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KDeL

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KDeL

  1. oh wow that's so interesting! if I do re-scope, I will try to eat gluten more as well. when I do its super light. so maybe trying to keep that consistent for a while then the scope. plus i want to still do the genetic testing to rule it out. that would be so easy if that is negative then I for sure don't have it.
  2. so all this info has been really helpful... thank you! I recently tested again and was IGA negative for celiac, but further testing says I am positive for one of the variants that is associated with celiac. (HLA DQ8) also says value 1 and 3 for HLA DQA1, but idk what that means. Anyway, now they are suggesting repeat scope. sometimes gluten makes...
  3. so much to it. the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac? I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac.
  4. That all makes sense thank you. I was within normal ranges - a little on the lower end. So, the NCGS would still show positive biopsy?
  5. Thank you both... yes it's a big mystery and seems so inconclusive. However the biopsy is a huge piece and my history of symptoms. I agree too, that the on and off of eating gluten-free probably messes with the tests. I recently had IGA SERUM (147) and TTG IGA ANTIBODY (>1.23) and had been eating gluten-free for about 6 days. Prior to that a...
  6. For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac...
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