally drove to the ER on 6 separate occasions, so quite literally yes, I’ve got examples. I’m not interested in a back and forth about the pain and suffering my family has experienced, what I am interested in is bringing awareness to the dangers of trusted websites which are supposed to ...
  6. @trents and the sad reality is......it's not always disclosed.
  7. @trents Comment wasn't really for me, it was to bring transparency to the way this article is written because it presumes that all of the above referenced mainstream mayo (and other condiments) are safe for celiacs, and the reality is, they might not be. It is my opinion that forums should be clear and transparent. Many natural flavors are derived from wheat...
  8. Hello Jefferson, thanks for this article about gluten free mayo. I have some thoughts because I am seeking a truly gluten free mayo and still have yet to find one. While years ago many of the ingredients were simple, I am finding that because “natural flavor” is contained in the ingredients of most of these brands, it cannot truly be considered gluten fre...
×
×
  • Create New...