lizzie42
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Hi, I posted before about my 3 year olds diagnoses. Thank you so much for your helpful responses! We are getting her brother (age 5) and sister (age 1) tested through the ASK program (so it takes awhile). My husband and I are getting tested also. My question is this - if my 1 year old tests positive (I think she will) and I don't (likely...
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New diagnosis for 3 year old. Help!
lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
Thank you for all your help! We agreed with the pediatrician that if further testing is necessary we will reintroduce. Given all the evidence I would never put her out for an endoscopy even if recommended by the GI. So today I'm purging the kitchen and cleaning. -
New diagnosis for 3 year old. Help!
lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
Thank you! Hers were much higher than 10x plus positive ema. Plus anemia, rash, low vitamin d. The GI appointment isn't till middle of April but the pediatrician said to go ahead and stop gluten as there is no question. We went ahead and she hasn't had gluten for about 36 hours. This morning her rash wasn't blistery for the first morning since it started... -
New diagnosis for 3 year old. Help!
lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
Thank you! That's so encouraging. We are planning to go 100 percent gluten-free at home apart from continuing to feed the other kids gluten till they get their tests. I assume that if you have zero gluten in the kitchen eventually cross contamination ends! It does seem overwhelming at first! Once they've been gluten free for awhile is it obvious... -
New diagnosis for 3 year old. Help!
lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
Thank you! This is helpful. I actually read her results wrong. It looks like her tTG test was just higher than the test goes (it only goes up to 100 and hers was higher than that so it just said greater than 100 and 0-3 would have been normal). And the 109 was a different iga test (immunoglobulin A, Qn, Serum). The ema was just a straight positive. I think... -
New diagnosis for 3 year old. Help!
lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
It was the tTG iga. The first test the range was that it needed to be under .05 and hers was .9 The repeat was a different lab and it said normal was 0-3 and hers was 109. The first test was part of a free study our DR recommended be celiac seemed unlikely at the time. Of course now it all comes together! So hers would have been 18x the upper limit on... -
My 3yo was just diagnosed after months of iron supplements barely bringing up her ferritin. I say diagnosed but it's not official yet. Her tTG was 109, her ema was positive. Also she has a vitamin d deficiency in addition to the anemia. She also has the rash. It's been a rough road the last year and a half with her behavior and health and I'm relieved to...