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hayley3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by hayley3

  1. hayley3
    I've been trying since 2006 to fix my microbiome. I knew something was off. I was dx'd with SIBO by endoscopy. But now that I know I have celiac, that explains why I never could get better, no matter what I did even water fasting which did help briefly but then I'd eat wheat again.
  2. hayley3
    Wow, can't believe they can't figure that out with the swelling. I have a rare disorder called Erythromelalgia, and it causes blood pooling in the extremities...it took me years to diagnose myself because the doctors were clueless.
  3. hayley3
    It looks like you have two things going on, well 3 with the bruising. I had my rashes biopsied previously and they came back all sorts of strange things. Finally I went in there asking for a celiac biopsy..Of course they wouldn't actually do the celiac biopsy which is taking an adjacent sample but they did biopsy it..and by some miracle it came back dermatitis...
  4. hayley3
    I know this is a late comment to this post but I hope you have something figured out by now. All that bruising looks bad.
  5. hayley3
    Thanks...I was hoping a healed stomach could process the tyramine better.
  6. hayley3
    It's a tyramine buildup. I lack the enzymes on my lining to digest the tyramine.
  7. hayley3
    Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.
  8. hayley3
    Endomysial AB, IgA Immunoglobulin A, QN Tissue Transglutaminase IgA Anti-Gliadin Profile If the Endomysial test comes back negative does that negate the positive biopsy?
  9. hayley3
    @knitty kitty Thanks and yes, I"m taking a Dr Berg Vit D3 with K2. My house is full of vitamin bottles, taking all of them may have delayed my diagnosis , in addition to doing water fasting to heal my SIBO. I'll check the Life Extension Brand out..I currently take Solaray. The smell actually turns my stomach, I"m not sure what it is about these B...
  10. hayley3
    I read that too, that it needs to be at least in the middle of the range so when I saw that my level was only raised to 21, I started buying my own Vitamin D from Amazon. When I got cracks in the corners of my mouth, I was taking Vitamin B complex but something in there has a horrible smell with a horrible burp aftertaste. I need to find a different one...
  11. hayley3
    What is the time limit?, for instance if you have misspellings...how long do you have to edit the post. I can spell but my brain doesn't catch them til later when I'm re-reading.
  12. hayley3
    The Endocrinologist gave me 50,000 iu for 2 weeks and that was it. So I started taking it on my own which finally helped it to rise. I took it a full year before it got to 50 and that helped me a lot. No nutritionists at the VA. But I still have a lot of muscle weakness and my ana is 1:640 which means my autoimmune stuff is active. Derm clinic has offered...
  13. hayley3
    All those are fine, thanks.
  14. hayley3
    I've never seen a ferritin test in the labs done. My Vitamin D was 4 so I ask to have that one monitored.
  15. hayley3
    I read there's a time limit but it must be only a few minutes cause I can't edit this one either.
  16. hayley3
    I can't seem to be able to.
  17. hayley3
    After doing a bit of research, the MCHC is meaningless, so not sure why it's on the lab work.
  18. hayley3
    So for years I've had a low MCHC, but the doctors never mentioned it. It was not super low (just out of range) so I'm figuring that is why.....but it bothers me that no one ever questioned it, especially when I had low WBC, and low Vit D. I take vitamins which I guess also disguised some issues. I had cracked lip corners so I took a B complex. I take...
  19. hayley3
    Chiggerex cream is helpful.
  20. hayley3
    I signed up here in 2007 and just recently pushed to have my rash biopsied and it finally showed as Dermatitis Herpetiformis, It took me 17 years to get dx'd and I'm sure I had the rash before 2007.
  21. hayley3
    I use Chiggerex cream found at Walmart. I just had the biopsy done and they would not do it adjacent to the rash, but mine did come back positive. Miracle that is.
  22. hayley3
    Interesting... I did read once that potato chips were the worst junk food that you can eat because they are fried at such a high temp.
  23. hayley3
    I bought a blood sugar meter and ate some gluten free pancakes, and my blood sugar goes up to 185 and then drops to 50, but the doctors say I'm fine.
  24. hayley3
    That's very possible...the corn. Corn chips and popcorn are a definite no-no for me but then I always thought it was the rise in blood sugar, although I'm not diabetic, I do have blood sugar issues. I do have dairy allergies and I can't eat sugar. I have the celiac gene but they say no celiac, although I do have SIBO. It sucks.
  25. hayley3
    Wouldn't they have to add that as an ingredient if sulfites were used? I also considered that potato chips are high glycemic and raises my blood sugar. Anyway, I just ate potato chips and here I am with a sinus infection, so it's still an ongoing issue.
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