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Taylor King

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  1. icon cyclinglady reacted to a post in a topic: Gluten Challenge
  2. Taylor King
    Thank you for your responses! I still haven't tried gluten. Too risky right now with the pandemic. I do still want to pursue a second opinion, b/c there are too many grey areas with my Dx.
  3. Taylor King
    Oh! The thought didn't even cross my mind that you were doubting my MCAS Dx! I was explaining more about my testing since that is a potential issue for you. There are specialists who will treat for MCAS even if the patient's test results come back negative, due to the symptoms. It's based on the many false negatives that occur. I was really surprised mine...
  4. Taylor King
    I will add, I definitely suggest exploring a diagnosis for MCAS with a doctor who really understands it. Even if you don't pursue treatment. Also, there are great webinars online to learn more about it. It impacts more than we realize and they are learning so much. It's only been known about for about 10 years. As far as not tolerating NSAIDs, it may...
  5. Taylor King
    I had hives, mostly from stress. I also am really sensitive to smells. I was diagnosed via bloodwork and 24 hour urine collection. What's weird, is I felt totally fine during the test. I did not feel like I was reacting to something or having a flare. Later, I had a genetic test by the Gene by Gene to see if I have extra tryptase genes. I have 1 extra...
  6. Taylor King
    Oh I'm sorry about your thyroid. My doctors have wanted to remove mine for years, but I have refused. I also want to add that in the entire time I've been gluten free, I've never felt I was glutened. I can't imagine that I have been 100% perfect with CC such a possibility. Again, it leads to doubt that I actually have Celiac Disease.
  7. Taylor King
    Oh! I should add that going gluten free has had no impact on my thyroid disease. Same dose of medication I've been on for years (I still have my thyroid).
  8. Taylor King
    Good point about autoimmune disease being linked. I have RA and Graves. Wow. Sorry to hear about your health issues. Ok. So right before I had an endoscopy I was diagnosed and started treatment for MCAS by an immunologist. Over a year later, my GI doctor admitted that he actually believes my symptoms that led me to him were actually caused by MCAS (I...
  9. Taylor King
    I was diagnosed with celiac disease and have been gluten-free for about 19 months. My story is complicated and, as a result, I have doubts about my diagnosis. I asked to do a gluten challenge. My doctor said that if I do a gluten challenge I run the risk of staying sick even if I go back to gluten free. I am looking for second opinion about the possible...
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