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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GFinDC
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Hi Ryan, When you say she has been through gastro, KI assume that means they tested her gliaden antibodies? If the gliaden antibodies are low then she is doing a good job on the gluten-free diet. So celiac shouldn't be the problem, in theory. So maybe better to look elsewhere for answers. That being said though, it is not unusual for people to get...
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Hi Phil, Welcome to the forum! I think it's obvious you are severely addicted to Canada! Withdrawal is the problem... :) Joking! Trents has it right. Keep eating at least some gluten daily until your celiac disease testing is complete. The blood antibody testing depends on the immune system being actively producing antibodies which show...
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She is following the gluten-free diet right? If not, she needs to go gluten-free for her health to improve. Another thing to consider is getting her vitamin/mineral levels checked. Any deficiencies need to be corrected. A thyroid levels check would be a good idea too. Internal tremors is a pretty vague description. So it's not easy to determine...
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do you think celiac was around in ancient times?
GFinDC replied to DJFL77I's topic in Coping with Celiac Disease
Yep, if they would take time to read it! -
do you think celiac was around in ancient times?
GFinDC replied to DJFL77I's topic in Coping with Celiac Disease
The answers you seek are within grasshopper. https://en.wikipedia.org/wiki/Coeliac_disease -
Extreme Fatigue Advice
GFinDC replied to Brett92's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Doctors like to blame many symptoms on depression IMHO. And they are right to a certain extent. But depression can also be a symptom of physical illness. Fatigue can be caused by malnutrition. There is also a possibility of parasitic infection causing fatigue and weakness. Your doctor can check for that. Sometimes a short juice only fast of a day... -
Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are several brands of gluten-free crackers available. Blue Diamond Nut Thins, and Mary's Gone Crackers are a couple. Pretty sure Aldi has several types of gluten-free crackers also. Your priest may be willing to use those instead? They'd need to be wrapped in a separate cloth from the gluten wafers. And it would be better if the priest would allow... -
Merry Christmas PurpleMorphSuit! Ahhh, It feels good just saying that. First off, 3 weeks on the gluten-free diet is not very long to expect big results. it can take months to recover from celiac disease damage. 2nd off, if you ever want to get a formal diagnosis you should consult a doctor right away about getting the blood tests done. It may...
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Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, it sounds like you are the right track for potential symptom improvement Walter. Staying gluten-free 100% is the best way to get the celiac immune response settled down. It can take months for the celiac immune response to reduce to normal levels. The immune attack on your thyroid may and may not respond to the gluten-free diet. It could be that... -
Son's Testing Results - confused
GFinDC replied to Metoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi metoo, The positive blood results were positive for some reason. The immune system is not a constant, unchanging thing. Antibody levels can increase and decrease for no apparent reason in some cases. Flares of symptoms in lupus, RA, or other AI conditions are an example. I suggest you keep track of his symptoms and recheck his antibodies in 6... -
Some of the Cliff bars used to have barley in them years ago. I don't know if they still do though.
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Received diagnosis today
GFinDC replied to Mandymoos's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Kate, I don't eat potatoes so am not much help on the potato chip info. But as far as other type of chip like foods goes: Snyder's makes a snack called Puffin Corn that is similar to Cheetos but without the dairy. Around my area the Snyder's Corn Puffs are sold in gas stations but not most grocery stores. Vegan Rob's makes Brussels Sprout... -
Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think most popcorn should be fine to eat. As always, you need to verify the ingredients though. There are a myriad of possible symptoms related to celiac disease Walter. For instance, look up any of the conditions caused by malnutrition. I can't say for sure what is causing your cheeks to swell. It could be related to celiac or be from something... -
Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Walter, Yes, the antibiotics can cause a bad taste and indigestion. Bacteria are an important part of the digestive process. Your antibiotics probably list digestive symptoms as a side affect. The bad taste could be related to your thyroiditis also I imagine. Are you taking anything to help with that issue? Some of the vitamin stores like... -
Help. Gluten free and still suffering from horrible gluten rash
GFinDC replied to Meg G's topic in Dermatitis Herpetiformis
The problem with eggs is the iodine content, not gluten. People with DH seem to find relief faster when they limit iodine. Per posts on the forum at least -
Hi MM, I have hayfever. Before I went gluten-free I had much worse hayfever symptoms than I do now. I was buying antihistamines every week basically. My allergy symptoms backed way off after going gluten-free. They aren't completely gone, but are much less of a problem and not a constant issue. So I think there is definitely a link, at least in...
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Hi, Lactose intolerance can be caused by celiac disease damage to the villi lining of the small intestine. Those villi make an enzyme called lactase that breaks down lactose, the sugar in cow dairy. With the villi damaged by celiac, the enzyme isn't made and the lactose sugar gets eaten by bacteria, which seem to really love it. Those bacteria cause...
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Hi MM, If you are talking about DH breakouts, I urge you to review the information in the DH section of the forum. DH is hard to control and really not fun if it gets going strong. And it's vey sensitive to gluten once the antibodies build up in the skin layer. It can take 6 months or more for the itching to subside on a very restricted gluten-free...
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Hi MM, Itchyness eh? DH is a skin rash that some people with celiac disease get. People with DH (dermatitis herpetiformis) sometimes report mild or non-existent GI issues at first. It seems the antibodies attack the skin instead of the gut. They test for DH by taking a skin biopsy from next to a lesion. If the skin biopsy shows IgA antibodies then...
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Received diagnosis today
GFinDC replied to Mandymoos's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Mandy, Welcome to the forum! The ranks of the gluten-free crowd grows every day. Soon we will make our move and take over the grocery stores! Actually, that's already happening. There are many gluten-free products available now. Breads, chips, cookies, pizza, beers etc, etc. If we can answer any questions or help just let us know. Welcome... -
Hi MM, Most people who had GI symptoms to start with and go gluten-free and then do a gluten challenge will have more severe GI symptoms after restarting gluten IMHO. But if a person didn't have GI symptoms to start with they may or may not get them when starting up a gluten containing diet again. Personally I get some symptoms within an hour from...
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Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Walter, The labdoor site posts review of tests they do on vitamins. They aren't focused on gluten-free vitamins, so you need to verify gluten-free status yourself. https://labdoor.com/ Your doctor should be able to give you a report of your vitamin and mineral levels to review. If you are paying for a test they owe you the results. If... -
There may be type 1 refractory people on the board Janet. Hopefully someone will spot your post and join in the conversation. There was a study on refractory celiac awhile back where they found a high percentage of refractory celiacs were not truly eating a 100% gluten-free diet. They put a group of supposedly refractory celiac people on a truly 100...
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Newly Diagnosed - Symtoms
GFinDC replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Walter, Welcome to the forum! Hashimoto's Thyroiditis is associated with celiac disease. People with celiac get Hashimoto's at a little higher rate than other people. We have several forum members who have it. The thyroid gland is a large butterfly shaped gland with the body centered on the front of the throat and the wings wrapping around...