Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

GFinDC

Advanced Members
 View Profile  See their activity

  • Posts

    6,047

  • Joined

  • Last visited

  • Days Won

    112

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi, Well, you won't be able to get an accurate celiac disease test since you haven't been eating gluten. If you eat some daily gluten (doesn't have to be much) for 12 weeks you can get the blood antibodies tests. If you eat gluten for 2 weeks you can get the endoscopy test. But first I think you should search for a good celiac aware doctor to talk...
  2. GFinDC
    Hi not crazy person! No, having symptoms that a doctor can't explain does not make you crazy. It does show what many of us learned by hard experience, that many doctors are not well versed in celiac symptoms and diagnosis. But, here's the rub. you can't be accurately tested for celiac disease if you haven't been eating gluten for 12 weeks before...
  3. GFinDC
    Hi Taylor King. Something else you could do is get the gene tests for celiac disease. About 30% of people have one of the genes for celiac disease, but only 1% or so actually develop celiac disease. So the gene test isn't a great tool for diagnosing celiac. But it does indicate if you are in the pool of possible celiacs. That might be useful to know...
  4. GFinDC
    Right, symptoms and damage are two different things. @mikeymike, Silent celiac is when a person has no symptoms but still has celiac disease. That situation could last for years until the person develops nutrient deficiencies that cause illness, or joint or skin symptoms, or brain damage (ataxia), or just plain dies. There was an article a while...
  5. GFinDC
    Hi, The onset of celiac symptoms can vary with people. Actually, people may have no GI symptoms when diagnosed. But they may have neurological, skin, or joint issues. All celiac disease testing requires the person to be eating wheat daily for 2 to 8 weeks before the test. The blood antibodies take the most time. the endoscopy takes less. Stopping...
  6. GFinDC
    Hi, Sounds like you are willing to be more strict with the diet. That's good, and necessary whether you have DH or just celiac. If you do go strictly gluten-free now and your DH like symptoms go away, that should be enough to convince you to stay strictly gluten-free IMHO. I suggest you don't do a gluten challenge for DH testing. If you read though...
  7. GFinDC
    Hi Chrismark, Gluten doesn't stay in the body for long. It comes out in the stool at some point. I think what you mean is that you are still having an immune reaction or GI symptoms? The immune systems reactions can go on for weeks to months depending on the person. All it takes is a tiny amount of gluten to keep the immune system revved up and attacking...
  8. GFinDC
    So that's what's makes me grouchy! There is an old thread called anger. quick temper, depression on the forum. and others along the same line. Lots of people have reported depression and anxiety.
  9. GFinDC
    Hi, Yes, celiac can cause malabsorption of nutrients and that can cause deficiency in vitamins and minerals. Please don't stop eating gluten until all the celiac testing is completed. Usually they do a blood draw first for antibody tests and then an endoscopy later for intestinal samples. The testing doesn't give accurate results if you stop eating...
  10. GFinDC
    I am assuming you are going to an MD, not an alternative medical person? Gluten allergy is a term favored by the alternative medical people. They tend to also favor getting money from people for dubious treatments. Anyhow, an MD might call celiac a gluten allergy just to make it easier for a non-medical person to understand I guess. But celiac disease...
  11. GFinDC
    Mine are because I only buy ones that are gluten-free. You should really do the same IMHO if you are trying to eat gluten-free. I can tell you that plain Hershey's chocolate syrup is gluten-free in the USA. In a major effort not to come off as a total Richard-head I am posting in a link to Hershey's website. They have a nice disclaimer on gluten and...
  12. GFinDC
    Do you eat oats? Some of react to oats like we do wheat, rye and barley.
  13. GFinDC
    Hi, Lactose intolerance is a symptom of celiac disease. Celiac damage stops the vili from making lactase, an enzyme we need to digest dairy. If you do have DH, you should probably see a dermatologist. DH can be hard to detect in blood tests. So they do a biopsy of skin near a lesion but not on it. DH is a very itchy rash and usually appears symmetrically...
  14. GFinDC
    If you want to get tested for celiac disease you need to eat gluten daily for 12 weeks. The tests check levels of antibodies to gliaden a protein in wheat. If you aren't eating gluten regularly the antibody levels won't be consistent in the bloodstream for accurate testing. The usual destination for the antibodies is the gut where they do their "work"...
  15. GFinDC
    You can also try B vitamins for nerve issues. Iron is absorbed better when taken with some lemon juice in a meal. It can take a long time to recover iron levels in the body.
  16. GFinDC
    Hi Jwrig002, Welcome to the forum! You are asking perfectly reasonable questions for someone who isn't familiar with celiac disease. Some things to know are: celiac disease is an AI (auto-immune condition), the damage it causes tends to increase over untreated time, and continued damage can lead to other AI conditions developing. Also, people...
  17. GFinDC
    There are some people who flunk the blood antibodies tests but still have celiac disease. I think it's about 10% of tested people. There are also people with DH (dermatitis herpetiformis) that are best tested by a skin biopsy, not the endoscopy. DH is a skin condition that only people with celiac disease get. There are many more people with gluten...
  18. GFinDC
    Hi Paul, If it is DH they have a different method of diagnosing that. For DH they take a small skin sample from next to a lesion. Also, people with DH sometimes don't show as much damage on the endoscopy. Probably because the immune attack is centered on the skin instead. DH testing can be done by a dermatologist. Regardless of what celiac testing...
  19. GFinDC
    Yes, it can cause that. Celiac disease can interfere with absorption of nutrients by the gut. That means you may be low on critical vitamins and minerals your body needs to heal and maintain itself. Celiac can actually affect any part of the body because of this nutrient issue. Brain, nerves, skin, joints etc can all be affected.
  20. GFinDC
    You might have DH (Dermatitis herpetiformis). DH is an itchy rash that only people with celiac disease get. There is a separate section of the forum for DH info.
  21. GFinDC
    Perhaps diverticulitis?
  22. GFinDC
    Hi Lynne, Welcome to the forum! People did think that celiac disease could be cured in the past. But they didn't understand back then that celiac disease is an AI (autoimmune condition). There is no cure for AI conditions. Once the immune system learns to attack a virus, a bacteria, or our guts or joints etc., it never forgets. So it would...
  23. GFinDC
    Hi James, It could take a couple weeks, or it could take years. It depends on how well you do at avoiding gluten (wheat, rye and barley) in your diet. Some of us also have to avoid oats. Celiac disease is an autoimmune condition and flares up when even a tiny amount of gluten is ingested. And the immune response can keep going for weeks to months...
  24. GFinDC
    Hi Anna, Peter isn't following this thread so he may not see your question. You can tell if people are following a thread by checking the small circle to the right of the thread title.
  25. GFinDC
    So, to be clear, are you gluten-free? It takes time to recover from celiac disease damage. A year or more is not too long to expect. In the meantime healing goes faster if you stick with a whole foods diet of simple foods. Avoid processed foods and do your own cooking. Any packaged food you buy should have 3 ingredients or less. The key to improved...
×
×
  • Create New...