hayley3
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These are the tests the VA is doing?
hayley3 replied to hayley3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been trying since 2006 to fix my microbiome. I knew something was off. I was dx'd with SIBO by endoscopy. But now that I know I have celiac, that explains why I never could get better, no matter what I did even water fasting which did help briefly but then I'd eat wheat again. -
Advice please before I see dr again
hayley3 replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
Wow, can't believe they can't figure that out with the swelling. I have a rare disorder called Erythromelalgia, and it causes blood pooling in the extremities...it took me years to diagnose myself because the doctors were clueless. -
Advice please before I see dr again
hayley3 replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
It looks like you have two things going on, well 3 with the bruising. I had my rashes biopsied previously and they came back all sorts of strange things. Finally I went in there asking for a celiac biopsy..Of course they wouldn't actually do the celiac biopsy which is taking an adjacent sample but they did biopsy it..and by some miracle it came back dermatitis... -
Scott Adams reacted to a post in a topic:
Advice please before I see dr again
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Advice please before I see dr again
hayley3 replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
I know this is a late comment to this post but I hope you have something figured out by now. All that bruising looks bad. -
hayley3 reacted to a post in a topic:
Advice please before I see dr again
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These are the tests the VA is doing?
hayley3 replied to hayley3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks...I was hoping a healed stomach could process the tyramine better. -
It's a tyramine buildup. I lack the enzymes on my lining to digest the tyramine.
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Scott Adams reacted to a post in a topic:
Low MCHC
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These are the tests the VA is doing?
hayley3 replied to hayley3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis. -
Endomysial AB, IgA Immunoglobulin A, QN Tissue Transglutaminase IgA Anti-Gliadin Profile If the Endomysial test comes back negative does that negate the positive biopsy?
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@knitty kitty Thanks and yes, I"m taking a Dr Berg Vit D3 with K2. My house is full of vitamin bottles, taking all of them may have delayed my diagnosis , in addition to doing water fasting to heal my SIBO. I'll check the Life Extension Brand out..I currently take Solaray. The smell actually turns my stomach, I"m not sure what it is about these B...
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I read that too, that it needs to be at least in the middle of the range so when I saw that my level was only raised to 21, I started buying my own Vitamin D from Amazon. When I got cracks in the corners of my mouth, I was taking Vitamin B complex but something in there has a horrible smell with a horrible burp aftertaste. I need to find a different one...
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What is the time limit?, for instance if you have misspellings...how long do you have to edit the post. I can spell but my brain doesn't catch them til later when I'm re-reading.
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The Endocrinologist gave me 50,000 iu for 2 weeks and that was it. So I started taking it on my own which finally helped it to rise. I took it a full year before it got to 50 and that helped me a lot. No nutritionists at the VA. But I still have a lot of muscle weakness and my ana is 1:640 which means my autoimmune stuff is active. Derm clinic has offered...
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All those are fine, thanks.
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I've never seen a ferritin test in the labs done. My Vitamin D was 4 so I ask to have that one monitored.
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I read there's a time limit but it must be only a few minutes cause I can't edit this one either.